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Medical Forum / Diseases and Disorders / Lupus / November 2006

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can't have lasik?

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Candi Bowen - 31 Oct 2006 20:50 GMT
Hi everyone, I've had eye surgeons tell me for years that because of lupus &
anti-phospholipid syndrome, they're very hesitant to do lasik because of
possible scarring (my eyes are really bad). I recently learned of a new
procedure, ortho-K, sometimes called CRT.Unlike Lasik, it's NOT permanent &
it's non-surgical. They're rigid gas permeable lenses that you only wear at
nite for 2 weeks; the inside of the lenses' contour reshape (flatten) your
corner while you sleep. After 2 weeks, you wear them once a week at nite
while you sleep to retain that shape. Kinda like braces. You remove the
lenses when you wake up & go the whole day without any other vision
correction - like glasses or contacts - you can SEE! It doesn't work very
well if your vision is over -4.00 & I'm right at that borderline. I just got
my 1st set today & I'll sleep in them tonite (they're not really comfy like
soft contacts but you get used to them) then tomorrow morning I have to go
get checked again to see if everything's OK. If you stop sleeping in the
'retainers' once a week, your vision returns to what it was. I am SOOO
excited! To be able to wake up without groping for glasses or contacts is a
miracle to me. So I'll be your guinea pig, kay? My family is going to be
watching with baited breath too. Has anyone heard of this procedure or had
it done? It's $1,000 (& you have to pay upfront because most of the eye
place's cost is for the lenses) for the 1st year & includes all exams & lens
replacements as your cornea flattens, & some insurances cover part of the
cost. Unfortunately, I don't have insurance, but I do have a very generous
husband. They said after the 1st night, you will be able to see nearly
20/20, which will gradually diminish during the 1st to the 3rd day & you'll
have to yank out the glasses for a few hours. It takes 2 weeks of sleeping
in them to have the correction last the entire day. I read that the ancient
Chinese used to sleep with sand bags on their eyes, which is basically the
same principle of flattening the corner. I'll keep you posted, if anyone's
interested. I'm so excited!
Candi
Shelagh - 31 Oct 2006 22:21 GMT
http://www.allaboutvision.com/contacts/orthok.htm
this site tells all about it......... very cool... I'd like for you to update us for sure!
thanks and good luck~!
hugs,
Shelagh
http://clik.to/lupus

> Hi everyone, I've had eye surgeons tell me for years that because of lupus &
> anti-phospholipid syndrome, they're very hesitant to do lasik because of
[quoted text clipped - 26 lines]
> interested. I'm so excited!
> Candi
Sherry - 31 Oct 2006 22:47 GMT
Candi, that sounds great!  Do keep us posted on how you are doing with it.

Sherry

> Hi everyone, I've had eye surgeons tell me for years that because of lupus
> & anti-phospholipid syndrome, they're very hesitant to do lasik because of
[quoted text clipped - 26 lines]
> posted, if anyone's interested. I'm so excited!
> Candi
Candi Bowen - 01 Nov 2006 01:17 GMT
Kay, I'm getting ready to go ni-nite now but I'll read for a while 1st or I
won't be able to go to sleep. Doc said I can use reading glasses while doing
that - it won't hurt the process. Ortho-K is only for myopia - doesn't help
near vision problems. Hey, that's fine with me, Lasik is like that to. If
all I have to do is wear reading glasses, that'll be pure bliss. It's just
that these contacts aren't the most comfortable things in the world. They
feel like those 1st hard lenses from the 70's - feels like a gigantic
eyelash or a shard of glass in your eye. NOT like a soft contact. But I'll
get used to them & I'll only have to sleep in them once a week. By then I
probably won't even know they're there. It's way worth it to be able to wake
up and see, finally, & the discomfort is temporary. Doc appt 1st thing in
the morning before I take them out so I'm sure I'll be speeding there just
to be able to GET THEM OUT! THEN, I'm hoping I'll have perfect vision, if
only for a few hours. Every day will be better - Awesome!
Candi
> Hi everyone, I've had eye surgeons tell me for years that because of lupus
> & anti-phospholipid syndrome, they're very hesitant to do lasik because of
[quoted text clipped - 26 lines]
> posted, if anyone's interested. I'm so excited!
> Candi
janers - 01 Nov 2006 01:48 GMT
Keep us informed Candi.
GOOD luck with that ok?

