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Medical Forum / Diseases and Disorders / Lupus / November 2006

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disability

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Nicole - 16 Nov 2006 06:32 GMT
Ok all
How hard is it to get disability?  What do I need to do?
I'm 30 yrs old... was diagnosed at 20... stayed at home w/my kids, went to
work part time and quit was I was getting sicker and now am at home again.
Hubby is griping about money because I'm not even trying to get disability.
I'm in CA btw.

Thx
Nicole

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3 of every 10 Americans Know Someone With Lupus
Help find the cure.  www.lupus.org

Sherry - 16 Nov 2006 16:08 GMT
Nicole,
I worked most of my adult life and like you when I got to the point that I
couldn't handle work and being ill I quit working.  Everyone was saying how
difficult it was to get the disability and at that time I just didn't have
whatever it takes to go through that so  I waited....about a year later when
I was ready to deal witht he disability issue...I get my Social Security
Statement and it states that I do not have enough points (or whatever their
word was) to get disability.  The last few yrs that I worked I was only
doing so part time....I'm almost 56.

I would suggest that you get the Social Security papers and file and go from
there.  I know I waited too long and never filed the papers...now I get to
wait till I'm old enough to get my regular Social Security check as I am
still not in any condition that working would be benificial for me or the
person I went to work for....besides the fact that it would take too long to
get the points I need if I went back to work just to be able to get the
disability.

Sorry that my reply is not what anyone wants to hear but maybe will keep
someone from making the same mistake that I did.

Good luck!

Hugs,
Sherry
> Ok all
> How hard is it to get disability?  What do I need to do?
[quoted text clipped - 6 lines]
> Thx
> Nicole
Sherry - 16 Nov 2006 16:14 GMT
sorry forgot to post this link.
http://www.socialsecurity.gov/

All the info and printable forms are there.

Sherry

> Ok all
> How hard is it to get disability?  What do I need to do?
[quoted text clipped - 6 lines]
> Thx
> Nicole
Michael Roeper - 16 Nov 2006 18:11 GMT
> Ok all
> How hard is it to get disability?  What do I need to do?
[quoted text clipped - 5 lines]
> Thx
> Nicole

I spent 3 years trying to get SS disability and the frustration was
huge. I can give you 2 pieces of good advice. First (as someone else
has said) be sure you don't wait too long to apply. I had enough work
credits to be able to get the maximum monthly disability amount but if
I had waited another 3 weeks to apply, my credits would have run out
and I wouldn't have received any SSD benefits at all (I could have
received SSI but that's not nearly as much each month as DDS...you will
want to be sure and apply for BOTH SSD and SSI benefits from the
start!). The monthly SS check and the medicare I receive have made a
huge difference in my life.

Second, after being turned down the first 2 times, I hired an attorney
who explained to me how the whole thing really worked. I would not have
prevqailed in my hearing had I not hired her. (This next item is the
most important piece of SSD advice I can give you):

The decision is made, to a huge extent, with all other things being in
order) by the information contained in your doctor's chart notes!!!!!

Once they determine that you qualify with enough credits and that your
"type of illness" is one that qualifys, the doctors chart notes are
critical. If you don't have the support of your doctors, you will not
get the support of those making a disability decision on your behalf. I
didn't have my doctors "on my side" until 3 years later when we went to
hearing. It took almost a year after applying for the hearing just to
get a hearing date. . By that time I had become a lot sicker and both
doctors fully supported my disability and we were able to "massage"
them into including information into their chart notes that supported
my goal.

As a result when we got to the hearing I was in the room for less than
5 minutes. The judge hired a doctor to evaluate my medical records and
doctors chart notes and then to advise him (the judge) as to the extent
of my disability.. The first think the judge did was ask the doctor for
his report. The doc said, "The man has Lupus," and the judge said,
"benifits approved," banged his gavel and left the room. Ten weeks
later I received a check for over $40,000 (benefits are retroactive to
your first application date) and have received Medicare and a monthly
disability check ever since. Also, since I was over 50 years old the
attorney said that I wouldn't have to continue to requalify and reprove
my disability status every few years.

