Lyndal, Glad that you are here to report to us....Must have been scarey as
Heck...
Sorry you are on such a high dose of Steroids..But the alternative...Well so
goes the EVIL drug...
And you will have all kinds of energy...
Praying that everything gets back into place...And you feel human again...
Hugs Cindy

Glad to hear a diagnosis on those symptoms as well as some treatment on board for you! you had me worried LPN!
That is 'bad' news I know, but at the same time you can be treated and it is manageable yes? and think of the energy you will have lol!
I am so glad you finally got into hospital and all, as it is what I was considering  re possible CNS/lupus problems as opposed to your TIAs
<I knew you had APS and not lupus but your symptoms sounded 'fishy' to me>
and, I know you are the doc and all BUT you weren't as worried as I thought you 'should be' over what all you were telling us was going on, and so I figured that maybe the symptoms were maybe just a bit different than your previous ones with your TIAs,  and so leading you to believe that they weren't as urgent??  mistakenly!!
Anyhow I WAS worried and am so relieved that you are now being treated
as my first instinct was to  'y/tell' you to get your butt into the ER ~ NOW!! but somehow I knew it wouldn't change your mind re your priorities... so kept my mouth shut.....stupidly!
I really pray that it all stays settled down for you so you can carry on!
The best of well wishes your way from me,
with hugs,
Shelagh
http://clik.to/lupus

[

Well, that's better than some of the other possibilities :)

I have.

Lyndal,

Sorry about the 10 days in the hospital but at least you have some answers
now and are on the meds you need to be taking for the latest episode.

Melting here in the central valley with temps running around 107-113 for 10
days straight and not "cooling" off much at night or any "breeze" to speak
of.  If I was a choclate bar I would be syrup for sure.

Take care and keep all of us posted on how you are doing.

Hugs,
Sherry

In article <44c5de93_1@news.iprimus.com.au>,

Sending good thoughts, prayers, wishes for a speedy recovery.  I  too
was worrying about you.         ruth

Thanks everyone.  Yes, I know, I was ignoring it.  Probably a combination of
different symptoms, and just pig-headed stubbornness,  Denial is a wonderful
thing..sometimes.

My rheumatologist has been great.  He said that with completdely normal
kidneys and a negative dsDNA it isn't strictly lupus..but hell, he also says
thats really an academic argument and we're not going to wait to "tick all
the boxes" and watch me go into a coma in the meantime.  If it waddles and
quacks we treat it like a duck...and worry about the breed of duck later!
(love that one!) So is it lupus?...still strictly not.  Is it some
seronegative lupus like aggressive autoummune thingo---well, yeah that;ll do
for now.  I'm pleased to have a doc thats more interested in getting me
better than whether everything fits perfectly in the holes.

First morning home- happy to be here.  I have to fight the
prednisone....having been away a week my boys are great but the place needs
a CLEAN.  I want to do it all! But if I do it all I'll be stuffed..so I have
to pace myself.  I have an appointment to get my nails done at lunchtime
(good way to break up the day!) and will just try and do some washiing and
groceries.  I'm going to work tomorrow, but not today or Friday.

I'm on daily INRs for the next few weeks.. bought a coaguchek XS machine
yesterday on the way home ($1,000) , so that makes life less painful than
sitting in the lab every day.  Just grateful to have got out of this one
(relatively) unscathed! I am a bit stumbly with my left foot- not sure how
long that will take to clear (if ever) will just have to wait and see

Thanks again guys

Lyndall,
Love andd Best Wishes from Diane XX