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Medical Forum / Diseases and Disorders / Lupus / July 2006Hello anybody around?
Darn, this group got quiet! Either everyone is having a great summer (winter for those down under) or you are all too sick to get on the computer! I do hope it is because everyone is doing pretty good and enjoying life. Bev I'm present. Sherry > Darn, this group got quiet! Either everyone is having a great summer > (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev Present too. Although YOU knew that now didn't ya Bev? Quiet is right. never saw a post for 3 days now...duh people. Ya gotta be looking right? janers very quiet. I thought my server was down! Have been busy ++ writing curriculum stuff for my medical school job, trying to finish three Masters' assignments and generally denying that there is anything the matter with my immune system (I'm very good at it) Bloods tomorrow morning, bring me back to reality :( Lyndal > Present too. Although YOU knew that now didn't ya Bev? > [quoted text clipped - 3 lines] > > janers [ >Bloods tomorrow morning, bring me back to reality :( Our group once had a talk from a Haematologist entitled "What do we do with all that blood?". He began by denying categorically that they ran a black pudding factory...  SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! >Darn, this group got quiet! Either everyone is having a great summer (winter >for those down under) or you are all too sick to get on the computer! I do >hope it is because everyone is doing pretty good and enjoying life. >Bev BOO!!! SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Don't do that to me - it makes me jump! Bev > >Darn, this group got quiet! Either everyone is having a great summer (winter > >for those down under) or you are all too sick to get on the computer! I do > >hope it is because everyone is doing pretty good and enjoying life. > >Bev > > > BOO!!! (time for a mini update) I'm here too! It has been warm here (which I don't really care for) but it cooled off yesterday. I'm installing a garage door opener tomorrow so I can park my new car in the garage! Wish me luck, I've been putting it off for a week. Physical projects like that are somewhat overwhelming these days! I don't have a lot of strength in my arms anymore, especially when working over my head. I have lost 100 pounds since February though, I seem to be somewhat stalled at 233 however. My goal is under 200. I was 185 when I got sick in 2001. I've really been doing great though! While I seem to be getting some of my symptoms back, I've been in somewhat of a remission since March 1st. Hope everyone is having a great ssummer and that they're feeling pretty good too. Happy summre to everyone!! > Darn, this group got quiet! Either everyone is having a great summer (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev Grrr.... not summer here (says Lyndal in flannelette PJs and socks with the heater on ) > (time for a mini update) > [quoted text clipped - 17 lines] >> hope it is because everyone is doing pretty good and enjoying life. >> Bev > Grrr.... not summer here (says Lyndal in flannelette PJs and socks with the > heater on ) "not summer here"........That's sure a curious thing. Is it like snowing and raining and below zero? Weird. It's good to hear from you again. It seems like you "dropped out" for a while. Glad to hear that your doing so well career-wise. Good for you! I envey anyone who can still work through this illness. I wonder if it hadn't attacked my lungs if I'd still be able to work? Greetings to all! Michael I am still here, just trying to deal with this Lupus and not doing too good at it...right now I feel like digging a hole and crawling in it and staying there. Linda Just hide from this darn heat! Bev > I am still here, just trying to deal with this Lupus and not doing too > good at it...right now I feel like digging a hole and crawling in it and > staying there. > > Linda >> Grrr.... not summer here (says Lyndal in flannelette PJs and socks with the >> heater on ) > >"not summer here"........That's sure a curious thing. Is it like >snowing and raining and below zero? Weird. She lives in Australia :) SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Hi all, and Bev you are right! My gosh it is 'deader than a doornail' in this ng posting forum! I am checking in daily pretty much, but of course with living on this island that is a beach resort mecca for tourists everywhere, rivalling even California and Hawaii for the summer time crowds <g>!; and this includes my family members from the mainland in the summertime! I really don't mind and in fact enjoy it, but would enjoy even a bit more if the visits were spread out a bit throughout the year! Ah well, beggars can't be choosers and as I can't go there as often as I'd like I am fortunate that 'the mountain (6 sisters and their families) does come to mohammed'! --and honestly I wouldn't have it any other way!