Medical Forum / Diseases and Disorders / Lupus / March 2006
Getting rid of stress - ramble
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Beverley - 17 Mar 2006 05:21 GMT We all know that stress is negative on our bodies. Stress can come from good things or bad things. Somehow we are supposed to manage stress. I'd love to know how to manage it because somehow stress just seems to happen. I know that I participate in a very stressful situation that occurs once a year, my local county fair. I know what that does to me and I try to make sure I go into it as healthy as I can be. The fair is a combination of good stresses and bad stresses and so far the good I think outweighs the bad so I continue to do it. I like doing it, and I think we all need things we like in our lives. Okay so I whine and complain prior and after the fair because it is a tough job both physically and mentally. But it is one thing I can still do (with help) and I enjoy it. For one week I am something other than a wife, mother, grandmother, chief cook and bottle washer, - for one week I'm a person with a very important job. My area has been the showcase for our fair and it is getting bigger every year! Okay, I can deal with that.
But what I can't deal with is all the other stuff that comes at me all the time. Seems I might get a day or two off and then it all hits the fan again. Sometimes it is not my problem yet it still effects me. Sometimes I just wonder, "why me?"
Thursday a week ago I had been busy. I had been invited to join my husband at a casual breakfast meeting at work the next day. (They have a breakfast club every Friday and everyone knows that I prepare the food that he brings when it is his turn.) Since it was not his turn to bring food I decided that the polite thing would to bring something "fun" with me so I planned on making a simple coffeecake. Thursday was just delightful, we all need those days once in a while. I picked up an older friend who was my neighbor many years ago and we went to my sister's house, grabbed her and went to Olive Garden (an Italian Restaurant) and had a lovely meal. We sat and talked forever. It was great. After I took my sister home, my friend and I did a little shopping and then returned to my house. Since it was late we decided to go eat dinner at a local restaurant. (Quite honestly my friend and I were not hungry after eating a big lunch but I did have a hungry husband.) Then I took my friend home and stared at the recipe for the coffeecake that I had planned to make that evening. I decided I was too tired and went to bed. I left a note for my husband to wake me up at 5 AM so I had time to make and bake the cake. Thus was the end of my well planned agenda.
Six AM I wake up after a terrible night with hardly any sleep. (Why do I have those nights when I must get up and pee every 15 minutes?) When I realized the time I went into a panic. Husband said I really didn't need to bring anything, chances are there would be plenty of food. True, but the polite and considerate thing to do was bring more food. So I'm scurrying in the kitchen to get this thing in the oven. Then run upstairs and take a quick shower and get dressed while it was baking. I get out of the shower and the phone is ringing. I figured it was my sister as I told her I'd come back to see her and help her in the house after the meeting. (She's broken her foot, it's in a cast, and her son was coming home for his birthday on Sunday. She needed help.) But when I picked up the phone it was my youngest daughter who lives here in town. Her new husband was having outpatient surgery that day and she wanted to make sure I'd be able to pick up my GD after school. HUH???? So nice of her to wait until the last minute to tell me theses things. Yeah, sure I'd be back to do that.
Oh there was one other thing, would it be a problem if I was on standby just in case the school called. Seems the child woke up looking as if she had been punched in the face. (Remember I'm standing there naked, wrapped in a towel, dripping on an old hardwood floor, watching a clock because I have a coffeecake in the oven downstairs that needs to come out in a few minutes.) The GD had a red/blue ring under the one eye and the eyeball was red with no signs of swelling or pink-eye. The other cheek had a red swollen knot the size of a USA quarter (UK friends think old UK haypenny) on the cheekbone that apparently hurt. The schools around here go over the top when it comes to anything that might be a sign of violence so she was sure there were going to be questions and social services might be called. Ok, ok, ok I will return if I must so I gave her my schedule and made sure she had her dad's work phone number programmed into her cell phone. (Turns out later that she had mosquito bites: one under the eye, one on the cheek, and two more elsewhere on her body.)
Coffeecake in hand I get out the door and follow my husband to work during the early morning commuter rush hour. This area makes the Washington, DC commuter traffic look like a drive in the country. The breakfast meeting was fun. I knew about half of the folks. There are quite a few people in this group; some are from IT and some are from HR, some are the company's big bosses, etc. so it is an odd mix of people but very enjoyable. They joked about how they would have promoted him a long time ago if they had only known how well I could cook. I came away feeling good as it was nice to be openly appreciated. (And the food was delicious! Okay it was a heart attack waiting to happen: bacon, eggs, hash browns, biscuits with homemade sausage gravy, fresh fruit, yogurt, 3 types of juices, plenty of coffee and of course my coffeecake to go with some other store-bought breakfast rolls covered in icing.)
