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Medical Forum / Diseases and Disorders / Lupus / April 2006What is Occipital Neuralgia?
http://www.ninds.nih.gov/disorders/occipitalneuralgia/occipitalneuralgia.htm What is Occipital Neuralgia? Occipital neuralgia is a chronic pain disorder caused by irritation or injury to the occipital nerve located in the back of the scalp. Individuals with the disorder experience pain originating at the nape of the neck. The pain, often described as throbbing and migraine-like, spreads up and around the forehead and scalp. Occipital neuralgia can result from physical stress, trauma, or repeated contraction of the muscles of the neck. Is there any treatment? Treatment is generally symptomatic and includes massage and rest. In some cases, antidepressants may be used when the pain is particularly severe. Other treatments may include local nerve blocks and injections of steroids directly into the affected area. What is the prognosis? For most individuals with occipital neuralgia, the pain is eliminated or reduced with treatment and does not interfere with daily activities. And don't let any one tell you those shots in the head are easy to go through. I had 4 of them and jumped off the table each time, BUT instant relief after it was over...so guess I am jumpy but gee whiz. ok, Cindy, did it hurt?? But again, got to tell you IT does work so hang on the and let the doc fix it... hugs to all and to all NO pain janers Oh, my. I have an 'occipital area of attenuation' & don't ask me to explain that one (something to do with a gray area that showed up on an MRI that they thought originally was MS but pro'ly wasn't) but I also had many of the symptoms that you describe, Cynthia. I've also had neuropathy, which caused extreme nerve pain all over my body, which was of course treated with Prednisone. I never had, & it was never suggested, to have shots into my occipital area. I hope it works for you. Candi > From: J <mdates@invalid.inv> > Newsgroups: alt.support.lupus [quoted text clipped - 21 lines] > For most individuals with occipital neuralgia, the pain is eliminated or > reduced with treatment and does not interfere with daily activities. Do you have double vision? I still have that; sometimes triple vision from it. Candi yes it did hurt and yes on the vision even triple or like my eyes are doing a strobe light dance can't red for very long and I love to read. But the shot did help right away. I am set up for lymphodemia evaluation Wed. morning my lower legs and feet are so bad. Then 3 Mr.'s and foot x-ray thursday. Alot going on the infusions are suppose to start in 2 weeks. after we see all the results from all this. They have bumped me up to alternating between 70 mg pred one day to 90 the next while we work on this. Thus I am a creature of the night again. I have lost 40 pounds since last May when I started new diabetic meds Now high pred have to fight hard on that. They are going to do the soft tissue massage for the fluid on my legs and feet. They hurt so bad I can not imagine someone touching them. )0: Anyway have to try to get all this in control. Thanks for all your comments been scary Cindy >Oh, my. I have an 'occipital area of attenuation' & don't ask me to explain >that one (something to do with a gray area that showed up on an MRI that [quoted text clipped - 37 lines] > > > yes it did hurt and yes on the vision even triple or like my eyes are > doing a strobe light dance can't red for very long and I love to read. [quoted text clipped - 12 lines] > Thanks for all your comments been scary > Cindy Busy week, Cindy. I sure hope they can help your feet and legs. Many hugs and painfree days to you, J The nerve block was amazing it was almost immediate i am so glad I called her and got in so fast. I would have probably ignored it as another damn lupus headache if there were not so many other problems going on at same time. I am not to excited about the IVIG but I am so very weak and I hope will help she said she will stop if I get the meningitis thing or feel I just don't see an improvement, So as long as she will listen I am willing to try again. Anyway thanks J I have been researching it a bit too and saw this you are wonderful to look. My headache had been affecting my eyes so has been hard to read. Hope everyone is ok and if your out there Bruce a big hello Also BJ I hope your ok I miss you please say hi if you get a chance Glad to see Janers here what wonderful grandbabies (0: We are having all new generation Ward due on my late mother in law's birthday in Sept. We are all so excited first Ward baby since my daughter who will be 17 in May. The wedding is April 22 they had been planning that a while baby was suprize (0" Ward Out >http://www.ninds.nih.gov/disorders/occipitalneuralgia/occipitalneuralgia.htm > [quoted text clipped - 18 lines] > > Remember, a nerve block is just that; it will block pain - & ie symptoms. Works the same in horses ;) They're thinking of doing a nerve block in my horse's front feet to block her pain, yet her disease is still there. I can't ride or work her - I just don't want her to be in pain. You probably need to be extra concerned about other things happening, since you don't have the original pain. Candi > From: Cynthia Ward <jcward84@verizon.net> > Newsgroups: alt.support.lupus [quoted text clipped - 41 lines] >> For most individuals with occipital neuralgia, the pain is eliminated or >> reduced with treatment and does not interfere with daily activities. > Also BJ I hope your ok I miss you please say hi if you get a chance I did luv (last week). Heard back yesterday - saying hi back to you and thinking of you. (all, really - said she wishes she could come to NG) She only emails (mostly) family. Hugs J Hi Cindy, I am here today for a change. I am trying to read some of the posts, and get some replies out. I remember what happened to you before when you had the IVIG. I will keep my fingers crossed and hope that you don't run into trouble this time. It did help me, and I was lucky enough not to have an reaction. I think about you all of the time, even when I am not keeping up with things on the ng. Let us know how it goes for you this week. Sounds like you have more than enough going on. BJ-Sk. Canada > The nerve block was amazing it was almost immediate i am so glad I > called her and got in so fast. I would have probably ignored it as [quoted text clipped - 36 lines] > >For most individuals with occipital neuralgia, the pain is eliminated or > >reduced with treatment and does not interfere with daily activities. |
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