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Medical Forum / Diseases and Disorders / Lupus / December 2006Wellness
This group has all been stimulated by the challenge that we lack the desire to be well. Love the response from so many of you because you delineated all of my inner thoughts. Thank you. Finally over a flare that has lasted more than a year. It is so wonderful to be able to get out and look around and see beauty in every leaf and flower. The pleasure of walking and even looking in stores is exciting. Do you ever wonder if on our good days we enjoy life more fully than those without Lupus? Thank you to whoever it was in the group that mentioned Vitamin D. It is making a difference. ruth Well it is SO great to see you on line my friend. I must of missed your post earlier and who ever did give you the idea of Vit D well Thank you to them too. Tis true to stop and see every little thing with much awe for we don't do that too much now do we? I see my grandkids grow and the smiles and awareness of everything to them is new, that you got to grab onto that yourself for life is shorter all the time. God Bless you Ruth and you are always in my thoughts and prayers. love you janers Hi Ruth, It's great to hear you're having some good days. And yes, I think we all appreciate everything a little more than those without health issues. :) Maggie HI RUTH!!!!!! I lost your email addy when I crashed my entire email system. I did it, don't know how but you know those little boxes that pop and ask if you are sure? Well of course I was sure. LOL Give you hubby our best and I'm so glad to see you are doing well especially with Xmas not far around the corner and children and grandchildren coming in from all over the world. I think there are many things in life that tend to remind us just how precious and precarious life is sometimes. So few people do take the time to enjoy the things around them and count the blessings that they have. Stay well and enjoy life. You deserve a long break from sickness. Love and (((Hugs ))) and a few \\\\\ for Cloii. Bev > This group has all been stimulated by the challenge > that we lack the desire to be well. Love the response [quoted text clipped - 12 lines] > mentioned Vitamin D. It is making a difference. > ruth After just being dianosed with sjogren's Syndrome (and I expect a diagnosis of SLE is coming soon), my doctor told me that my blood tests showed a deficiency in Vitamin D. At his recommendation I have begun taking vitamin D (almost one week now, and I do seem to notice an improvement in my energy levels and the way I feel.)... I just thought I'd share my vitamin D testimonial, too. Who knew? I'm glad to know that a vitamin can really help the way I feel. > This group has all been stimulated by the challenge > that we lack the desire to be well. Love the response [quoted text clipped - 12 lines] > mentioned Vitamin D. It is making a difference. > ruth Vitamin D can be very helpful. A nurse in our LFA chapter recently wrote a long article on osteoporosis. Of course, vitamin D is necessary for utilizing calcium. Our skin makes it when we are in the sun, but then we don't go out in the sun that much. What I did not know is that Plaquenil (hydroxychloroquine) inhibits vitamin D. Vitamin D is found in cod liver oil, but I am not sure about other fish oils. In any case, fish oil and oil of evening primrose have both been shown to reduce inflammation and it is the inflammation that causes most of the pain. > This group has all been stimulated by the challenge > that we lack the desire to be well. Love the response [quoted text clipped - 12 lines] > mentioned Vitamin D. It is making a difference. > ruth I hadn't heard that about plaquenil inhibiting Vitamin D...I am supposed to start taking plaquenil as soon as I get it by mailorder. What do I do? take more Vitamin D? > Vitamin D can be very helpful. A nurse in our LFA chapter recently > wrote a long article on osteoporosis. Of course, vitamin D is necessary [quoted text clipped - 23 lines] > > mentioned Vitamin D. It is making a difference. > > ruth I just sent the article to our webmaster to be uploaded to the Greater Florida Chapter of the Lupus Foundation of America website. I am not sure when he will get it up there. www.lupusflorida.org is the address. I also think Pat has a URL for the article she wrote. I will write and ask her. Vitamin D is one of those vitamins where too much can be dangerous. I was surprised when I read that too. Pat is a doctoral candidate in nursing and very careful with her research. With plaquenil, it is very very very very important that you have a full eye evaluation EVERY SIX MONTHS at the beginning and EVERY YEAR after that. In rare cases plaquenil can affect the retina. You will need a field of vision test and a careful examination of the retina. Most people do not have trouble with it. You can also email me for a copy. gazorpf@yahoo.com Linda > I hadn't heard that about plaquenil inhibiting Vitamin D...I am > supposed to start taking plaquenil as soon as I get it by mailorder. [quoted text clipped - 27 lines] > > > mentioned Vitamin D. It is making a difference. > > > ruth |
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