My sister lives only a few minutes from where my husband works so I arrived at her house prepared to kick into gear and do whatever needed to be done. Unfortunately she was not as ready. LOL (We really are night people not early morning people!) She insisted that I sit and have a cup of tea with her before we got started. So I made tea and just as I sat down the phone rang. It was my daughter and my heart sank.
No, the school had not called but her ex-husband did. Seems his father was talking a bunch of nonsense. She told him to call an ambulance as he was presenting signs of a stroke. Now, she was feeling very torn because she wants to be with her husband not with her ex-husband but she sensed the seriousness of the situation with her ex. I sucked down my tea and pushed my sister into telling me what she wanted me to do because I just knew the day was going to go downhill quickly. I didn't have to do any heavy cleaning just a bunch of stuff needed to be picked up and put away, and she needed the laundry done, clean sheets on the guest room bed, etc.
The phone rings again and it's my daughter. The rescue squad went out and being her ex-FIL knew his name, the date, where he lived, phone number, etc. and refused to be taken to the hospital there was nothing they could do but leave him. So my daughter told her ex to get over there to him and take him to the hospital. Since he couldn't just walk off his job he got his brother to go.
I'm watching the clock. I've got more to do then is possible in a few hours. Somehow my sister managed to hobble around and fix lunch for us. The phone rings again. It's my daughter. Her husband is in surgery and her ex- FIL has died. OMG! Seems the brother went over and his father seemed fine. He was quite normal, no signs of anything wrong, no delusions, nothing. The brother fixed a cup of coffee and took the morning's newspaper out to the porch. About 15 minutes later he walked back into the house and his father was dead.
Now both boys are really feeling guilty - maybe they should have forced their father to go to the hospital even though he seemed fine. Yes, and they might have done that and he still might have died. At least he went at home, peacefully and quietly. He was a man who liked quiet. Not really anti-social but someone who preferred to be alone, he liked the country and the peace and quiet it provided.
Now, I've got to get out of my sister's and meet my GD's bus. Then tell her that her other grandfather has died. Also I have normal Friday errands to run such as banking, food store, etc. Yes, I did it and managed to return to my own house by 5:30, completely exhausted and wound up tighter than a clock.
By Fri. night we knew there was going to be a memorial service but not when. My daughter went out Sat and bought some new clothes for my GD so she could wear them to the service. I had the same problem and had to go shopping, too. Also on Sat. hubby and I went to Lowe's and bought attic stairs that pull down so that we could create an access I can use. That will give me storage in this old house that I've not had. Sat evening I sat down with my husband to watch TV - something I hardly ever do and the phone rang. It's my daughter. Would I please hem the black pants she bought for her daughter for the memorial service Sunday afternoon. Yes, bring the child and the pants. She couldn't because the child was at some function and wouldn't be out until after 10. Fine bring her then. So at 10:30 in the evening I'm marking pants for hemming.
Grrrr! I did not want to hand hem and I had packed up the sewing machine because of the attic access that was about to be made. So it was drag the sewing machine back out. That darn thing is heavy!!!
The other thing on the agenda was my other daughter, who had moved back to the area, finally got her own place and wanted us to come over and see it that weekend. Originally we were supposed to go on Saturday to her house but with the death and everything being up in the air we decided to wait until we knew when the memorial service would be. Then my daughter thought we should visit on Sunday. And when my youngest daughter called about hemming the pants she informed me that the memorial was to be held Sunday afternoon.
So now I have to get up Sunday morning and get the pants hemmed and get them back to my GD, get myself ready for the service and call the oldest daughter and tell her that we will be there late because of the service.
Typical memorial but we did the right thing and went. (I hate the whole death "closure" crap - just is too hard on the family members.) Afterwards we were invited back to an aunt's house but we declined as we were headed to our oldest daughter's. Our youngest daughter went straight home afterwards but left the GD with her dad. We offered to return the (g)daughter, if he wanted to bring her to the oldest daughter's house, when we left to go home. That gave them plenty of time to spend with his family and saved him a 50 mile round trip.
Was it over on Sunday night? No. Monday I had a fair meeting and it was my turn to prepare the main course. Feed committee members and they will show up for meetings. LOL Cleaned up and headed home before the drug store closed because I had to pick up my Rx. Walked through their front door because they had closed the drive-thru (grrrr!) and my foot caught on the front door mat and I almost landed on my face. So now I had a twisted ankle on one side and a wrenched knee on the other. Fortunately I did not hit the floor!