-- The downside being that flaring joints and fluid retention doesn't make for a good mix with visitors (to say the least) but so far I am handling it all to date and I soon hope to get back on my antimalarial med and hopefully clear up a lot of this joint and muscle stuff! Next week that decision will be made! fingers crossed, and toes! Hugs to you all and wishes for you all have a happy and not too sunnny summer! from me, Shelagh http://clik.to/lupus Beverley wrote: > Darn, this group got quiet! Either everyone is having a great summer (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev I know if you are installing a garage door opener you must be doing much better! (HUGS) Bev > (time for a mini update) > [quoted text clipped - 15 lines] > > hope it is because everyone is doing pretty good and enjoying life. > > Bev Don't give me too much credit. So far all I've done is "talk about" installing a garage door opener. I did manage to get it out of the box though and there's sure a lot more pieces than I remember there being in the kit. I did manage to get to the lumber yeard to get a 2 x 4 that I was sure I would need. Finding out later that I'd blown $2.99 on a board that I'm ending up not going to need really bothered me for some reason??? Now that I live in an apartment instead of a hoiuse, I don't have room for accumulating all that crap that seems to stack up with all these projects I take on anymore. You know, installing a garage door opener and having a bunch of pieces left over? It also bothers me now that I have to hire help to do things that I used to do for myself. They want $99. to install the opener and I might end up having them do it. It's depressing for me.....Simple stuff too. I'm having to take the car in for help with something that I NEVER would have had someone else do for me 5 years ago! Having to pay someone $75.00 to bolt on a trailer hitch (4 bolts!) makes me real hard to live with and I'm finding myself walking around angry all the time. It's making me feel helpless and incapable. I've been so mechanically inclines my whole life (and I've never been lazy!) I know of a widow with a fair amount of investment rental units. She is now having to sell off all her apartments. She told me that every time she has to install a towell rod in a bathroom she has to pay someone $25. to do it. She can't make any money with the units that they worked so hard their whole lives to aquire (for their retirement). They're falling into disrepair. I don't know why I felt a need to tell all that but I guess it's kind of how I'm feeling lately. I don't want to pay someone to do something that I used to be able to do in an hour or so I've installed several of these things in my lifetime, hitches and openers. And they also never seem to do it the way I want them to either!!!! So....Other than being a big baby today, I'm doing great! > I know if you are installing a garage door opener you must be doing much > better! > (HUGS) > Bev I'm installing a garage door opener tomorrow > > so I can park my new car in the garage! Wish me luck, I've been putting Not a baby, just sounding a bit overwhelmed and sick of this disease crap. Thats OK...we're listening (and not judging) LPN xx > Don't give me too much credit. So far all I've done is "talk about" > installing a garage door opener. I did manage to get it out of the box [quoted text clipped - 41 lines] > I'm installing a garage door opener tomorrow >> > so I can park my new car in the garage! Wish me luck, I've been putting >Don't give me too much credit. So far all I've done is "talk about" >installing a garage door opener. I did manage to get it out of the box [quoted text clipped - 5 lines] >hoiuse, I don't have room for accumulating all that crap that seems to >stack up with all these projects I take on anymore. Put them in the garage, and leave the car outside? "It works for me"! SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! <"Andy" wrote in message: Put them in the garage, and leave the car outside? "It works for me"!> LOL Andy, that is exactly what is going on here! My little car <an Accent> that i bought specifically for my 'little garage' is still sitting on the driveway a whole year later, cause the 'little garage' is still crammed full of stuff that needs to go out into the storage shed, just newly built by MOTH for that reason! It is a roomy shed that hubby now thinks would be nice as a workshop lol! a view window in it, and nice sliding glass doors opening into it and 8 foot ceiling with an A frame roof giving shelf room up top... yep would indeed make a nice and bright workshop overlooking the sea view BUT would be way better used, 'I.M.Humble.O.' to house all the junk we collected from house rennos over the past 3 years <sigh> so I need now to find a clever way to get MOTH to move it all out to the shed without sounding like a nag and saying the same old BTDT stuff to him .... anyone?? any ideas?? <g> hugs, Shelagh http://clik.to/lupus [ >It is a roomy shed that hubby now thinks would be nice as a workshop >lol! a view window in it, and nice sliding glass doors opening into it >and 8 foot ceiling with an A frame roof giving shelf room up top... yep >would indeed make a nice and bright workshop overlooking the sea view Sounds like a summer-house >BUT would be way better used, 'I.M.Humble.O.' to house all the junk we >collected from house rennos over the past 3 years <sigh> so I need now >to find a clever way to get MOTH to move it all out to the shed without >sounding like a nag and saying the same old BTDT stuff to him .... >anyone?? any ideas?? <g> Get another shed, no windows, no comfort, move the junk there... NB: "junk" is anything you have no possible use for until 5 minutes after you threw it out. SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! OK then! LOL! You made some good points <g>.... BUT as MOTH built his shed/cottage all on his own, without my help....he will be using it as he sees fit ...regardless; (until he builds his second shed, now in planning for the lower lawn tier hopefully for next summer's use).... I just threw it out there to see if there was anything that I could use that came back in to me.... however.. nope .... not yet anyhow lol! thanks Andy.... <ahem> hugs, Shelagh http://clik.to/lupus "Andy" wrote in message >>It is a roomy shed that hubby now thinks would be nice as a workshop >>lol! a view window in it, and nice sliding glass doors opening into it [quoted text clipped - 13 lines] > NB: "junk" is anything you have no possible use for until 5 minutes > after you threw it out. Do people really park their car in the garage? I thought that it was just a big storeroom and a place to have "room" to take things a part. <g> I've always parked my car in the garage (when I had one). I think it makes me feel like I'm affluent somehow.... Not really. It rains so much here that it's always nice to get into a warm, dry car. One of my few luxuries anyhow. I get away with it because I'm an obsessive cleaner so I've always had a garage that's pretty organized so it has room for a car. But it has to have an opener though.... I realized yesterday an whole untapped reserve of storage space in this garage up in the rafters. So I went and bought a bunch of cheap 1 x 4's and made a platform up thre and crammed a bunch of stuff "up in the air." Now I have a lot more room! For what they're charging me in rent for this garage, I'm gonna get my moneys worth! Of all the things I miss the most about selling my house and moving to an apartment it's a garage for my tools and junk (Yes, Sherry, so I have some place to take things apart!) After all, I'm still a "man." Sometimes I just go up there and move things around, you know. If I still smoked it would be where I go to smoke. I bought one of those little "Vespa type" scooters this summer (But it's a Honda because I don't want to have to get down on the floor and work on it all the time!) I know, just the thing I need with all the opiate pain med's, the dizzyness and the coumaden I'm taking. But I'm real carefull and really just putt-putt around the neighborhood. It would scare me to ride it on the main streets here. After so many years of being sick, it makes me feel normal for a few minutes when I ride it for some reason. AND, there is a little hook there for my helmet that works perfectly for my oxygen cylinder! That must look weird from a distance, huh? Soon I guess I'll need a trailer hitch for the darn thing so I can drag my wheelchair and other misc. medical equipment around with it, huh? I may only have a few months this summer of being in my little "remission" but I'm gonna "get my moneys worth " out of it while it lasts! I get darn tired of being sick all the time! But I really want to hear more about Bev picking men up in diners...... > Do people really park their car in the garage? I thought that it was just a > big storeroom and a place to have "room" to take things a part. <g> I couldn't have picked him up if I tried - he would have been way too heavy for me. Heck, by the time most boys reach age three I can no longer pick them up. LOL Bev > I've always parked my car in the garage (when I had one). I think it > makes me feel like I'm affluent somehow.... Not really. It rains so [quoted text clipped - 34 lines] > > Do people really park their car in the garage? I thought that it was just a > > big storeroom and a place to have "room" to take things a part. <g> Michael, Sometimes it is just easier to pay someone else to handle those projects and save yourself the stress and frustration. Instead of being angry with yourself (ourselves) for not being able (physically) to do the things you (we) used to do we need to discover and "master" things that we can physically do that we have never done before. Every door that closes should open new doors if we let it. Hang in there as you really aren't alone. Hugs, Sherry > Darn, this group got quiet! Either everyone is having a great summer > (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev Hi Bev and everyone else, I'm still here, nothing happening in my life, just being very boring!! I hope everyone else is doing well. Janet Sometimes I think boring is just wonderful! The rest is too stressful! ;-) Bev > > Darn, this group got quiet! Either everyone is having a great summer > > (winter [quoted text clipped - 6 lines] > > Janet I know what exactly what you mean Bev, I'll try