Well, I saw neurologist #3 last Wednesday, at which time he said that
he was going to look at the raw data from the EMG and then call on
Thursday afternoon or Friday to schedule whatever testing he deemed
appropriate. When I had not heard from him on Friday afternoon, I
called his office and left a message with the Physician's Assistant
requesting a return phone call.

Today (Monday) I called twice, leaving messages with his nurse and with
the nurse supervisor. About 4:30 PM my rheumatologist called to see how
I was doing and if I had heard anything. I told her that I had not ~
and she said that she would send him an email asking what was going on.
I went to take a nap.

When I woke up, there was a message on my cell phone from the
neurologist left at 6:30 PM. He said that indeed, he believes that I
need to have a second EMG and a muscle biopsy, and that his office will
call to schedule these within the next two weeks.

I *hope* that what he means is the tests will take place in the next
two weeks, not just be scheduled. I have tried *very* hard to hold it
together, but I am becoming unglued. (A a Social Worker, I definitly
know the signs and symptoms, so I know that this is becoming serious.)
I do have a therapist, and will continue to work with her ... but she
cannot change any of the events that are happening.

Anyway, I thought it was really nice for my rheumatologist to call ...

About prednisone or other medications for the Lupus: at this time
nothing. I think that the "plan" is to find out if this is caused by
the Plaquenil, and if not, then restart that medication. Also, since my
body is not co-operating with treatments at this time, I think that
none of the doctors want to start anything new, which might mask
symptoms. Although on an intellectual level, I agree with that ~ on a
personal level this is getting real old *real* fast!

Thanks for the responses ~ both on list and off list. I really
appreciate every one, and also those who were reading along, and have
me in your thoughts.

Susan aka Zuska