Was it over on Monday night? No. Tuesday I had to go to court over the drunk driver that hit 4 cars on our street back in January. Then meet my GD after school and baby-sit her until her step-dad came home from work.
Wednesday I promised my sister I'd be back to help her. Ok, I went back but I did nothing at her house but rest! I needed it and she knew it. (Not only does she have a broken foot but her husband of 40 years now has a girl friend! She's climbing the walls!) At least there I was "away". Of course, my youngest daughter called to see if my sister knew where I was because she needed me to do something for her. LOL Out of luck, I was there and not coming back. (That's what she gets for waiting until the last minute!)
And today I have the GD again, and overnight.
Hmmm, and my best friend's kids are coming into town this weekend with their children in their RV hoping we can all get together.
Do other people live like this? I want to scream "TIME OUT!" Oh, please just cross your fingers for me that next week will be calm and peaceful. I just want some time to myself. And if we are supposed to eliminate stress from our life just what part of life was I supposed to have skipped? I'm just thankful I've managed to get through it. So if no one hears from me for a while I'm just going to hide from life for a few days.
Hey, but I look healthy! Yeah, I still have one spare spoon in my back pocket. Bev
Cindy - 17 Mar 2006 17:08 GMT Bev...I would share some of my spoons...Honey...But unfortunately I had to go to the bank and get a loan...And they wouldn't let me borrow any more because I haven't repaid the ones they loaned me last week... I don't know if everyone else lives like this...But there are times...That I can call this my LIFE.... My door is a revolving one...it never closes and my house is full of people always wanting and needing and my car never sits still as I am the chief Taxi cab driver...
Hope you get to run away from home... Hugs Cindy
> We all know that stress is negative on our bodies. Stress can come from > good [quoted text clipped - 267 lines] > pocket. > Bev Beverley - 18 Mar 2006 15:55 GMT Cindy, If I haven't used up the spare spoon by Tuesday morning I'll send it your way. I'm just not sure if it goes to Cindy in OK or Cindy in TX. LOL Bev
> Bev...I would share some of my spoons...Honey...But unfortunately I had to > go to the bank and get a loan...And they wouldn't let me borrow any more [quoted text clipped - 7 lines] > Hope you get to run away from home... > Hugs Cindy Cindy - 18 Mar 2006 16:30 GMT Well this is Cindy in OK, but if Cindy in TX needs half...I will share... Hugs
> Cindy, If I haven't used up the spare spoon by Tuesday morning I'll send > it [quoted text clipped - 16 lines] >> Hope you get to run away from home... >> Hugs Cindy Beverley - 21 Mar 2006 17:51 GMT Sending you a spare spoon and one to Cindy in TX because she can always use one!
It's a drizzly, cold, and miserable here today. I think every joint I own aches. I'm such a weather barometer! LOL So I'm just being quiet and doing a few minor things in the house. In fact I'm almost bored as the things that need doing I'm not doing. Bev
> Well this is Cindy in OK, but if Cindy in TX needs half...I will share... > Hugs [quoted text clipped - 18 lines] > >> Hope you get to run away from home... > >> Hugs Cindy Andy - 17 Mar 2006 21:51 GMT [munch]
> Also on Sat. hubby and I went to Lowe's and bought attic stairs that >pull down >so that we could create an access I can use. Memo to anyone else planning on doing this... before you install stairs that make the access hole smaller, first check that all the valuable possessions (aka that old junk) you put up there will go through the new, smaller, hole.
Guess who didn't :(
 Signature Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!
Beverley - 18 Mar 2006 01:36 GMT Hmm, we owned a house once with a piano because they re-did the room and made the doorway too small so they couldn't take the piano with them. LOL
Our access hole will be much larger than the little square that is there now. So what did you permanently leave in storage? Bev
> [munch] > > Also on Sat. hubby and I went to Lowe's and bought attic stairs that [quoted text clipped - 7 lines] > > Guess who didn't :( janers - 18 Mar 2006 05:24 GMT I don't have zip to say about all this. My goodness Bev, you lead a confused life. Sorry you are having such a rough time.
I was going to give an update on my trip and being back home but Heck I will wait and digest all you just typed :))
more later.
hang in there woman
janers
J - 18 Mar 2006 11:08 GMT > I don't have zip to say about all this. My goodness Bev, you lead a > confused life. Sorry you are having such a rough time. > > I was going to give an update on my trip and being back home but Heck I > will wait and digest all you just typed :)) hawo janers :) welcome back. J
Andy - 18 Mar 2006 11:08 GMT >Hmm, we owned a house once with a piano because they re-did the room and >made the doorway too small so they couldn't take the piano with them. LOL > >Our access hole will be much larger than the little square that is there >now. So what did you permanently leave in storage? A pair of loudspeakers, and the Lupus Group display board!
