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Medical Forum / Diseases and Disorders / Lupus / January 2007

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Staying active without overdoing it...Ideas and tips?

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ChelleSmiles - 02 Jan 2007 21:17 GMT
Hi all,

With the New Year and potential resolutions or just personal goals (in
my case) I thought that some of us may be looking for good ways to stay
active that don't compromise our health.

Before the wave of Autoimmune Disease hit me I was very
athletic...competing in 5K and 10 K races and even completing a
Marathon!  I was a fitness addict...even considered becoming a personal
trainer and competing in fitness competitions (no giant man muscles on
me, though!  just nice toning).

I have been trying some different things, and I find that it's hard to
find ways to workout that don't send me into a setback
physically--depending on how bad of a day I am having.  I walk on my
treadmill, but that gets boring doing the same thing all the time.  I
have been trying some Leslie Sansone Walking Videos, which I do
recommend.  I also have some yoga DVDs that I use.

My hardest thing is getting motivated on days where my energy is really
low and my body feels completely weak.  Any tips or ideas?  Sometimes I
just go ahead an put my workout clothes on even if I don't feel
good...and that way I'm one step closer.  Another thing I try to do is
to just try to keep myself moving even if it's just cleaning the house.
Sometimes I get my workout clothes on, though, and feel so tired I lay
down and end up falling asleep. (I workout in the evenings after work
because mornings are very difficult and I do good to make it into work
on time).

It is very hard because physically I feel very weak now, and the
fatigue and exhaustion is hard to overcome.  I am generally very
self-motivated,  but some days I just can't do it.

Any creative ideas to help jump-start my motivation on bad days?  Any
creative workouts that won't over-exhert me?  I am 30, and want to stay
fit and healthy, but the change in my body since I developed this
Autoimmune Disease has been a negative one, and I would like to do my
best to live healthy like I did before.

Thanks in advance, and Happy New Year!
Snake Lady - 02 Jan 2007 22:32 GMT
> Hi all,
>
[quoted text clipped - 36 lines]
>
> Thanks in advance, and Happy New Year!

Hi Chelle, don't force yourself to workout on the days you are weak, on days
you feel a little better then you can do some light weights  work maybe?  If
you are feeling weak, your body is obviously telling you its tired!!  I used
to be a bdoy builder in my past, so know how you feel, but making yourself
overtired is a negative thing!!  Good luck
Janet
Signature

--
Snake Lady

Ruth Tay - 02 Jan 2007 23:09 GMT
Tips  for job completions

Give yourself little rewards every time you can accomplish a goal.  
Write lists of what you want to do each day.  Choose one  and when
you get it done,  take time out  and have a cup of cocoa or tea   or
a computer game you like to play.  Then onward to the next item on
your list.  Since I am self-employed these little rewards get me through
the day.  If someone comes in and finds me working out a cross-
word  puzzle  its  okay.    Be kind to yourself each day.    Be sure
to take Vitamin D  when you can't get outside     cheers      you
just won the marathon   ruth

> Hi all,
>
[quoted text clipped - 36 lines]
>
> Thanks in advance, and Happy New Year!
William R  Thompson - 03 Jan 2007 09:26 GMT
> Any creative ideas to help jump-start my motivation on bad days?  Any
> creative workouts that won't over-exert me?

On some days my exercise program amounts to saying
"Okay, eyelids, drop and give me fifty!"  Not to mention
bench-pressing the sheets--it always amazes me that
bedding can weigh so much.

A neighbor gave me a like-new rowing machine in mid-'05.
I've set it up across the room from the TV.  I'll put on a
movie and exercise while it plays: pull on it until I start to
get tired, rest a while, then do some more.  After a while
I'll get bored, because I can't hear the TV over the noise
of the machine.  I'll say to myself  "If I've got enough
energy to do this, why don't I do something useful, like
cooking, or woodworking, or better yet, put some lighter
sheets on the bed?"

Cooking is a good exercise for me.  Think of someone who
could use a batch of chocolate chip cookies, or a pie, then
make delivering it my goal.  There's all sorts of light exercise
involved: standing in the kitchen (without falling down), then
delivering the finished product (which gets me out) and
listening to the recipient say "You're going to make me fat!
How do you stay so thin?" (the energy involved in not laughing
really adds up).

--Bill Thompson
ChelleSmiles - 06 Jan 2007 02:10 GMT
Hi everyone!

Thanks for your replies.  I loved them all...the funny and the helpful
alike!

