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Medical Forum / Diseases and Disorders / Lupus / January 2007need some info
Hi gang, yes the southern states are beautiful this trip and we are enjoying much of it when I can. I need some help with neuropathy pain as well as headaches again. Anyone have info on it beside the lyrica which I tried and made me spaced out badly and the neurotin that made me have a personality change. It is in my feet and off and on in my hands now. Then I do notice the creepy feeling of something crawling on my lip or ear of face and nothing is there. The hands get painful and numb or vice versa. This is not constant but off and on. I am also having them NICE headaches that a year ago NOV I had blocks for. Well the block must of putted out cause I got them back. I tried ice, darvocet heat and more medrol but boy oh boy. Nausea is bad and I know this is all related to a lupus flare right???? is it??? ok well that is my story and sticking to it. take care all and thanks in advance janers Janers, Glad the weather is beautiful this trip to the south...now if we could just get your body to cooperate!!!!!!! Sorry that it starting up again. I wish that I had an answer for you. My headaches are migraine and Imitrex or Maxalt usually works for me and I gave up on something that works for the neuropathy. ( Was feeling like a lab experiment) Hope that someone comes up with something that works for them and that you haven't tried and that will work for you. Keep us all informed on how you are doing when you can. In case you missed the post and I know you will want to know. Grace Casselman's sister posted that Grace passed away in Nov. She was able to spend one night in her new home before having to go back to the hospital and all of her family was with her when she went. Hugs, Sherry > Hi gang, yes the southern states are beautiful this trip and we are > enjoying much of it when I can. I need some help with neuropathy pain [quoted text clipped - 18 lines] > > janers Hi Janers, I have experienced both of your current agravations. As for the creepy-crawleys they just seem to come and go but are more likely to show up during a period of inactivity. I rub the affected area and sometimes even shower to get relief. I do not remember this being a harbinger of a flair. My Rhuemy offers nothing for treatment. As for headaches I cannot take aspirin so I take potassium. It works very well for me. As with any recommended remedy one must be cautious especially if you are a heart patient. (which I am not) I hope you find a solution. George > Hi gang, yes the southern states are beautiful this trip and we are > enjoying much of it when I can. I need some help with neuropathy pain [quoted text clipped - 18 lines] > > janers You had a personality change in your feet and your hands? What, you would, like, wave to people you didn't know? I am teasing. I understand perfectly what you wrote. Have you ruled out sinus for headaches? I take a nasal spray of Nasonex before I go to bed at night, and I usually don't have the horrible headache I used to have every morning. It has been several years now (gee, I musta been on this NG for a loooong time!), but I thought I was having migraine headaches every day for most of the month. Imitrex wasn't helping; nothing was helping. Reluctantly, I upped my prednisone, and "sho'nuf" those headaches went away and it was such a relief. I am still on a small amount of pred (7.5)--when I decrease more than that, I seem to flare up *somewhere* in my body...so I have been on 7.5 for maybe two years? Hope this helps Love and Devotion, from Mair and Pigmet, respectively > Hi Janers, > I have experienced both of your current agravations. [quoted text clipped - 34 lines] >> >> janers Back at you. I have heart problems and high bp so I can not just take potassium and I surely hope your doctor knows you do this also. Too much potassium makes the heart irritable and can cause irregular beats. I am also on Flonase but it is not sinus headpain. It starts in my neck where my fusion is and goes from there into my head from the back. I packed it in ice and it helped a little then tried heat wrap to the neck. Seems the neuropathy might be what is going on as well. I guess I just will have to try and deal with it like we all do our problems. thanks all for your suggetions and you guys hang in there. janers > Hi gang, yes the southern states are beautiful this trip and we are > enjoying much of it when I can. I need some help with neuropathy pain [quoted text clipped - 18 lines] > > janers Janers, I seem to be experiencing EXACTLY what you are right now. Nothing really helps, the Lyrica helps me sleep, and I got used to it and it didn't space me out anymore. It helps the pain more than anything has. My hands and arms are always bad and we had a cold front last week and I was in terrible pain for 2 days with heating pads on my arms. I was moaning and almost crying. The headaches are constant and nothing has helped. I have the nausea and no appetite and everything too. I'll probably have to make a trip to the doctor soon. I just don't know what to do. Sorry I can't help but I can EMPATHIZE! God Bless. Krista |
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