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Medical Forum / Diseases and Disorders / Lupus / July 2006Anyone used Rutuxin?
Has anyone received Rutuxin foe arthritis symptoms? My joint pain had become very difficult to manage and after the FDA approved the use of Rutuxin my Rhuemie started this therapy on me. The joint pain has diminished dramatically but I am concerned about side effects. About two weeks after the first infusion, I began to experience frequent episodes of dizziness, light-headedness, I feel like I am going to pass out after I stagger. I have been able to just hold on to something until it passes but I am concerned. Any input is appreciated. I am looking forward learning more from you all. FInding this group on Lupus is new for me. I have been diagnosed for over ten (10) years now and have managed to keep working with the help and cre of my Rhuemie. We have been unsuccessful in ever getting off the predisone. Every time we below 6 mg I experience a full flare - yuck! >Has anyone received Rutuxin foe arthritis symptoms? My joint pain had >become very difficult to manage and after the FDA approved the use of [quoted text clipped - 6 lines] >something until it passes but I am concerned. Any input is >appreciated. Sounds like falling blood pressure. I am not a doctor, however, and I suggest you consult yours soon - don't wait until your next routine appointment.  SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Hi and welcome to the group. It's been quiet out here for the last couple of weeks but there are some wonderful knowledgeable people who I'm sure will jump in and help. I know there are several folks who live on higher doses of predisone than they want. BTW, weekends are always quiet out here so hang tight and you'll see some responses. I'm one of the few who can just eat aspirin like candy when things get to really aching. My doc does not want to put me on anything very strong if I can get by with just aspirin. I've had some lengthy discussions with my doc on the subject and I come away a little frustrated but willing to keep the status quo for as long as possible. I guess that makes me one of the lucky ones when it comes to lupus on a daily basis. Bev > Has anyone received Rutuxin foe arthritis symptoms? My joint pain had > become very difficult to manage and after the FDA approved the use of [quoted text clipped - 13 lines] > unsuccessful in ever getting off the predisone. Every time we below 6 > mg I experience a full flare - yuck! Hello and Welcome, I was infused with Rutuxin about 2 yrs ago to help with my Platlets. They used to drop to 1,000 or less which isn't good because then I couldn't breath and would end up in the hospital. I was infused 3 times and my platlet problem has not been a problem since then. Thank god. While being infused in the hospital they would give me a shot of Benadryl so that I wouldn't feel dizzy.Are you being infused in the office? You should ask about Benadryl, A shot works faster and then you close your eyes and try to sleep. Hope this helps Feel better Maureen > Has anyone received Rutuxin foe arthritis symptoms? My joint pain had > become very difficult to manage and after the FDA approved the use of [quoted text clipped - 13 lines] > unsuccessful in ever getting off the predisone. Every time we below 6 > mg I experience a full flare - yuck! Quotes from : http://www.rxlist.com/drugs/drug-5206-Rituxan+IV.aspx?drugid=5206&drugname=Rituxan+IV "Headache, nausea, facial flushing, or dizziness may occur. If any of these effects persist or worsen, contact your doctor or pharmacist promptly." "A serious allergic reaction to this drug is unlikely, but seek immediate medical attention if it occurs. Symptoms of a serious allergic reaction include: rash, itching, swelling, severe dizziness, trouble breathing." "If you notice other effects not listed above, contact your doctor or pharmacist." I have no experience with this drug but would adhere to the above advice if I were experiencing your side effects!" Good luck to you and sending hugs for you too! from Shelagh @ http://clik.to/lupus Has anyone received Rutuxin foe arthritis symptoms? My joint pain had > become very difficult to manage and after the FDA approved the use of > Rutuxin my Rhuemie started this therapy on me. The joint pain has [quoted text clipped - 12 lines] > unsuccessful in ever getting off the predisone. Every time we below 6 > mg I experience a full flare - yuck! > Quotes from : http://www.rxlist.com/drugs/drug-5206-Rituxan+IV.aspx?drugid=5206&drugname=Rituxan+IV > [quoted text clipped - 5 lines] > > I have no experience with this drug but would adhere to the above advice if I were experiencing your side effects!" It also says "This medication can lower the body's ability to fight an infection. Notify your doctor promptly if you develop any signs of an infection such as fever, chills, or persistent sore throat." and "Tell your doctor immediately if any of these serious side effects occur: fatigue, decrease in amount of urine, weakness, fever, chills, pain at the tumor site, joint or muscle pain, stomach pain, sore throat." That's what happened to a lady on the fibro newsgroup. She was getting more and more fatigued on it. She ended up with pneumonia (twice, if I recall) in hospital, after (I think ) 7 or 8 infusions. She was treating RA and lymphoma. She sounds so much better now that she's off of it. PS: nobody go to that newsgroup. It's currently in the worst mess (for other reasons), I've ever seen . J Thanks for the reply. I have had two infusions in the hospital with all of the prep-meds (Benadryl and Corticosteroids IV). Don't expect to have another until the six month point unless we experience a diminished response. Do you think my current dizziness could be a side effect of the therapy? > Hello and Welcome, I was infused with Rutuxin about 2 yrs ago to help > with my Platlets. They used to drop to 1,000 or less which isn't good [quoted text clipped - 23 lines] > > unsuccessful in ever getting off the predisone. Every time we below 6 > > mg I experience a full flare - yuck! > Has anyone received Rutuxin foe arthritis symptoms? My joint pain had > become very difficult to manage and after the FDA approved the use of [quoted text clipped - 4 lines] > frequent episodes of dizziness, light-headedness, I feel like I am > going to pass out after I stagger. Is it hot where you are? I was having those problems on no pain meds. > I have been able to just hold on to > something until it passes but I am concerned. Any input is [quoted text clipped - 6 lines] > unsuccessful in ever getting off the predisone. Every time we below 6 > mg I experience a full flare - yuck! I don't have Lupus but lots of joint pain. After working (physically) yesterday, I could barely walk nor sit, nor stand for the pain. Joint and muscle pain. I took a Sulindac 200 mg and within an hour, I was almost totally painfree. (some spots did not respond) and I could walk and feel normal again. It's supposed to be for osteoarthritis, but it also helps with me inflammatory joint pains (elbows and shoulders and knees and hips). and some of the muscle pain. http://www.rxlist.com/cgi/generic3/sulindac_ids.htm I do have a history of gastric ulcer, but I take it "with food". Meaning I take some bites, then take the pill, then finish the meal. I also take a gastro med. I can even sit at the computer now (without pain). Beofre I couldn't. Ask your doctor if it's worth a try...It's mentioned here http://www.lupus.org/education/brochures/nsaid.html I'll update if any nasty SE's occur. J Hello and Welcome. I to have lupus and just found out last week that I am going to get the Rituximab or Rituxan treatment. I was DX'd in Feb of 93 with SLE, I was on Cytoxin and Pred, then went to Cellcept. Seems nothing is working for me since I am in the middle of a flare and am still on 2 grams a day of Cellcept. I was told this morning that as soon as my Health insurance agrees to pay for the Rituxan treatment that I will start. I was curious to hear what the treatment was like. I am a little nervous, but if it helps me get better and saves my Kidneys, well then I guess I will try just about anything. I hope you feel better soon and hang in there. |
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