I would have written sooner, but I took my dog for a walk Wednesday
after work, and no joke, it wore me out so much that I slept all night
Wednesday night and had to call in sick to work...I slept until 5PM the
next day...awoke long enough to cook dinner and lay on the couch for a
while...and then I slept another full night on Thursday.   I slept
about 17+ hours On Wednesday/Thursday day...followed by another 8+
hours Thurs night.  It amazes my boyfriend.  Needless to say, I didn't
do a workout yesterday.

Maybe tomorrow I will do a light bit of work.

One thing has made me feel better...and that is seeing that I'm not the
only one who gets her major workouts from telling her eyelids to "drop
and give me fifty!"  I've been trying to stay active, and sometimes
cleaning my house is my workout for the day.

Time to get to work testing the pillows on my sofa and the remote for
my TV.  After the spell I had yesterday, I am not going to push it too
hard today.  I am somewhat spent from a full day of work, doing
laundry, cleaning the bathroom, and putting my Christmas Decorations in
the garage.  That is plenty for me.

Thanks again.  And keep the funny remarks coming!

Michelle

> > Any creative ideas to help jump-start my motivation on bad days?  Any
> > creative workouts that won't over-exert me?
[quoted text clipped - 24 lines]
>
> --Bill Thompson
gazorpf@yahoo.com - 06 Jan 2007 13:32 GMT
Putting on your work out clothes is a great way to get one step closer.

Don't go crazy with goal setting, list making, or comparing yourself to
how you used to be. That is a recipe for failure and depression.

Instead, observe your body and how you are feeling. Try to rest BEFORE
you get tired.

When you decide to work out, each time, make a reasonable goal. On my
worst days, I decide to walk for 5 minutes. I go out after dinner to
avoid the sun. I walk 2 and 1/2 minutes and turn around. I have
succeeded. Once I start, I often find I want to keep going. Fine. I do
it. But if after 5 minutes I am still pooped, I go back and rest. Most
nights I manage to go 3 miles. Some nights, I go down the stairs and
realize that this is just not going to happen.

When you don't feel well enough to work out, journal instead. This is
also very healing and helps you clarify what you are feeling. Once you
have bemoaned your losses (and you probably will) make list of what you
DO have and what you CAN do. Can you breathe, eat, see, hear, smell,
taste, touch, walk, talk, breathe, think, read, learn, love, smile,
frown, cry, be with loved ones? What else is still yours. Do you have a
place to live? Food to eat? etc.

I am not saying to be a Pollyanna. When I was newly diagnosed and
people suggested that lupus was " a gift" or "we are never given more
than we can handle" or "it could be worse" and all that bull, I used to
snap back, "Yes and I am soooooooooooooooooooooooo thankful that I am
an unemployed zombie but at least I don't have leprosy and my fingers
and nose are not falling off!" (OK I am prone to bizarre humor and a
touch of sarcasm from time to time.)

However, I have found some gifts. I don't take things for granted as
much. I am more thankful for all the little things as well as the big
things. I make wiser choices in how I use my time and energy. I have
learned what is really important to me and what can be discarded. I
have learned to redefine myself in a hundred ways. Most important, I am
not a human DOING I am a human BEING. I don't beat myself up over
unattainable goals. In fact, I rarely beat myself up at all anymore.
It's not worth my time or energy.

We have a lot of adjustments to make because of our autoimmune disease.
But, sooner or later others have to make similar adjustments for
various reasons. And chronic diseases are being diagnosed earlier and
medical treatment keeps people alive longer. This means there are more
and more of us with chronic illnesses. In the US there are an estimated
141,000,000 people struggling with chronic illness. We are not alone.

Linda

> Hi all,
>
[quoted text clipped - 36 lines]
>
> Thanks in advance, and Happy New Year!
J - 06 Jan 2007 15:56 GMT
> Putting on your work out clothes is a great way to get one step closer.
>
[quoted text clipped - 11 lines]
> nights I manage to go 3 miles. Some nights, I go down the stairs and
> realize that this is just not going to happen.

okay so far. Yes, I go walking, often in the darkness
[Note - some of you may not have safe places to do this so be careful]

> When you don't feel well enough to work out, journal instead. This is
> also very healing and helps you clarify what you are feeling. Once you
[quoted text clipped - 3 lines]
> frown, cry, be with loved ones? What else is still yours. Do you have a
> place to live? Food to eat? etc.

Journal? And housework, and cook and clean and laundry and grocery shopping
and doctor's appointments and work and workout?  and post to newsgroups?
Geez, I've only done 5 posts and I'm exhausted. :)
Think I'll sit back and read and hope you'll all take care of yourselves.
J
gazorpf@yahoo.com - 06 Jan 2007 22:36 GMT
When you are getting the safety instructions on an airplane, you are
told that if the cabin looses pressure and the oxygen masks drop down,
put the oxygen mask on YOURSELF FIRST. If you put it on the weaker ones
who depend on you first, you will not be conscious to continue to care
for them

What would you tell a dear friend who has lupus? We have to be our own
best friends. When we are carrying all kinds of frustration inside it
ultimately causes problems for our health and relationships. Anger
turned outward alienates those we love. Anger turned inward becomes
depression which further immobilizes us. Journaling is a good way to
put the oxygen mask on yourself first. I hope you give it a try.

