Thalidomide

Thread view:

Enable EMail Alerts

Start New Thread

Thread rating:

Missy - 26 Jan 2006 21:54 GMT

I was wondering if anyone out there with Lupus has been prescribed
Thalidomide and if so, how is it working?

Missy

Reply to this Message

Nicole H - 27 Jan 2006 09:01 GMT

This drug was banned in the 60's.
The drug is now being investigated for use in treating AIDS, tuberculosis,
and other illnesses.
It's only being used under a very strictly controlled environment.

>I was wondering if anyone out there with Lupus has been prescribed
> Thalidomide and if so, how is it working?
>
> Missy

Reply to this Message

Andy - 27 Jan 2006 11:43 GMT

>I was wondering if anyone out there with Lupus has been prescribed
>Thalidomide and if so, how is it working?

I understand it is now an option for Discoid lupus. Special care is of
course taken of female patients.

Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

Reply to this Message

candi bowen - 27 Jan 2006 19:43 GMT

If I remember correctly, Henrietta Aladjem took it when she went to Poland
in the late 1940's for treatment of the then obscure disease. I'll research
it. Back then, they didn't have a clue what lupus was & they 1st gave her
sulfonamides, which obviously worsened her condition. But thanks to her,
we've come a long way. Anyone know Henny? She's a really cool lady. She
started the Lupus Foundation (later grew apart because of the politics going
on) but she's still active with other organizations. I think her 1st book
was 'The Sun is My Enemy', 2nd was 'In Search of the Sun', which Dr. Peter
Schur co-authored. Many more after that too.

Candi

> From: Andy <andy@kitzbuhel.demon.co.uk>
> Organization: meathome
[quoted text clipped - 7 lines]
> I understand it is now an option for Discoid lupus. Special care is of
> course taken of female patients.

Reply to this Message