The attorney cost me $5,500 (the maximum allowed my law) for 5 minutes
in the courtroom and about 5 hours in her office but I would never have
received my benifits without her help and advice. $5,500 seems like a
lot for her limited involvement but if I had to do it all over again I
would have hire her from day one.

Hope this all helps. It tkes a lot of gumption and effort to get this
done but with the internet you have a lot of resources available to you
and the folks here will help you a lot too.'

Michael
Maggie - 16 Nov 2006 23:58 GMT
I'm sorry, Nicole, but I've got to agree with what Sherry's saying.  It
honestly doesn't sound like you will have the credits for SSDI and
because your husband makes a living (period), you likely won't qualify
for SSI either.  Do check your work credits just to be sure though
cause you never know.

Are you in a state where social services has extended medical insurance
for families with moderate incomes?  Or does your hubby have insurance
for you already?  

Maggie
Nicole - 20 Nov 2006 17:00 GMT
I don't have enough work credits.  I worked from 16 on but the majority of
the time, I was working for the school which doesn't pay into SS.

I do know a few people who receive "disability" and they never worked....
granted, they received their benefits many many years ago (at least 25) so I
don't know how that factors in.

We do have insurance thru hubby's job and he makes a decent salary.  We're
in the lower portion of the upper middle class.  We bought our house 7 yrs
ago and thankfully, he does have job security unless he does something
stupid.

I'm in CA and if you work, there's no help.  I don't need the insurance
although my portion of the insurance is ridiculous (I pay hundreds monthly
in co-pays)

If I don't qualify, I don't qualify.  He'll have to cope.
Thanks for your help
Nicole

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3 of every 10 Americans Know Someone With Lupus
Help find the cure.  www.lupus.org

> I'm sorry, Nicole, but I've got to agree with what Sherry's saying.  It
> honestly doesn't sound like you will have the credits for SSDI and
[quoted text clipped - 7 lines]
>
> Maggie
Maggie - 20 Nov 2006 19:20 GMT
Nicole,

There's one thing I forgot about.  You said you were diagnosed at 20 &
that would qualify you as a dependent child on survivors benefits.  I'm
sure your parents are still alive at your age, but my sister was
developmentally disabled and still received a small monthly check on my
dad's SS & upon his death, she received 80% of his SS each month and
that also qualified her for Medicare which that alone would be worth
you checking with the SSA about you possibly qualifying.  If I recall,
the cut-off age is 22 years old. If you became disabled prior to that
age, you may qualify.

Maggie
Maggie - 21 Nov 2006 23:17 GMT
In case you didn't see this post.  It might be worth checking into.

> Nicole,
>
[quoted text clipped - 9 lines]
>
> Maggie
Pleiades - 20 Nov 2006 21:04 GMT
Hi Nicole,

I also did not have enough credits to draw SSD; I only get SSI.  But I am
grateful that I have it.  I was in my thirties, after a marital break up,
trying so hard to work, and prove that I could be independent.  I had
periods where I could work, but then I would have to take temporary
disability leave, and just crash for three months before going back to my
job.  I did this four times, and each time the payments became less and
less.  I was struggling so hard to keep my last job, and all my coworkers
saw what I was going through, and they encouraged me to go on disability.

Something I don't often share is that the lack of funds made me freak out,
and I attempted suicide.  I woke up in a hospital and they would not let me
go.!  What I found when I was there, though, was that about half the people
there were just like me... they were under freaking duress trying to get
disability or workers compensation.

I got my determination of disability on the first appeal.  I did not have to
hire a lawyer as many people do.  I found out who the person was in
Sacramento who was reviewing my case.  I would suggest that you do this as
well.  Someone had put my case on a shelf, and it would have stayed there
for god knows how long.  It's the squeaky wheel strategy.  Also let them
know every diagnosis that you have, because it is really hard to get a
disability determination for lupus alone.

I wish you the best!

