Medical Forum / Diseases and Disorders / Lupus / June 2006
Synthroid
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Beverley - 22 Jun 2006 02:05 GMT Doc gave me a Rx for Synthroid which was filled with a generic. I'm not sure if I should just wait through the side effects or call the doc and ask for a new Rx. The printout that comes with it says that side effects tend to subside over time. Within seconds of taking it I get itchy. No rash just an itchiness on the extremities (fingers, toes, nose, ears and scalp) for about an hour, then later on my whole body tends to feel a little itchy. Also it seems my anxiety levels have increased. And I've also had some dizziness. But I feel much better, lots more energy and in general I feel better but...... What the heck is happening?
Shelagh - 22 Jun 2006 19:10 GMT Taken from: http://tinyurl.com/f9hnh OR: https://healthlibrary.epnet.com/GetContent.aspx?token=1baaea3c-d4f5-4e14-8429-e3 b3e1add7a7&chunkiid=117716 U.S. Brand Names Levothroid®; Levoxyl®; Synthroid®; Unithroid®
"Tell healthcare provider if you are allergic to any medicine. Make sure to tell about the allergy and how it affected you. This includes telling about rash; hives; itching; shortness of breath; wheezing; cough; swelling of face, lips, tongue, or throat; or any other symptoms involved." Just a reminder for you Bev... I know you know all that but the itching is one of the first listed and i would Not ignore it... good luck! hugs, Shelagh
> Doc gave me a Rx for Synthroid which was filled with a generic. I'm not sure > if I should just wait through the side effects or call the doc and ask for a [quoted text clipped - 5 lines] > But I feel much better, lots more energy and in general I feel better > but...... What the heck is happening? janers - 22 Jun 2006 20:53 GMT Hi Bev, might be the generic but is might also be the amount that is in it. I suggest asking doc for a script that says DAW or dispense as written and write synthroid. I am on synthroid and well that hppened to me getting generic. Found that I also needed a smaller doseage. I am still on generic so who knows this.
the anxiety might be due to worrying about this also but if you have the shakiness that can be too much thyroid.
What is the dose and what was your TSH as well as T4 and T7?
check your bp too, that is all into this. do you take it morning and ON an empty tummy? I was told a must to do
let me know,
janers
Beverley - 23 Jun 2006 00:31 GMT Well the first couple of days I really began to feel great with lots of energy. I was thinking that I was approaching feeling like a normal person except for a few joints that still were not working well (they really need some major lubrication!) . Except for the funny tingling itchy sensation that almost seemed to worsen with each day. Then I noticed that my anxiety levels were rising. Now for the last two days or so I've had a headache and nausea. So yesterday I decided to cut my pill in half - because it was scored and he had said something about playing with the dosage. I'm on 25mcg and I'm splitting that in half. I think tomorrow I will just not take it and see how I feel. Yes, I'm taking it on an empty tummy first thing in the morning with just my coffee which I was told was perfectly OK to drink my coffee. But I just thought of something - I use Coffeemate (brand, used instead of cream/milk) in my coffee and it has soybean oil in it. There is a warning about giving this med to children using soybean formula. Anyway I hardly ever eat breakfast and I don't bother taking anything else until I do eat something a few hours later.
Shakiness - yes, that would almost describe my anxiety - it's as if I'm really nervous about something but I'm not yet my body thinks I am.
I don't remember what my levels were - I guess I should have asked for a copy. But I was just slightly elevated (meaning the thyroid was a just tiny bit sluggish).
I wonder if the Coffeemate is making a difference?
I have no appetite. I ate something about 2:30 today and have no desire for dinner tonight - in fact I had my husband heat something in the microwave for his dinner because I thought that even the smell of food would make me vomit.
I'm just thirsty but then I'm always running around with a dry mouth.
Oh Janers you are so helpful - I'll bet the dosage is too much and the Coffeemate is interfering too.
I'm not itchy as in hives or anything that would pose a life threatening situation - at least not at this point in time. It's just if I touch something I set up this sensation. I think it hits my hands first because I'm handling my pill box and my coffee, then I strand up and walk - toes, rub my eyes or touch my nose - itch! Brush my hair and I want to scratch my scalp with the brush not brush my hair. Then it seems to go away. I noticed on the weekends I wake up and take my pill and climb back into bed. I'm supposed to take it at the same time every day. My hands might start to itch but I fall asleep and when I wake up I don't have the problem.