janers
Candi Bowen - 03 Nov 2006 14:20 GMT
After 3 nights I went from -4.50 to -2.00! I was wrong about my original
presc. They're NOT comfortable at 1st but this is unbelievably cool. I have
'naked' eyes right now & can see my computer, my feet, the clocks & the TV!
Since this is only day 3, it'll last a few hours but after 2-3 weeks it'll
last all day. Yay!
Candi
Sherry - 03 Nov 2006 16:49 GMT
Candi,   That is such wonderful news!  I can feel your excitement.

Hugs,
Sherry

> After 3 nights I went from -4.50 to -2.00! I was wrong about my original
> presc. They're NOT comfortable at 1st but this is unbelievably cool. I
> have 'naked' eyes right now & can see my computer, my feet, the clocks &
> the TV! Since this is only day 3, it'll last a few hours but after 2-3
> weeks it'll last all day. Yay!
> Candi
Cindy M - 04 Nov 2006 15:56 GMT
Candi, this is wonderful...I think that my eyes are way too bad for
this...My prescription is like -5 and -5.5. So I am barely a candidate for
lasik..
Cindy
> After 3 nights I went from -4.50 to -2.00! I was wrong about my original
> presc. They're NOT comfortable at 1st but this is unbelievably cool. I have
> 'naked' eyes right now & can see my computer, my feet, the clocks & the TV!
> Since this is only day 3, it'll last a few hours but after 2-3 weeks it'll
> last all day. Yay!
> Candi
Candi Bowen - 04 Nov 2006 18:26 GMT
Cindy, Yeah, you're at the tail-end for it, but it would still be worth it
to talk to someone. I drove yesterday for the 1st time EVER with naked eyes!
I actually cried. After only 3 nights of wearing the lenses. My niece is -10
& -8 so she's definitely not a candidate; can't even get Lasik because her
cornea is too thin so she's researching the 3 different implants available.
But I think I read that the Ortho-K aka CRT is good for -6.00 & below. Check
it out; it's great! I'm doing the mono-vision where one eye is corrected for
far vision & the other is under-corrected for reading so I won't have to
wear reading glasses. That's if you're old enough to need reading glasses.
It worked for me with contacts, so this'll be perfect. My doc said I was his
1st mono-vision ortho-k patient so I asked him if I get a discount. NOT.

Candi

> Candi, this is wonderful...I think that my eyes are way too bad for
> this...My prescription is like -5 and -5.5. So I am barely a candidate for
[quoted text clipped - 9 lines]
>> last all day. Yay!
>> Candi
Cindy M - 05 Nov 2006 15:26 GMT
Thanks Candi,
I tried the mono contacts...Didn't like it at all...So...I carry around a
pair of cheap reading glasses for reading...:)
Seems funny that after years of not being able to see far away...now I can't
see close up...NOT FAIR...
I surely might look into it...
Thanks again
Cindy
> Cindy, Yeah, you're at the tail-end for it, but it would still be worth it
> to talk to someone. I drove yesterday for the 1st time EVER with naked eyes!
[quoted text clipped - 23 lines]
> >> last all day. Yay!
> >> Candi
Candi Bowen - 10 Nov 2006 19:52 GMT
Cindy,
I KNOW! I had reading glasses in every room, my purse & my car. It's hard to
explain to people that can see but if I had my contacts in, I couldn't read
without reading glasses. If I had my prescription glasses on for far sight,
I'd have to pull them down to read (I really needed tri-focals but I
absolutely refused). Regarding the monovision - you get used to it. Women
are much better at multi-tasking than men (sorry guys, but it's just a brain
thing) & after a week your brain learns which eye to use for far or near
vision. I don't even think about, I just SEE. No, it's not what I'd choose,
but I don't have to wear my -4.50 glasses OR reading glasses - way cool! Try
it again, give it some time; I'm serious, it is so neat to have naked eyes,
be able to drive AND read.
Candi

> Thanks Candi,
> I tried the mono contacts...Didn't like it at all...So...I carry around a
[quoted text clipped - 44 lines]
>> >> last all day. Yay!
>> >> Candi
 
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