It's no consolation, but several people seem to have this; no miracle
cure has yet been mentioned :(

I have some signs of scleroderma, told when diagnosed with lupus.

But nothing found ever on the esophagus studies.

There is a disease called CREST that has scleroderma in it.  I can't for the
life of me tell you more right now Ruthie.

LET me look into it and see what I can find.

Are you throwing up any?? Or the food just won't go down right with
swallowing?

DId the doc say it is up high or lower in the esophagus.  You need to get a
copy of that report....ok?

Hang in there, it ain't that bad. right???

hugs
sarge

i've got CREST in addition to Lupus.

also dermatomyositis.

had really bad swallowing problems when i was first diagnosed, 4 years
ago. I stopped eating because swallowing anything would make me choke.
I lived off of slimfasts for several months, till I found a
rheumatologist that would listen to me. they seemed to think the problem
was more because of  the muscle disease, but who knows.

he sent me to speech and dysphagia therapy.  in additon to the speech
therapy, they did something called DPNS- deep pharangyl <sp?>
neurologicial stimulation - or something like that

sounds nuts - but the treatment was to stimulate my muscles in my throat
to get em working again, with - frozen lemon swabs . they actually put
them in my throat to make me gag- one of the worst things i've gone
thru, but it helped.

so much that i gained back all the weight i lost , and more - course,
they had me on prednisone and methx, also, but i think this treatment
helped the most.

talk to your dr about maybe referring you to a speech pathologist -
can't hurt !
it helped me soooo much !

vicky

Ruth
HUGS!
I'm so sorry for your diagnosis.
There are many names and sub forms of scleroderma
Synonyms
 a.. Progressive Systemic Sclerosis
 b.. PSS
 c.. Sclerosis, Familial Progressive Systemic
 d.. Systemic Sclerosis
Disorder Subdivisions

 a.. Morphea
 b.. Linear Scleroderma
 c.. CREST Syndrome
Here are some sites to research.....
NIAMS NIH has info that'll they'll mail out to you (they have all types-
osteo, RA, SLE, FMS, etc,etc
Good luck and my prayers are with you!!!!

Nicole
Scleroderma Research Foundation
220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: 4158349444
Fax: 4158349177
Tel: 8004412873
Email: info@scleroderma RESEARCH.org
Internet: http://www.srfcure.org

Scleroderma Foundation
12 Kent Way, Suite 101 Byfield, MA 01922
Byfield, MA 01922
USA
Tel: 9784635843
Fax: 9784635809
Tel: 8007224673
Email: sfinfo@sceroderma.org
Internet: http://www.scleroderma.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information
Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: 3014954484
Fax: 3017186366
Tel: 8772264267
TDD: 3015652966
Email: niamsinfo@mail.nih.gov
Internet: http://www.niams.nih.gov