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limugood@gmail.com - 12 Nov 2006 18:07 GMT

I have a friend that was diagnosised with lupus, and was told how hard
it is to deal with, There is a group in the DFW metro plex that meet
and talk about things from doctors and fund raising for research and
public assistance, I am curious to know if anyone would be willing to
help me with and idea of setting up a fund raising project where we
could have a walk-a-thon like they do for cancer, and diabeties, If
anyone is interested please let me know how we could get this done.

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Shelagh - 12 Nov 2006 18:21 GMT

I am a member of our local 'support group' -- like the metro plex group you mentioned -- and we are the people who get ourselves organized to do the walkathon and get our sponsors and just do the best we can 'block by block' and then afterwards send the moneys onto our local University here for their lupus research and/or the provincial head association, the BC Lupus Association.... which is much appreciation by them... so I would suggest that you approach the group that meets to discuss and listen to professionals on the disease topics and tell them your plans, which are IMO a great idea!

This type of event raises awareness of the illness in the area you live in and usually a local newspaper picks it up with photos and an article and so others can read about not only the walkathon but the support group as well and if there are any other newly diagnosed patients out there in our community at that time, we usually hear from them and get new members at our monthly luncheon meetings due to that as well.
Good luck !
hugs,
Shelagh
http://clik.to/lupus

<limugood@gmail.com> wrote in message:

>I have a friend that was diagnosised with lupus, and was told how hard
> it is to deal with, There is a group in the DFW metro plex that meet
[quoted text clipped - 3 lines]
> could have a walk-a-thon like they do for cancer, and diabeties, If
> anyone is interested please let me know how we could get this done.

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Vance - 19 Nov 2006 21:09 GMT

I am new and I am in the DFW metroplex also. I have Lupus and Scleroderma
and it has affected every system of my body. I have to take a couple of
dozen different prescriptions per day. Every system. I'm having a real
hard time of it now.

The only time I get out of the house is to go to the doctors office or
hospital. Anyway just wanted to give a quick intro.

Vance
DFW,TX

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AIM: Cigar.PipeSmoker@GETUSA.ORG
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Ruth Tay - 20 Nov 2006 04:02 GMT

In article <8K38h.598$Gk5.459@tornado.texas.rr.com>,

Hi Vance,

Welcome to the group. I also have lupus and have had it for about 25
years. The Scleroderma did not strike until last year. Still work part
time but luckily am self employed. It works out well because not
being able to stand any sunshine there is lots of interesting work
to do inside. Most people in the group also take lots of medication.
The group is usually quiet on the weekend so you will get greeted
by the real pros on Monday....... Hope you get out of your
flare soon...................ruth

> I am new and I am in the DFW metroplex also. I have Lupus and Scleroderma
> and it has affected every system of my body. I have to take a couple of
[quoted text clipped - 6 lines]
> Vance
> DFW,TX

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Vance - 20 Nov 2006 04:25 GMT

Thanks for the welcome. Seems like i'm in a flare of some sort with some
system in my body, if it's not one it's the other. I have extensive GI
problems that I still battle with, my doctor said that is where the "crest"
Scleroderma has it me. But the Lupus is always there too.

I'm sure there are others out there who have the same problems that I do, is
when something is wrong and you go to a doctor they say they don't know
what diseasse is causing what problems and you already on so many
medications they hate to add more and don't know what to do about medication
causing problems because they would know which one.

If I mis-type I am sorry I have very bad Neuropathy and my fingers and hands
shake so I don't always it the right key and I don't always see the mistake
to fix it and sometimes I can't remember how to spell simple words, so you
will see that also.

At my last check up my triglersides were off the chart, they were so high
it wouldn't compute something with my colesterol. So I'm taking a new
medication for that. Sorry for the missspelling.
My blood sugar was higher than what he wanted also. So my inslun sliding
scale was moved up just a bit. He always sets a 30 min. block of time with
me, but my last visit we were in the exam room for 70 mins. Well over the
30. He waiting room was packed. but I have a great pcp doctor who takes
care of my medications (most of them) and my minor problems. Otherwise I
just make an appt. to see one of my many specialist.

Anyway, thanks for the nice welcome to the group.

Vance

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AIM: Cigar.PipeSmoker@GETUSA.ORG
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| In article <8K38h.598$Gk5.459@tornado.texas.rr.com>,
|
[quoted text clipped - 19 lines]
| > Vance
| > DFW,TX

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Sherry - 20 Nov 2006 04:56 GMT

Hi Vance,

Welcome to the group. As Ruth told you it is always pretty quiet on
weekends. I'm sorry that you are having a hard time now....but this is a
great place to be when you need someone to listen as we all understand, and
if you have questions someone will either know the answer or someone will
try to find it.

Once again welcome to the group.

Sherry
central CA

>I am new and I am in the DFW metroplex also. I have Lupus and Scleroderma
> and it has affected every system of my body. I have to take a couple of
[quoted text clipped - 6 lines]
> Vance
> DFW,TX

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Andy - 20 Nov 2006 09:19 GMT

>I am new and I am in the DFW metroplex also. I have Lupus and Scleroderma
>and it has affected every system of my body. I have to take a couple of
[quoted text clipped - 3 lines]
>The only time I get out of the house is to go to the doctors office or
>hospital. Anyway just wanted to give a quick intro.

Welcome :)

Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

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