But every silver lining has its cloud... one of the latches on the ladder broke, so the whole thing had to go back to the shop, so I managed to get things out by using the diagonal of the hatch.
I couldn't make the hatch wider - well, I could by sawing through the rafters, but then the roof would fall down :)
 Signature Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!
J - 18 Mar 2006 11:06 GMT > Memo to anyone else planning on doing this... before you install stairs > that make the access hole smaller, first check that all the valuable > possessions (aka that old junk) you put up there will go through the > new, smaller, hole. > > Guess who didn't :( oopsie :( If you want to read a nightmare (hubby of fibro patient in UK) BCCHIS http://grampahugs.ath.cx/UK_Mike/ (at my last reading there was still a big hole in the floor) has pics as well.
I had to "fight" two carpenters to not make a door (opening) too small. And later, one of them, wanted to move the stairwell banister inward (on each step) and i said "no, no, no". Then later he made an opening to the shed and I told him it was too tight and indeed, I could not get the door opened when it was damp or cold, so he had to plane some off. There's something about carpenters and tight fits.. J
Nancy F - 20 Mar 2006 08:51 GMT Bev, I have an actual serious answer about living this kind of life. I changed it, it took about 10 years and many family members growing up, but now it is VERY quiet in my house, my car and my phone. My hubby & I were the hub for our 2 kids in Jr. High, a 3rd living on her own - sorta! - with 2 grandchildren. We don't have siblings close but were very active in the church family and soccer group friends. I was just about bedbound for a bout 3 years with lupus & FM and became very creative about getting the kids to activities, teaching them to make their own cookies for the bake sale, practice their music lessons withour me nagging, etc. etc Once we delibrately moved to the part of the school district that had bus service. The kids hated that bus, there were some brutes that "owned" the back seats, but at least they got to & from school. When I felt a bit better I tried to reassume all my duties and, of course, fell flat. After that I began to say "No" and learn how to do it withour making the other person angry or me feel guilty. That was hard!!!!!!! ; 0 There are downsides - we don't see the grandkids as much as we'd like, our daughter has a full stress life just like I had, and they are teens now, on gift ocassions we can't afford the video games & stuff they like. It was so easy with Crayolas & Hot Wheels! We're not as much a part of church life as we were, but it was too much stress to "keep up" and used up too many spoons for both Jim & me. So we're not stressed the way we were but we miss the people connection & interaction. It seems like the choice was always "Full On Craziness" or isolation. On the good side, my SLE has been quiet for about 7-8 years. But the Sjogren's has come on strong since dx'd in 2000 and now I have chronic pancreatitis as well. If I were trying to live my earlier life style I'd be wishing I were dead from the pancreatic pain. So that's my comment on that! <|8^), Nancy F , SoCal, USA Christ, Chorus, Cats, Computers
> We all know that stress is negative on our bodies. Stress can come from > good > things or bad things. Somehow we are supposed to manage stress. I'd love > to > know how to manage it because somehow stress just seems to happen.<<<< lehill1 - 20 Mar 2006 20:19 GMT Is the pancreatitis common with lupus? what are the symptoms????
> Bev, >now I have chronic pancreatitis as well. If I were trying to live my >earlier life style I'd be wishing I were dead from the pancreatic pain. > So that's my comment on that! <|8^), candi bowen - 20 Mar 2006 22:21 GMT 30 yrs ago I had acute pancreatitis when I was 18; the pain was so intense I had to be carried into the hospital on a stretcher & I'm a trooper; I'll carry Ivan (I name my my IVs) into the shower if hospitalized to get clean & I absolutely refuse bedpans, but this pain was beyond belief. I think there's a difference, pain level wise, between acute or chronic pancreatitis, but still, the pain is up there with childbirth & I've been thru both. It's a gripping pain in the middle of your upper abdomen that is beyond belief. At the time, the hosp docs didn't believe that I didn't drink because old winos get pancreatitis but at the age of 18, I didn't drink at all. Ever. Not saying I don't now, though. I've read that research is being done on early onset of pancreatitis of unknown origin is maybe a precursor of lupus. I think the UK has a heads up on that one.
Candi
> From: "lehill1" <lehill1@cox.net> > Organization: Cox Communications [quoted text clipped - 8 lines] >> earlier life style I'd be wishing I were dead from the pancreatic pain. >> So that's my comment on that! <|8^),
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