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Medical Forum / Diseases and Disorders / Lupus / October 2006

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Lupus UK factsheet updates, round two

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Andy - 28 Sep 2006 19:53 GMT
Four more of the factsheets at
<http://www.northeastlupus.org.uk/factsheets> have been updated:

A guide for patients

Joints and muscles

Skin and hair

Light sensitivity
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

Zinn - 29 Sep 2006 00:40 GMT
Great info,  thanks!

Do I understand correctly that this is your site and your work? It has
answered many of my questions.

Zinn

> Four more of the factsheets at
> <http://www.northeastlupus.org.uk/factsheets> have been updated:
[quoted text clipped - 9 lines]
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
Andy - 29 Sep 2006 09:20 GMT
>Great info,  thanks!
>
>Do I understand correctly that this is your site and your work?

The site is owned by the North East Lupus Group (that's N E England in
the UK!) and I coded it. The contents however are mostly the official
publications of Lupus UK - ie they are written by Rheumatologists, not
an ageing physicist/philatelist, so are authoritative.

The "Katfaq" was written a few years ago by KCat, a formerly-active, now
lurking, member of a.s.l

>It has
>answered many of my questions.

That's great!
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

Mary Ann - 06 Oct 2006 05:31 GMT
Andy, thank you for the good information.  I have been going through
some things that are a little different for me.  I ended up copying most
of the material you made available.

I am still hovering around 86#----normal weight at 145#, and 5'8".   And
barely able to walk---or anything else!  It seems to have something to
do with the deterioration of nerves.  Darn!  I've been through so many
different lupus flairs that I keep thinking this one will end soon---but
it doesn't.                                                

I've had to move back to Illinois and I've learned they don't seem to
know any more about SLE or Discoid Lupus than they did 10 years ago!!
I'll just have to get healthier and straighten them all out!      

Thanks, Andy.
 
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