to stay boring then!! LOL Janet > Sometimes I think boring is just wonderful! The rest is too stressful! > ;-) [quoted text clipped - 12 lines] >> >> Janet Well, I finally went to court today over the guy that hit 4 cars on our street back in Jan(?) - in a way I felt sorry for him as he was retirement age and worked for the Virginia Department of Transportation. A DUI (driving under the influence) is an automatic dismissal from his job so he will lose his retirement and everything he has worked for. OTOH I don't think anyone should drive while intoxicated and he's damn lucky he didn't kill somebody even if it was his first time (getting caught?). But they gave him 40 days jail time! I was floored. I've seen second offenders get jail time but never first offenders. Anyway the court is two-three blocks (depends on how you count the blocks LOL) from my house. The sun was bright and the humidity was high. Do I walk and hope I don't trip and fall on my face or do I take the car and hope I can find a parking spot up close? Hubby said take the car because it would be hotter when I get out and I don't need to be walking the streets in the heat. Just climb into a super heated car instead. So I took the car and had to park one block behind the courthouse because there were no spaces available in the courthouse lot. Then it was sit and wait forever in the courthouse with my neighbors who were also subpoenaed. I'm just glad it is over. When I came out I figured I'd swing by my daughter's house and see if my GD would like to have lunch with me but she was gone with my daughter so I went to lunch alone. There is a small airport (private planes) near me with a lovely little cafe, super good food, and the best ice tea. So I ate lunch on the veranda which was shaded and warm but not too hot as there is always a breeze and totally empty of people. The place inside was not crowded so the gals from the kitchen came out and sat down with me and we all chatted. (I go there a lot! LOL) So when they went back inside I went in to pay for my meal. There was a man sitting at the counter near the register talking to another worker. He excused himself for being in my way, which he was not and I handed the gal my ticket and money and politely said something such as "You're fine. You are not in the way at all." He looked at me and said you're not from around here did you just pull in (meaning on one of the planes). Are you from the Philadelphia area? " Well, pick me up off the floor! I've been in Virginia for 35 years this past May and yes, I'm from the Philly area. How could he have figured that out with less than 10 words falling from my mouth? He swore it was the way I was dressed (Khaki slacks, a white embroidered shirt, Birkenstocks, a little make-up, and I did have on a pair of earrings - hey I had to be dressed for court!), wore my hair and carried myself. I'm still not sure if he was flirting with me or just being nice but it was fun. We talked for about an hour. He swears he can spot a Yankee by the way they are dressed. His parents were from Massachusetts but he was a Navy brat raised all over the place but mostly in this area with constant summers back home with the grandparents. So now I'm feeling pretty because I obviously turned the head of a nice-looking man about my age. <BIG GRIN> Bev > Darn, this group got quiet! Either everyone is having a great summer (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev you go girl!!!!! > Well, I finally went to court today over the guy that hit 4 cars on our > street back in Jan(?) - in a way I felt sorry for him as he was retirement [quoted text clipped - 66 lines] >> hope it is because everyone is doing pretty good and enjoying life. >> Bev HOT Dang Bev, picking up men in a diner. Wish I would of thought of that LOL. You know it is never to late to grab that attention we woman so deserve. right?? ehehehehe So what did the SO say or didn't you tell him? hehehe. I would.....but then again MAYBE NOT!!! hehehehehe janers Yeah I told my hubby - he just smiled. Besides I didn't pick the guy up - I just talked to him. LOL Bev > HOT Dang Bev, picking up men in a diner. Wish I would of thought of that > LOL. [quoted text clipped - 10 lines] > > janers Hi Bev, Great summer here and lots of fog. Northern coastal California is at its best in July. Really thankful for all the windows in our house because it feels like being outside. This time of year we have all of the fawns & other animal offspring of all kinds and sizes. Wish our wild turkey population would stop doubling. ruth > Darn, this group got quiet! Either everyone is having a great summer (winter > for those down under) or you are all too sick to get on the computer! I do > hope it is because everyone is doing pretty good and enjoying life. > Bev Um, turkey dinner? Bev > Hi Bev, Great summer here and lots of fog. Northern coastal California > is at its best in July. Really thankful for all the windows in our house [quoted text clipped - 6 lines] > > hope it is because everyone is doing pretty good and enjoying life. > > Bev |
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