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Medical Forum / Diseases and Disorders / Lupus / January 2007

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Med for Migraines?

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Mair - 27 Jan 2007 09:26 GMT
Hi All,

I have had trouble with "migraines" for a long time.  In the past, when they
were unrelenting, I had to increase my prednisone, and Voila`! They did go
away.  The bad news for that is, it means something inflammatory is going on
with the headaches.

Well, my migraines have returned, meaning at least 2 or 3 times per week.
My MD (before she quit her practice, which was in November), said that
because I was having so many migrains, that "perhaps we should think about a
'preventative medication' rather than taking Imitrex (which does help) all
the time..." She did not mention any specific medication at that time.

Somewhere along the line, I got the impression that Neurontin is a
medication for migraines.  I have just tapered off that medication (which I
was put on as a "mood stabilizing" drug), and have been reading that it may
or may *not* be the best choice of medications for this problem.

Can any of you shed light on this?  What do you use to treat, or more
specifically to my concerns PREVENT migraine attacks if you get them
frequently?

thanks in advance
Late night, from Mair
Pigmet sound asleep over my shoulder.
Love.  (devotion from the pig)

Mair-mair
Cindy - 28 Jan 2007 04:19 GMT
Mair,
My migraines, the doctors decided, they thought were being caused by some
neuropathy from my brain surgery.
And probably from my fm...and maybe some from the tumor that is still there,
but no longer growing...
Any how...I tried the neurontin with little results...
Then we tried Topomax...It seems to work...
trouble is...of course it is new and there is no generic...but I was able to
get it for one year free because at the time I applied, it was before
Medicare part D and they went off my Tax returns for the year before and
that was the year before I got my SSDI...so that was cool...But this year I
will have to pay for it myself...Or at least my insurance will and I am sure
it will be in the highest tier and so it will cost the most...and then that
will eat up my total coverage...
Of course my doctors are good about giving me samples when they have them...
Cindy
> Hi All,
>
[quoted text clipped - 24 lines]
>
> Mair-mair
Mair - 28 Jan 2007 05:04 GMT
Hi Cin,

Wow, getting meds is really a problem for you.  I am sorry to hear that.  I
do not have Medicare, only Medi-CAL, and they pay for all my medications.
There is a certain list of medications that are allowed for Medi-CAL
recipients, and my docs (until this last slip up), have been careful to
prescibe the drugs that are covered.  I can get meds that are not even on
the list, because I have tried so many drugs over the years.  If you have
tried drugs that are on the list and they don't work, then they will allow
you to have something that is not on the list.  Lodine (etodolac) is my
major NSAID, it is the only thing that works for me and I have been taking
it for years.

But I am just babbling... I don't think any of it applies to you. One thing
about SSI, if I begin to work and have an income of any kind, then there is
a "share of cost" for the prescription medications.  I have heard people say
that they end up worse off financially because of the share of cost.  This
would certainly be the case with me... my maintenance medications alone cost
about $2,000 per month!

Nobody's touched my brain yet... no trephining... no neck bolts; I am just
stuck with me the way I am.  I could see them cutting open my brain, and
beginning to pull something out... and it's Pigmet!

I'll shut up for now.

Mair

> Mair,
> My migraines, the doctors decided, they thought were being caused by some
[quoted text clipped - 54 lines]
>>
>> Mair-mair
Sherry - 29 Jan 2007 01:09 GMT
Hi Mair,

Years ago one of the meds that I was put on to try and keep me from getting
my migraines so frequently was Inderal.  I think it is used for blood
pressure and is a beta-blocker.  It didn't really help and wiped me out.  I
have been on so many differant things that I can not even begin to remember
them and list them....NOTHING has worked in preventing them and Imitrex or
Maxalt seem to be the only drugs that ease them....short of the days that
they used to give me a shot that would knock me out and something to keep me
from the vomiting.

Hope someone has some answer on something that is "new" and works!

Hugs,
Sherry
Mair - 30 Jan 2007 01:50 GMT
I did find something!

And I don't know how many people this would apply to.  I was taking
Neurontin as a psych medication.  The Psy doctor tapered me off, cause he
said I didn't need it anymore.  Well that's find, good news, I *don't* need
something for a change...

I tapered off the Neurontin, and that is when these horrible headaches
started happening.  I am sure that the headaches were not some form of
withdrawl, becasue it was a very slow taper, and then I noticed that I had
been using more Imitrex, and calling for refills, which I had not done in a
long time.

So a few days ago, when I made this post, I was just desperate with pain.  I
decided to take the Neurontin, what the heck, I've got a huge bottle of it
sittin here.  I deluged myself with it.  The headache went away, and also it
was nice to feel stoned, which hardly any medication give me a buzz :-)

Now I am back up to 800mg 3xd, and I am having very little problem with
headaches!  You might give that a try.  Topomax is another one, but I don't
think it has a generic.  Generic Neurontin is Gabapentin.

