I too found it hard to believe Nicole !  but read from this link
http://tinyurl.com/y72dz7  
**A 51-year-old woman had sudden profound sensorineural hearing loss (SNHL) in her right ear, followed by profound SNHL in her left ear three weeks later. On subsequent work-up, a diagnosis of systemic lupus erythematosus (SLE) was made on the basis of an antinuclear antibody titer of 1:500 and immunofluorescence below the dermis on skin and muscle biopsy specimens. Treatment with prednisone and cyclophosphamide did not improve the hearing loss. To our knowledge, this is the second reported case of SLE occurring with SNHL and the first reported case of bilateral hearing loss.**

ALSO:
from:  http://tinyurl.com/vla3f
**Ear involvement is not unusual in autoimmune diseases, but few data on this problem in the Sjogren syndrome are available.
The presence of vasculitis, the Raynaud phenomenon, nervous system involvement, and serum anticardiolipin antibodies was recorded. RESULTS: 14 patients with the Sjogren syndrome (46% [95% CI, 28% to 66%]) had sensorineural hearing loss. Only one control (2.5% [CI, 0.06% to 13%]) had a similar hearing impairment (P < 0.001). Nine of the 14 patients who had the Sjogren syndrome and sensorineural hearing loss (64% [CI, 36% to 87%]) had anticardiolipin antibodies compared with only 3 controls (18% [CI, 4% to 45%]) (P = 0.02). CONCLUSION: The high prevalence of hearing loss in the Sjogren syndrome supports the value of doing audiometric studies before excluding cranial nerve involvement in this disease. The correlation of sensorineural hearing loss with anticardiolipin antibodies must be investigated further.**

hugs,
Shelagh
http://clik.to/lupus

Heh, yeah, bizarre.  Through various tests, they have determined nerve
damage somewhere. Internal, of course, and impossible to treat. Even more
odd, it might improve slightly on it's own, and they don't know why. But
apparently it happens.

Lupus doc next week to see what he says.