Also by the end of the day I feel better than the morning. I think I'll call the doc on Monday and see what happens if I don't take it tomorrow, and then only take a half pill on Sat and not drink any Coffeemate in my coffee, and then skip Sunday. Hmmmm. Bev
> Hi Bev, might be the generic but is might also be the amount that is in it. > I suggest asking doc for a script that says DAW or dispense as written and [quoted text clipped - 13 lines] > > janers janers - 23 Jun 2006 04:38 GMT Bev please do me a favor and call the doc friday. Don't mess with dosage yourself. I know he mentioned you to jiggle the dose or play with it, but hon that is not the thing to do. Thyroid takes awhile to get adjusted in your body and skipping here and there and lowering here and there is not going to give you a true level for you to use.
That is why they put you on a higher or lower dosage and wait for 3 to 6 months before another blood test is done.
If you are feeling itchy by all means call that doc frid.
The synthroid or levo something or other, can't remember generic, if the dose os 25mcg it must be actually .25mcg Right???? I am on .125mcg That is micrograms cause the .15mcg was too too much. Is it .25mcg??? When I got too much the .15 I got the shakes due to too much. Please call the doc and if soy is mixed with thryoid that is a no no. Drink the water with it and try your coffee black haha. Or at least skim milk..in it for now. PLEASE? call the doc............ It also sounds like you might not be getting enough with dry mouth as well as the itch and that is due to dry skin. With thyroid problems that is very possible, till you get the right dosage...........
so it could be either too much or too little. Check that bottle, what color is the pill? blue, beige, white, coral? Read the dots haha
huggie janers
janers - 23 Jun 2006 14:07 GMT Boy oh boy Bev. Synthroid Tablets: Synthroid tablets are round, color coded, scored, and debossed with "FLINT" and potency:
25 mcg, orange 50 mcg, white 75 mcg, violet 88 mcg, olive 100 mcg, yellow 112 mcg, rose 125 mcg, brown 150 mcg, blue 175 mcg, lilac 200 mcg, pink 300 mcg, green Talk about too sleepy last night..
this is what I MEANT and sorry for the confused state I am in.
dose I am on is 125mcg or .125MG is what that was. I had them back ward.
this is the dosage or synthroid for all to see.
Glad you feel better this morning and glad you are calling the doc and pharmacist.
hugs janers, who wil check and recheck her writting next time.
Beverley - 23 Jun 2006 17:39 GMT Pharmacy said I was getting wayyyy too much synthroid for my system. Said my reaction was pretty typical - that feeling of too much caffeine. Since 25mcg is the lowest and I had already tried cutting the dose in half then the next step was to call the doc and find another Rx. Pharmacy said there are several alternative Rx's available. So now I've talked to my doctor's nurse and she's going to get back with me. I guess they are going to try something else and call it in for me. Bev
> Boy oh boy Bev. > Synthroid Tablets: Synthroid tablets are round, color coded, scored, and [quoted text clipped - 24 lines] > hugs > janers, who wil check and recheck her writting next time. Mermaid - 26 Jun 2006 14:20 GMT Bev, I took the generic version for over a year and kept having problems with my heart doing flip flops, palpitations, etc. Finally went to a real Endo doctor and he said that generic thyroid was not good and firmly believed in the brand name Synthroid. So he switched me to that and I think the pharmacist thought I was crazy because I did not want the generic. But low and behold my heart problems stopped and I am even taking a higher dose than I was taking in the generic. Must be something to what the doc was talking about. Sure is nice not to listen to your heart pound when you are trying to sleep. It took me going to a specialist before I could get the right answer. He also said that soy products, antacids, calcium supplements and grapefruit can keep the synthroid from working right. You can take or eat those things but not when you take your medicine. I have to take it with a glass of water when I first get up then eat something an hour later. I am wondering if there is something else in the generic version that is giving people problems. The reason the doc said he does not like to use the generic is the way the FDA tests medicines. He said they will give the generic version to a healthy person and then only test it for 24 hours. Synthroid does not give you a result in a persons blood until months later. Way to go FDA!
That's my 2 cents.
Paulette
> Pharmacy said I was getting wayyyy too much synthroid for my system. Said my > reaction was pretty typical - that feeling of too much caffeine. Since 25mcg [quoted text clipped - 33 lines] > > hugs > > janers, who wil check and recheck her writting next time. Beverley - 26 Jun 2006 19:23 GMT I guess it is all a moot point now. I tried the brand Synthroid at the lowest does they make and cut the pill in half. Thought I'd wind up in the ER last night as my heart was pounding so bad. So this morning I took nothing. I still feel a little jittery but not too bad. I guess he'll try another brand on me - I almost wish he wouldn't as I'm scared now to take anything. Maybe the cure is worse than the problem? Bev
> Bev, > I took the generic version for over a year and kept having problems with my [quoted text clipped - 63 lines] > > > hugs > > > janers, who wil check and recheck her writting next time.
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