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Medical Forum / Diseases and Disorders / Lupus / January 2006circulation thing
Hi Everyone, I need a little whine and cheese session. I am really worried about my legs and feet. The circulation is really bad. My feet are ice cold all the time and to touch my legs they feel the same. I usually run hot ( the Pred) but it's like my top half is hot and below waist is cold. Last thursday she could barely feel pulse in feet. She talked about enbral after she gets look at blood work. Is anyone dealing with this. I am starting my 8th year of being Dx'es with Lupus been very difficult. Although we can go back to childhood and see where it was Lupus doing things. Mostly only Pred has controlled it. I am also have bad acid reflux, waking from a sound sleep gasping for air. Before that it has sounded like I have a really sore throat all the time. A lot of respiratory stuff in 05. And still now. Hard to breath most of the time If I miss a couple days of my daily Keflex I am down for the count. Anyway thanks for listening. The circulation thing has me scared very difficult to walk. No feeling but cold pain and Novocain numbness. John wants me to use a cane in public as my last 2 toes have kinda frozen together and make me fall if I start out on them. Sorry just needed to talk it out. My Grampa had phlebitis and my Grama wrapped hot towels around them may help Cindy W. > Hi Everyone, I need a little whine and cheese session. I am really > worried about my legs and feet. The circulation is really bad. My feet [quoted text clipped - 16 lines] > My Grampa had phlebitis and my Grama wrapped hot towels around them may help > Cindy W. Hi Cindy, I can only handle one problem at a time. GERD http://digestive.niddk.nih.gov/ddiseases/pubs/gerd/ (instructions here). Also my rules: Take time to digest before doing something that involves lifting, bending, hurrying. No juice, no pop after supper (only water). If I eat anything acid (tomatoey or fruity) have to finish up with a bit of starchey (bread after tomatoey) crusty with fruit (ie tarts or pie), no greasy. It's better for some reason if I sleep on my left side. It seems to flare about twice a month. Gargle with warm water and salt helps the throat, prevention is better. Proton pump inhibitor. J > The circulation thing has me scared very > difficult to walk. No feeling but cold pain and Novocain numbness. John > wants me to use a cane in public as my last 2 toes have kinda frozen > together and make me fall if I start out on them. Sorry just needed to > talk it out. > My Grampa had phlebitis and my Grama wrapped hot towels around them may help Hi Cindy, I'm sorry you're going through this. My feet have been swelling and fingers going numb and blue. The left worse than the right. I know that's circulatory. I just posted a link with tips, including the hot compessess. Also try sleeping with a wedge-shaped pillow to elevate your head and upper body. That helps gravity send blood down to your feet. keep moving, if possible. I do. (also might help your GERD) Hugs J Thanks J I just got back to the computer Thanks for all the links. I will try the things Have not already done. I sleep in a recliner have for a long time now do to my respritory stuff and the pain of laying down. There just seems to be so many new things lately. Seemed before that wasn't so much at once. But we will deal right.?? Anyway I thank you again I look up alotof stuff but not so good at sending links, Lately it has just hurt too much to do anything. We had a little cool snap this weekend and I can barely move. I love the cool weather we have so much hot in Texas. I will deal with the cool. Cindy W. > > [quoted text clipped - 19 lines] > > > Thanks J I just got back to the computer Thanks for all the links. I > will try the things Have not already done. I sleep in a recliner [quoted text clipped - 8 lines] > cool. > Cindy W. hmmm..that's a conundrum if you're already sleeping sitting up. my legs feel like lead (hard) and my feet are swelling (shoes and boots don't fit anymore), getting same problem - can't sleep due to pain with coldsnap and spasms in back, hands and legs. geez... I want a body transplant - head seems to work a bit ;) J you just described me to a T... the last 2 toe's on both feet feel solid. unmovible and leg's like lead like you said with intermitten sharp painful pins and needles. Having alot more spasms also yesterday noticed my socks were wet on bottem I guess after going in bath after hubby showered but didn't feel it just saw it. I am wearing 2 pair usually and a pair of knitted slippers with traction on bottem so I don't slip. That lack of feeling is weird. Then when they are ice cold to me which is almost all the time they feel normal to the touch to John my noise is doing this too always cold and drippy. LUPUS is just WEIRD WEIRD WEIRD. > > [quoted text clipped - 21 lines] > > |
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