Pleiad..

> Ok all
> How hard is it to get disability?  What do I need to do?
[quoted text clipped - 6 lines]
> Thx
> Nicole

> Ok all
> How hard is it to get disability?  What do I need to do?
[quoted text clipped - 6 lines]
> Thx
> Nicole
Michael Roeper - 21 Nov 2006 14:03 GMT
Nicole,

I found that getting disability on a Lupus diagnosis alone wasn't hard.
Their attitude towards Luopus had changed some over the years. You see,
I had made the mistake of putting on my first initial application that
I had arthritis, a bad back (surgeries) a substance abuse history and
some other things instead of applying for benefits on just one primary
illnes, the Luopus. The attorney I eventualy hired told me that if you
emphasise anything like alcoholism, drug dependency or depression your
getting benifits become next to impossible. They used to give benefits
to drunks and druggies until the public raised such a fuss that they
hsad to quit doing it under pressure from others.

Once my Doc's were willing to say that I definately had Lupus (and
downplaying the other things that were still legitimate problems
but....) , getting the determinbation I wanted took 5 minutes in a
hearing room. I just didn't have the support of my Docs in the
begining. By then I had changed to a new set of Doc's in a totally
different medical system and was a lot sicker than with the first
applicxation.

Maybe there are some diferences between our cases of which I am
unaware. Actually, test results showing that I DEFINATELY had Lupus
didn't really come up until 6 weeks ago. The doc's basically wanted  me
on SS disability and said (in their chart notes!!!!) that I should be
treated as though I had Lupus. I actually have a combination of 3
different unusual auto immune disorders that threw the State Voc Rrehab
guys (who process these applications under contract with the SS Admin)
into a complete tizzy on the first app and the second appeal. There
actually are guidelines (I forget what they're called but you can get
them on the internet) that speciaifally tell the determining officer at
Voc Rehab what they can do with certain types of illness. Until then it
was really a matter of perception but I understand that a definate
Lupus diagnosis will get you what you want. See if you can find those
guidelines on the internet.

And, regardless of the number of quarters worked isn't SSI pretty much
a guarantee if you qualify regardless of your work history as it's an
"entitlement program). You don't have to have the work quarters you
need with SSD. I don't know if you can get the Medicare with SSD
though. The past 3 years the Medicare has been worth more to me than
the monthly benefit checks.

So here's a lot of info that may or may not be of help. if anyone wants
to e-mail me at mikeroeper@msn.com I will answer any questions I can
based ON MY EXPERIENCE'S ONLY. That's all I know. I can try and find
those guidelines of medical diagnosis's if you can't find them.

Wouldn't this be a great topic for a good "How To" book?

Hope this helpe!

Michael

> Hi Nicole,
>
[quoted text clipped - 54 lines]
> > 3 of every 10 Americans Know Someone With Lupus
> > Help find the cure.  www.lupus.org
Maggie - 21 Nov 2006 15:31 GMT
> And, regardless of the number of quarters worked isn't SSI pretty much
> a guarantee if you qualify regardless of your work history as it's an
> "entitlement program). You don't have to have the work quarters you
> need with SSD. I don't know if you can get the Medicare with SSD
> though. The past 3 years the Medicare has been worth more to me than
> the monthly benefit checks.

SSI is "Supplemental Security Income" and if her husband makes more
than the income they would provide her, she wouldn't qualify.  eg: If
the standard SSI payment in CA is 700.00 a month and her hubby makes
699.00 they MIGHT pay her a dollar a month.

And no, Medicare isn't a benefit of SSI, unfortunately.
Sherry - 21 Nov 2006 18:31 GMT
And we wonder why so many people who are ill opt for a divorce and then live
with their ex spouse!  What a shame that programs can and do force people to
the limits on what they are willing to do just to have the money to pay for
medical bills and a loaf of bread.  What a way to have to live!!!!!!!!

