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Medical Forum / Diseases and Disorders / Lupus / February 2006Plaquenil Users
Hi Everyone, Can anyone tell me about this drug - the good, bad & ugly. My doctor wants me to start taking it. I have had discoid lupus for 18 years and am having a flare that has lasted over a year. No problems with joint pain, just rash/spots. Thank you. Diane I'm taking 400 mg and I havent noticed any side effects, but i'm also not sure if it's doing any good either (I have SLE). Apparently, people who take over 400mg might experience some vision problems. I have been taking plaquenil for about 18 months...800mg per day. So far, no problems with my eyes and my flares have been off and on. I have a myroad of autoimmune issues - SLE and Discoid Lupus, Rheumatoid Arthritis, Scleroderma, Crest Syndrome, Hashimoto's Disease, Myosititis, Vitiligo, Sjogrens, etc. This is on top of Thalassemia, which has morphed ( almost impossibly enough ) to Hemochromatosis. It's been working for me, although I do have flares of one sort or another, off and on. Before Plaquenil. I was taking Bextra. They have also prescribed Prednisone, but I am saying no, no, no. I've been taking 400mg a day for SLE for about 7 years and I haven't noticed any side effects from it. You have to have your eyes checked every 6 months to make sure it isn't effecting your vision. If it effects your eyes the drs need to catch it early so the damage won't be perment. Plaquenil was one of the first meds my rheumetologist tried on me. It worked almost immediately for my pain, aches, and movement. I don't know if it helped with my skin. I think the SPF 65 and staying away from fluorescent and halogen light did that. But I do still get the sun spots. I would say it's worth trying. -Lori > I've been taking 400mg a day for SLE for about 7 years and I haven't > noticed any side effects from it. You have to have your eyes checked [quoted text clipped - 6 lines] > the sun spots. I would say it's worth trying. > -Lori Ditto, but for about 5 1/2 years. My facial rash is still a barometer for when I need to stop working and go home, but the Plaquenil has been God-sent for the rest of the symptoms. I DO have increasing problems seeing, but the eye doctors insist it's normal middle-aged eye changes. <snif> > I have been taking plaquenil for about 18 months...800mg per day. So > far, no problems with my eyes and my flares have been off and on. I [quoted text clipped - 5 lines] > off and on. Before Plaquenil. I was taking Bextra. They have also > prescribed Prednisone, but I am saying no, no, no. Prednisone is a dirty word but at times it is the only way to get over a flare. I fight taking it every time but after weeks of being miserable start taking it again and life is worth living .... They are giving it in smaller doses to start now and it might be worth a try. I've taken plaquenil for about 21 years and it holds a lot of flare ups from getting out of control. ruth I took plaqunill for over two years it didn't do much for me ,but then again I'm a smoker.... I am on cellcept now and it seems to be helping,...I have discoid also....Good luck to you-Jenn Diane I've been on Plaquenil 200mgs bid for almost 8 yrs now. You need to see an ophthalmologist (NOT an optometrist) before starting the drug and then every 6 months. Rarely are there problems but the checkups help to prevent any long term problems. Nicole > Hi Everyone, > [quoted text clipped - 6 lines] > > Diane |
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