I've been sleeping later, but to prove the point: I went out and had *fun*
today.  Most days I feel like I have some kind of plastic film over me... a
kind of alienated funk that is not visible, but is surely there, and it does
actually impair my functioning.  I did not feel that today.  I felt like a
real human being, I didn't get lost going to where I was going, which was a
big bead store... the biggest one in our county.  And I was there for
*hours,* because I wisely asked for a stool to sit on.  This store has a
huge table (called "the bin") that is about 3feet x 6feet, and is loaded
with all kinds of beads.  Bead fanatics will just dig through that table...
like treasure.  Uh Oh.  Pigmet is here.  He's rubbing his eyes like he just
woke up.  He heard the word "treasure," and he's sad that I did not take
him.  "Well, I didn't think of it as a treasure hunt when I left to go
there, Met, or I would have taken you!  So next time I go I will surely take
you, okay? And we'll buy something just for you.  Howzat?"

"K" :@(  [Mair scruffles the top of Met's head, and pulls him in for a hug]

Okay where was I?  I stayed at that store for three hours!  Any "bead
fanatic" will understand how easy it would be to lose 3 hours of time, when
they are set loose in front of a huge mountain of beads!

Back to the headache problem... It really seems to be gone!  And I know that
you understand what a wonderful feeling that is (or must be if you haven't
had it in a while).  It *is* wonderful.  I was slugging along on this art
project that I really *have* to get done, and it was so hard, having those
headaches.  Now with the headaches gone, I can see the improvement in the
work that I am doing!

So Sherry--we just have to find you something like this.  I have other
problems that still remain--that neck pain that goes up into the back of my
head, etc... but nothing as bad as a migraine.  You should see my bedroom.
I have the windows completely blacked.  You can't tell what time of day it
is in that room.

Okay I've rambled to excess.

Love to you all,
Mair (and Met)

BTW, Inderal sucks donkey.

> Hi Mair,
>
[quoted text clipped - 11 lines]
> Hugs,
> Sherry
Health Solutions - 30 Jan 2007 05:24 GMT
Hello,

I ran into your message accidently while searching information
regarding "Blood Pressure". I read an article at http://www.medical-
health-care-information.com/encyclopedia/m/Migraine-Headaches.asp
which has useful information about Migraine. Article says "Migraines
are painful, sometimes debilitating headaches often accompanied by
nausea, vomiting, and sensitivity to light, noise, and smell. These
throbbing headaches usually occur on only one side of the head,
although the pain can shift from one side of the head to the other, or
can occur on both sides simultaneously. Migraines involve changes in
chemicals and blood vessels in the brain, which trigger pain signals
leading to headache and other symptoms." .

Maybe it helps you.

Regards
Monica

> Hi All,
>
[quoted text clipped - 24 lines]
>
> Mair-mair
Health Solutions - 30 Jan 2007 05:25 GMT
Hello,

I ran into your message accidentally while searching information
regarding "Blood Pressure". I read an article at http://www.medical-
health-care-information.com/encyclopedia/m/Migraine-Headaches.asp
which has useful information about Migraine. Article says "Migraines
are painful, sometimes debilitating headaches often accompanied by
nausea, vomiting, and sensitivity to light, noise, and smell. These
throbbing headaches usually occur on only one side of the head,
although the pain can shift from one side of the head to the other, or
can occur on both sides simultaneously. Migraines involve changes in
chemicals and blood vessels in the brain, which trigger pain signals
leading to headache and other symptoms." .

Maybe it helps you.

Regards
Monica

> Hi All,
>
[quoted text clipped - 24 lines]
>
> Mair-mair
Health Solutions - 30 Jan 2007 05:26 GMT
Hello,

I ran into your message accidentally while searching information
regarding "Blood Pressure". I read an article at http://www.medical-
health-care-information.com/encyclopedia/m/Migraine-Headaches.asp
which has useful information about Migraine. Article says "Migraines
are painful, sometimes debilitating headaches often accompanied by
nausea, vomiting, and sensitivity to light, noise, and smell. These
throbbing headaches usually occur on only one side of the head,
although the pain can shift from one side of the head to the other, or
can occur on both sides simultaneously. Migraines involve changes in
chemicals and blood vessels in the brain, which trigger pain signals
leading to headache and other symptoms." .

Maybe it helps you.

Regards
Monica

> Hi All,
>
[quoted text clipped - 24 lines]
>
> Mair-mair
Mair - 30 Jan 2007 06:54 GMT
HELLO???

Believe me, I know what the symptoms are already.  Yes, even sensitivity to
odors.

But THANK YOU for trying to do something helpful.  Caring means a lot to all
of us on this group.

Mary

> Hello,
>
[quoted text clipped - 50 lines]
>>
>> Mair-mair
Nicole - 30 Jan 2007 20:06 GMT
Elavil and Inderal are both used prophylatically.  Cheap and worth a shot if
you haven't tried 'em already.

Signature

3 of every 10 Americans Know Someone With Lupus
Help find the cure.  www.lupus.org

> Hi All,
>
[quoted text clipped - 24 lines]
>
> Mair-mair
 
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