Hugs,
Sherry

>> And, regardless of the number of quarters worked isn't SSI pretty much
>> a guarantee if you qualify regardless of your work history as it's an
[quoted text clipped - 9 lines]
>
> And no, Medicare isn't a benefit of SSI, unfortunately.
Maggie - 21 Nov 2006 21:13 GMT
> And we wonder why so many people who are ill opt for a divorce and then live
> with their ex spouse!  What a shame that programs can and do force people to
> the limits on what they are willing to do just to have the money to pay for
> medical bills and a loaf of bread.  What a way to have to live!!!!!!!!

AaaaaaaaaaMEN!

What's sad also is when someone who's single & on SSI would likely not
marry unless their soon-to-be spouse was filthy rich.  It's not so much
the few hundred bucks a month, but they would lose their medical and no
one would want to insure them.  Here I am getting married and only
because I was young enough and happened to have enough work credits, I
will get to keep my SSDI & Medicare.  I don't know what I would do
without it and although I may not personally approve of "living
together," I understand why they don't feel like they have much choice.
:(

Maggie
Nicole - 21 Nov 2006 21:43 GMT
Fortunately, I have health insurance and my coverage is guaranteed even tho
I have a pre-existing condition as long as I don't allow the coverage to
lapse.

So because I'm married and my husband has a good paying job, I'm SOL?  Even
tho he's paid into the system, along w/my parents, friends, etc who all
encourage me to get disability... saying they rather know their money was
going to someone truly sick.  My friend who works in disabled student
services sees students all the time who have disability (they get a monthly
stipend and school is free plus all the accomodations that are legally
mandated) but there's nothing really wrong w/them... one guy in particular
plays football for the univerisity.  Who knows.
I'm so fed up w/it all.
Nicole

Signature

3 of every 10 Americans Know Someone With Lupus
Help find the cure.  www.lupus.org

>> And we wonder why so many people who are ill opt for a divorce and then
>> live
[quoted text clipped - 17 lines]
>
> Maggie
Shelagh - 21 Nov 2006 18:39 GMT
<snip>
"Nicole" <me@hotmail.com> wrote in message
Ok all
How hard is it to get disability?  What do I need to do?
I'm 30 yrs old... was diagnosed at 20... stayed at home w/my kids, went to
work part time and quit was I was getting sicker and now am at home again.
Hubby is griping about money because I'm not even trying to get
disability.
I'm in CA btw.
</snip>

Hi Nicole: this site may be of help to you:
http://www.ssa.gov/applyfordisability/adult.htm

good luck!
~Shelagh
http://clik.to/lupus
Nicole - 21 Nov 2006 21:46 GMT
Thanks for your reply.  I definitely have SLE along w/other problems.  I
take an extended release of morphine daily just to walk and even then, need
break thru meds most days (the fog is here so that means wet, chill to the
bone).

I guess since I'm not the sole provider and my husband is healthy, my
situation is looked at differently?  However, if we were to ever split up (I
doubt that would happen- death would most likely come first) I'd be screwed.

Thx again
Nicole

Signature

3 of every 10 Americans Know Someone With Lupus
Help find the cure.  www.lupus.org

Sherry - 21 Nov 2006 18:37 GMT
I know that sharing your circumstances was not an easy decision for you to
make.  I am so sorry that you were forced to the limit and felt there was no
other way for you!  Thank the Lord that your attempt was not successful!

Hugs,
Sherry

> Hi Nicole,
>
[quoted text clipped - 48 lines]
>> Thx
>> Nicole
Pleiades - 22 Nov 2006 17:38 GMT
Thanks, Sherry.

It is nice to know that somebody cares.

Ple

>I know that sharing your circumstances was not an easy decision for you to
>make.  I am so sorry that you were forced to the limit and felt there was
[quoted text clipped - 55 lines]
>>> Thx
>>> Nicole
Sherry - 22 Nov 2006 18:47 GMT
You are welcome and we all care!!!!!

Hugs,
Sherry

> Thanks, Sherry.
>
[quoted text clipped - 63 lines]
>>>> Thx
>>>> Nicole
 
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