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Medical Forum / Diseases and Disorders / Lupus / November 2006

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Neurologist visit - the newest news

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Beverley - 23 Nov 2006 04:51 GMT
Well aside from the fact that we couldn't find the place !!! Oh, yes it's in
the building to the right of the hospital. Well the building to the right of
the hospital has 3 floors and a neurology group and they are in suite 320. I
thought it was suite 302. Okay maybe I transposed the numbers. Nope, they
didn't have an appt for me; no they never heard of my doc. GRRRR!!!!!!!!!!

Maybe the gal meant to the right of the hospital if you are in the hospital
looking out so we went to the BUILDINGS on the left. Can't find neurology
there. I finally went into a big family practice group and asked if anyone
knew where this guy was located. One of the gals knew them and told me where
to find him. INSIDE the hospital on the right wing of this big new
hospital!!!

I get in and yes, I fill out at least 8 pages of insurance stuff and sign
and sign and sing and sign! Then I go back to be seen. In the meantime hubby
takes off with granddaughter who (knows there is a Starbucks in hospital)
wants a drink! He's supposed to be with me! Yes, let's take my BP now! Okay
he gets back to me. Sit talk to nurse.

Doc comes in - it's a female, okay that's cool I figured from the name it
was a male. But when the name starts with Habib, who knows?  But she wasn't
the doc, she was a NP or PA. She talks to me at length. Very nice, I really
liked her. She did all the stupid stuff like make me stand up and hold my
hands out sort of thing and then reviews why I'm on pain med.

"And you're taking 1.5 mg per day?"
"NO!!! I'm sucking down 22.5 mg per day."
Her face fell and we could hear her suck in her breath!
"OH, MY! Is it helping?"
"Hell, NO! It just keeps me stoned so I can sleep between the pain."

She writes Rx for new drug. Says my ins will cover it. (Yeah, sure, but I
still have to pay for it and it is a sliding scale thing according to $ of
med. The more the $ med, the more I pay!)

It's fricking raining here again. Yep, about 36 hours now of rain. Darn
roads are closed because the river is over the bridges. The call it
Tidewater for a reason folks! They should rename it to Underwater. So we
have to go the long way around to get home and drop grandchild off. (It's
supposed to rain until tomorrow night!) Except the easiest long was is a
major route and obviously they have an accident up the road because traffic
is moving at 5MPH when it moves, get off first exit and take little tiny
back roads and hope they aren't washed out.

Then go to the drug store. Drop off Rx at 5:30, we decide to eat. Nice
restaurant by drug store - so we eat there. Go back to pick up Rx. They
can't fill it. I need some sort of authorization first. So I won't get med
until next week.

So I'm home and really haven't had any pain in the last 24 hours anyway, but
I knew that was going to happen. I don't like the idea of being on a med for
life and she was talking about that as a possibility.

Oh and doc was supposed to see me but didn't. That's okay, trigeminal
neuralgia is pretty cut and dry.

HAPPY THANKSGIVING! I'm going to oldest daughter's house. She didn't want me
to try to fix dinner being I've been in so much pain. Youngest daughter is
running 911 calls with rescue squad.
Bev
Maggie - 24 Nov 2006 17:54 GMT
Bev,

I'm sorry you have to deal with this.  It seems they should be able to
do something in this
day in age.  They use Botox for various reasons, like to stop the sweat
glands in people with sweaty hands etc.. Couldn't they use it in your
case or is that going too deep by using it on the nerves?

Just seems like something could be done.....

Maggie

> Well aside from the fact that we couldn't find the place !!! Oh, yes it's in
> the building to the right of the hospital. Well the building to the right of
[quoted text clipped - 56 lines]
> running 911 calls with rescue squad.
> Bev
Shelagh - 24 Nov 2006 18:49 GMT
So then what did you get in the way of a new med to deal with the TN?
I too get it, so far only on the right side of my face, always severely when it occurs and so ask for selfish reasons... luckily so far for me, decadron handles the pain I get very well but I am curious as to what you would be 'scribed' in your part of this world...TIA
hugs,
Shelagh
http://clik.to/lupus

<snip>
"Beverley"  wrote in message:
She writes Rx for new drug.
Says my ins will cover it. (Yeah, sure, but I still have to pay for it and it is a sliding scale thing according to $ of
med. The more the $ med, the more I pay!)
Go back to pick up Rx. They
can't fill it. I need some sort of authorization first. So I won't get med
until next week.
I don't like the idea of being on a med for
life and she was talking about that as a possibility.
Bev
</snip>
 
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