> > Putting on your work out clothes is a great way to get one step closer.
> >
[quoted text clipped - 28 lines]
> Think I'll sit back and read and hope you'll all take care of yourselves.
> J
ChelleSmiles - 08 Jan 2007 02:35 GMT
> I am not saying to be a Pollyanna. When I was newly diagnosed and
> people suggested that lupus was " a gift" or "we are never given more
[quoted text clipped - 3 lines]
> and nose are not falling off!" (OK I am prone to bizarre humor and a
> touch of sarcasm from time to time.)

I have to say I have been trying to come up with a great response to
all those well-intentioned people.  My own mother commented, "The good
thing about lupus is it can go into remission."  And then she went on
to mention 3 other people who are ok who have lupus.  I know she meant
well, but she didn't even take a moment to empathize with me and say
anything like, "I'm so sorry that you have to deal with this."  I'm
sure most people with illnesses don't want people saying, "the good
thing about *cancer* is..."  or "the good thing about pnemonia is..."
when the reality is it sucks that you have whatever it is in the first
place.

On the other hand, one guy at work said, "I heard you have Lupus.  I'm
so sorry to hear that because my aunt had that and she died."  I was
this close to saying, "well aren't you a ray of sunshine on my day?"

But I do appreciate your suggestions about being active.  My main
concern is the weight gain I have seen due to the decreased activity.
I do try to motivate myself.  If i did not work all day long (sitting
at a desk), I might have more in me for working out in the evening.
Even so, I do try being active in baby steps.

I'm still in the process of accepting my limitations, and I think it's
difficult because other people don't readily accept them...I look
able-bodied to them.  And if people say, "why can't you do this?"  I
don't want to explain to them why...

I am frustrated because if people call and I wake up from napping to
answer the phone, I get these sarcastic, "you're sleeping?  when are
you not sleeping?"  I have got to get used to ignoring peoples
unsolicited commentaries.

I think you had some gread suggestions.  I appreciate this group of
people greatly.

Michelle
Evie - 17 Jan 2007 16:48 GMT
I started water therapy at NovaCare and for the first time in years
feel wonderful.  NovaCare is a big pool that is heated with all kinds
of stainless steel exercise equipment under the water.  It is different
than the regular pools you see around.  It kind of reminds me of the
lazy rivers you see at parks.  You walk in the 4 ft water forwards,
backwards, side to side and marching for 10 minutes at a time.  From
there you go to the center of the pool which is 97 degrees and does
that feel good right to the center of your joints.  There is more
equipment in the center under water.  I come out of there feeling so
good and actually went off my Zoloft.  I feel like so alive.  The
doctor ordered this therapy for my arthritis and insurance covers 60
visits.  NovaCare also has a membership which I think I will keep up.
There are others with lupus and auto-immune diseases that have found
this to be good for them too.

Ev
ChelleSmiles - 18 Jan 2007 19:12 GMT
Evie,

That sounds wonderful!  I was just wondering yesterday about aqua/pool
workouts.  I will look to see if there is somewhere in my area with a
program like that for me to try.  I am so glad you shared this with us!

Michelle

> I started water therapy at NovaCare and for the first time in years
> feel wonderful.  NovaCare is a big pool that is heated with all kinds
[quoted text clipped - 12 lines]
>
> Ev
camilla - 20 Jan 2007 16:01 GMT
this may not be possible for you, but i got dogs. i had a problem never
getting motivated to go out, but now i HAVE to, and it helps me to take
walks, and when i feel a little more energized, sprint with the dogs.
in addition, i also take them for walks in different places, which was
the most helpful thing i had found prior to the animals. just driving
to different places: parks, college campuses, bike trails, and choosing
different scenery that i enjoyed made going out meditative and
interesting. i was never much of a work out fan, and since i got sick
my level of energy dropped dramatically, so walking is really the most
i can manage at this point. i also swim when i can, which i find to be
very relaxing as well. i think exercise that helps calm has been the
most successful for me since i have sworn never to be stressed anymore
and when i used to run i often got too goal-oriented ("just one more
lap...") and it wasn't relaxing to me. good luck staying fit & healthy!
i have also heard that yoga groups are good, esp for lupus, but i have
yet to go regularly.
 
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