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Medical Forum / Diseases and Disorders / Lupus / October 2006New to Group and need a local doctor
Hello All, I was just diagnosed today with Lupus after 12 years of suffering and being diagnosed with everything in the book but Lupus. Does anyone know a good doctor that specializes in Lupus in the Ohio area? > Hello All, > > I was just diagnosed today with Lupus after 12 years of suffering and being > diagnosed with everything in the book but Lupus. > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? You might try the Lupus Society for a suggestion. They do have lists of doctors. Here is the link: https://www.lupus.org/ Good luck ~ Susan aka Zuska Hi Connie, First, Welcome! I live in Ohio, and so far the struggle has been a long one. I have tried 3 different doctors in Cincinnati without success, so I did some research and found an article done by US News and World Report that rates the Cleveland Clinic as being 4th in the nation in Rheumatology. For me the Cleveland Clinic is a long drive, but it will be worth it to get quality care. You can look at their Rheumatology department online, and they have a LARGE staff, and each rheumatologist has different areas of expertise. There are several who specialize in Lupus. My appointment isn't until next month, so I can's speak from experience, but the Cleveland Clinic has a great reputation. For me, I think I could waste another 2-3 years here in Cincinnati getting a diagnosis and proper treatment...I believe at the Cleveland Clinic they will be more vigilant about helping me and will diagnose me sooner. I think I can relate to you. I have been going to doctor after doctor. I believe a lot of people with Autoimmune disease go through this. I have been told I just need to exercise more, that I'm probably just depressed, that I need to sleep more, that I have fibromyalgia, and on and on and on. The doctors here take a wait-and-see approach. Meanwhile, a year has gone by since we discovered I have the SS-A antibody and a positive RF....and what did my most current doctor do? She sent me to a sleep clinic...$2800 later (thank heavens for insurance) they declare that I have no sleep disorder. So the doctor gives me a muscle relaxer to sleep better....I told her I sleep fine in the first place. It's like they don't listen....actually, I can say, they DON'T Listen here...at least none of the ones I've gone to. So I am going to find a doctor who will work on my Autoimmune problems and not send me of on ridiculous "wild-goose-chases" like going to sleep clinics. If you want, you can e-mail me. In case you want to go to a doctor in Cincinnati (in case you don't want to drive to Cleveland...I'm not sure where in Ohio you are), at least I can tell you the ones I went to, so you know which ones to avoid. I don't want to post their names on here...I don't know what kind of repercussions that would have. Michelle > Hello All, > > I was just diagnosed today with Lupus after 12 years of suffering and being > diagnosed with everything in the book but Lupus. > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? Hello and I am also from ohio. Michelle mentioned the Cleveland clinic and I can't say enough about there facility. I was diagnosed at CC by a Dr Rendt, who now has moved to Florida but I found her LOL. Luck has it when I go to Fl for the winter I won't need her but know where she is ....:) Ok, about CC. It is a great place for treatment and they are very cordial to patients. when making an appointment they send you HOW to get there and help with places to stay. I kept going there for over 7 or 8 months and finally in my area we got a "decent " rheumy in my home area of NW Ohio. and she is smart, efficient and well versed in lupus as well as other diseases of the immune system. Toledo has a few good rheumy's as well. YOU have to let me know privately where you are from and I can give you a list of docs from ohio. I do volunteer for the lupus foundation of NW ohio. SO let me know. It is well worth the drive to CC but just remember when first going you will have to make a few trips to get settled with the doc. I was going every 2 weeks then 3 weeks then montly...so....... Just let me know where about and I can help you more. janers OHIO HOME Of the BUCKEYES. Is that loud enough? haha It makes me feel good to hear from someone who has gone to the Cleveland Clinic. I have heard broad statements and the rating by US News and World Report was helpful, but to hear first hand is more reassuring. If anyone knows a good rheumy in Cincinnati, then I would love to hear it since I probably cannot keep going to Cleveland clinic year after year. After the troubles I had with my docs, my General Practictioner recommended Dr. Mangey, but I have previouly gone to another doctor in the same the practice she works, and they do not allow people to transfer between doctors within the practice. I think that's a shoddy policy since different doctors mesh with different people, but what can I do? Anyway, thanks for your comments on CC...I'm looking forward to going. Michelle > Hello and I am also from ohio. > [quoted text clipped - 23 lines] > janers > OHIO HOME Of the BUCKEYES. Is that loud enough? haha http://tinyurl.com/ycb66s This link is from www.rheumatology.org. Good luck finding a doctor Nicole  Signature3 of every 10 Americans Know Someone With Lupus Help find the cure. www.lupus.org > Hello All, > [quoted text clipped - 3 lines] > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? Connie, Welcome to the group. I'm in California so can't help with a Doc in Ohio but wanted to acknowledge your post and welcome you. Sherry > Hello All, > [quoted text clipped - 3 lines] > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? HELLO MY NAME IS NIKKI I LIVE IN OHIO T WHAT PART ARE U FROM I KNOW THAT THERE ARE SOME GOOD DR'S IN WEST CHESTER > Hello All, > > I was just diagnosed today with Lupus after 12 years of suffering and being > diagnosed with everything in the book but Lupus. > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? Hey there What part of Ohio is West Chester? All us ohio natives need to meet, think so?? I live near Lima ohio. Where are you or anyone else near? janers West Chester is Southwest Ohio...just north of Cincinnati on I-75. It's pretty close to where I work and live...I live in a northern suburb of Cincinnati off I-71. Dayton could be a nice meeting spot if you live in Lima...that's about a 40-45 minute drive from my neighborhood. I don't get up that way very often, so if you have ideas or suggestions I'm open... > Hey there > [quoted text clipped - 4 lines] > > janers Hi Connie, I live in Akron & went to every rheumy here; I understand Michelle is having a problem at Cleveland Clinic also. I found help with Dr. Ali Askari at Cleveland University Hosp. Good luck! Candi > Hello All, > [quoted text clipped - 3 lines] > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? I haven't been to Cleveland Clinic yet...I was having problems with doctors in Cincinnati. I will have my first appointment in Cleveland at the end of November, and hopefully that will go well. If not, I will use your referral. :-) Thanks! Michelle > Hi Connie, I live in Akron & went to every rheumy here; I understand > Michelle is having a problem at Cleveland Clinic also. I found help with Dr. [quoted text clipped - 8 lines] > > > > Does anyone know a good doctor that specializes in Lupus in the Ohio area? |
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