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Medical Forum / Diseases and Disorders / Lupus / November 2006Pretty quiet
Is it my computer or is no one here? Hugs, Sherry > Is it my computer or is no one here? > > Hugs, > Sherry Here, but lurking, have had builders in for the last two and a half weeks, they have driven me mad!! Also the Dr changed my insulin and messed everything up!! Hugs to all Janet  Signature-- Snake Lady Sherry, I was thinking the same thing....Not any new post... Hope everyone is enjoying life... Cindy > Is it my computer or is no one here? > > Hugs, > Sherry I am here but WOW busy for awhile. Granddaughter has been sick with numerous testing done. Had attacks of severe tummy pain, double over kind. Saw a GI specialist and all kinds of upper GI tests but he refuses to do a colonoscopy. Daughter tried to talk to him but his staff said "Oh you don't want to talk to him today he is in a bad MOOD" What is that people? Daughter called him for 4 days and missed him all 4 and now he is in a BAD mood? So she went to her GP and he gave 15 yr old GD a medication to put under her tongue if she has an attack. It is almost like gall bladder attacks but since she is 15 no one takes her seriously due to the fact it is rare teenagers have GB? OK, but they did a tests for it and it was neg, I told daughter it can be neg but there might of been stones that already passed or gravel that did. So she is fed up with the specialist. and when GD gets another attack then to the ER. on and on Brother is doing better since fracturing his pelvis, on bedrest and will see the doc next week to even consider removing his rods and screws in there. Getting things lined up for heading out as a snow bird :) and looking forward to it. doing pretty darn good with my foot SHHHH. and all seems healing well. started water exercises and a little stiff but hey for an old woman, I am doing "VERY well right now in health.' Crap maybe I should not of said that. jinx? NO NO-NO NO NO-NO I will keep in touch, if you guys do? hugs janers > Is it my computer or is no one here? > > Hugs, > Sherry I am here but busy too. Kidneys have been stable for a year now, but this week they were the best ever---145 mg protein down from 4,400 three years ago. I am on Cellcept, but only 250 mg at this point. Off prednisone, but of course, still on plaquenil. My rheumy wants me to stay on Cellcept at low dose indefinitely. Sed rate was down to 6 and I have only gotten sick once in 3 years. He gave me the choice to stay on or go off. I decided to stay another 90 days and reevaluate. Has anyone else had long term experience with Cellcept? My CBC and CMP are excellent as is the sed rate. This sounds like good news on all accounts...And I am sure you are afraid to rock the boat... Hope that you and your doctor continue to do what ever it is that your doing to keep you better.. Cindy > > Is it my computer or is no one here? > > [quoted text clipped - 10 lines] > else had long term experience with Cellcept? My CBC and CMP are > excellent as is the sed rate. >Is it my computer or is no one here? It's your computer. I am a product of your fevered imagination. SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! I'm here, still stoned. I see the neurologist next week. I do hope he does something for me, something that will turn this d*mn pain off. Bev > Is it my computer or is no one here? > > Hugs, > Sherry I hope he finds something to turn the "d*mned" pain off too! Pain is just too much to live with constantly. Keep us posted! Hugs, Sherry > I'm here, still stoned. I see the neurologist next week. I do hope he does > something for me, something that will turn this d*mn pain off. [quoted text clipped - 4 lines] >> Hugs, >> Sherry > I'm here, still stoned. I see the neurologist next week. I do hope he does > something for me, something that will turn this d*mn pain off. [quoted text clipped - 4 lines] > > Hugs, > > Sherry Are you still having pain in your face/jaw, Bev? Or is this pain elsewhere? Same place all the time. It's trigeminal neuralgia which effect the nerves in the face. It's neurological not joint pain. It's bad. They treat it as if it was a seizure and if you watched me when the pain hits you would understand why they treat it like a seizure. I've had it hit for maybe 45 seconds- let up for 6 seconds, and then hit again for maybe as much as 4 minutes, get a 10 second break and it hits again. Then imagine keeping that up for hours. You go insane. it's like being shocked over and over again. http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/trigeminal_neuralgia.htm or just Yahoo it. Bev > > I'm here, still stoned. I see the neurologist next week. I do hope he does > > something for me, something that will turn this d*mn pain off. [quoted text clipped - 7 lines] > Are you still having pain in your face/jaw, Bev? Or is this pain > elsewhere? > Same place all the time. It's trigeminal neuralgia which effect the nerves > in the face. It's neurological not joint pain. It's bad. They treat it as if [quoted text clipped - 4 lines] > again. Then imagine keeping that up for hours. You go insane. it's like > being shocked over and over again. Bless your heart. I do remember now, Bev. I remember one doctor got it to stop for awhile by doing something. I'm so sorry you have to deal with this. I will keep you in my prayers with hopes they can do something for you soon. Hugs, Maggie > Bless your heart. I do remember now, Bev. I remember one doctor got > it to stop for awhile by doing something. I'm so sorry you have to [quoted text clipped - 3 lines] > Hugs, > Maggie What Maggie said! In the meantime stay stoned! Hugs, Sherry |
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