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Medical Forum / Diseases and Disorders / Lupus / December 2005Don't mean to whine..but
Hello all, Just needed to whine a little. Here I am having a performance on Wed (Dress Rehearsal) and the real deal on Sunday, Dec. 11 with 2 performances. And.... I have this pain/ache in my upper middle Shoulder area that is about to get the best of me. It may be tension or a bad result of a massage I had last Friday. Sometimes the pain radiates down the back side of my left arm making it feel like my shoulder is out of socket. My chiropractor says that she can fix me. 2 visits have not done it yet. Thank goodness I have good insurance. Maybe it has to do with the additional practicing I'm doing. I think it has to do with my computer desk job that I have only been doing 20 + years. The only thing that will help is loritab and anti-inflammatory make my ears ring. Thank goodness this is Friday. Go home and chill out. Thanks for letting me rant, Paulette Paulette, Maybe you are just a bit more tense about this performance than you realize and that stress is showing in your tightening up those muscles! How about a Loritab, a hot soak in the tub and some "Bengay" or something like that? Sure hope you quit hurting and that you enjoy your dress rehersal and the performance on the 11th!!!!! Rant away! That is part of what the group is all about. If we don't understand no one else will. Hugs, sherry > Hello all, > Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 12 lines] > > Paulette Here's a massage for you ((((((((( )))))))))) Hugs J Ahhhh! I needed that! Thanks J I am feeling some better this weekend after I just decided to chill. I changed my sleeping pillow which may have been part of the problem. Be glad when this is over. Take care all, Paulette > > Hello all, > > Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 16 lines] > Hugs > J Paulette how about a heating pad., i have the same ache bengay seems to help., i live here in PA., and it has gotten really bitter cold out., my car doesn"t have power steering and i have to parilal park outside my house turning the steering wheel everyday when i get home from work is a big pain in the butt because it makes my shoulder so hurt much worse., i hope you are feeling better., Brenda Go right ahead and whine. I do hope you are doing better. You tend to do what I do - keep trucking and pretending nothing is wrong and then we wonder why we feel so awful! Bev > Hello all, > Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 12 lines] > > Paulette Paulette, I hope you find out what's wrong. I have the same pain that is very intense, I have Lupus, Polymyositis (muscle disease), and I'm a type 1 diabetic. I started having the same pain in my left upper back that went all the way through and also radiated down my left arm. I first thought it was a pinched nerve but it got to the point that I was having trouble breathing. I was put in the hospital and the dr's thought I had a blood clot in my lung. The Rhumy that was brought in said it was my muscle disease constricting my lung and the lupus was attacking the lining of the lung. She gave me 3 shots of steriods in the trigger points of the pain, but that shot my blood sugar up to stroke level and they had to slam me with alot of insulin. It took a good month for the pain to ease. That was in March, now the pain is severe again and Im not getting any relief from the drs because I'm limited on what I can take, so its just painkillers. I'm hoping you dont have as much going on with your condition but you described how my pain started so I'm interested in at least knowing what you find out and if you find anything to relieve the pain. Sorry this was so long. Thanks, Rhonda >Hello all, >Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 12 lines] > >Paulette  SignatureRHONDA Paulette, I hope you find out what's wrong. I have the same pain that is very intense, I have Lupus, Polymyositis (muscle disease), and I'm a type 1 diabetic. I started having the same pain in my left upper back that went all the way through and also radiated down my left arm. I first thought it was a pinched nerve but it got to the point that I was having trouble breathing. I was put in the hospital and the dr's thought I had a blood clot in my lung. The Rhumy that was brought in said it was my muscle disease constricting my lung and the lupus was attacking the lining of the lung. She gave me 3 shots of steriods in the trigger points of the pain, but that shot my blood sugar up to stroke level and they had to slam me with alot of insulin. It took a good month for the pain to ease. That was in March, now the pain is severe again and Im not getting any relief from the drs because I'm limited on what I can take, so its just painkillers. I'm hoping you dont have as much going on with your condition but you described how my pain started so I'm interested in at least knowing what you find out and if you find anything to relieve the pain. Sorry this was so long. >Hello all, >Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 12 lines] > >Paulette SignatureRHONDA Thank you all for your concern, Rhonda, I hope you get to feeling better. Makes me wonder if my problems could be similar to yours because it seems like it is always somewhere on my left side of my body. I am wondering if it is neurological or something. Anyway, I am some better but I am still having to take Loritab at night. I think the Chiropractor is helping. My posture is horrible and I slouch bad at my desk at work. She even GAVE me a support for my chair that she had to see if it would help me. I was feeling better this weekend with concentration on relaxing and de-stressing myself but Wham as soon as I sat down in my chair at work it was back. My company has had to cut back and I know they won't buy me another chair so I will have to do the best I can. Maybe after this weekend things will get better. When I first came down with my Lupus 29 years ago, I too had Polymyositis. I know what that is like. The only thing that helped me at that time was Prednisone. They took 4 years to get me off of it. I will pray that you will get through this. Is the cold weather bothering you? Are you tense like I am when I hurt. I think sometimes it is a vicious circle. The more you hurt, the more tense you get which makes you hurt more. Hot packs seem to help sometimes but if it has to do with inflammation they say use ice, which being cold natured is not fun. Keep me posted on how you are doing, Many Hugs, Paulette > Paulette, > I hope you find out what's wrong. I have the same pain that is [quoted text clipped - 34 lines] > -- > RHONDA Paulette, Thank you for writing back. My problems all seem left sided too. The hydrocodone is the only thing I can take at this point. I'm afraid to go to a Chiropractor because I've got Degenerative Disk Disease too, (my family dr calls me his train wreck) haaha, I'm afraid if someone starts twisting me around, I might break into pieces, ha. My daily ritual for the nueropathy in my feet is to take a painpill, wrap my feet in cold rags, then once they cool down, put on thick socks to warm them back up. By then the painkillers usually kick in just to take the edge off the pain. I'm so glad to find a place to talk to people that actually understand how this all feels. Its hard for some people to imagine being in extreme pain 24/7. But I'm a single mother of 4 and the only income for my kids so I am desperate to find some relief, I even recently upped my life insurance so my kids will have something since my health is deteriorating fast and I dont know how long I can work. I've had 4 different drs tell me I shouldnt even be alive after they saw my test results. As far as the cold, yes with my pain already being so bad and all over, the cold just jumps in there and makes it worse. Everyone on this site sound very caring and helpful, I'm new to this site but anxious to keep tabs on how you and everybody is doing---and SIT UP STRAIGHT! haha, just kiddin, stay safe! Rhonda >Thank you all for your concern, > [quoted text clipped - 29 lines] >> -- >> RHONDA SignatureRHONDA Rhonda, If you ever need someone to listen, I'm here. You can email me personally if you want. If you don't get through my work email, alert me here and I can respond to you and give you my home email. Since you take Hydrocodone like I do, do you have any problems with ringing in your ears? Many Gentle Hugs, Paulette > Paulette, > Thank you for writing back. My problems all seem left sided too. The [quoted text clipped - 61 lines] > Message posted via MedKB.com > http://www.medkb.com/Uwe/Forums.aspx/lupus/200512/1 Paulette, I so much appreciate you, I know you're going through alot yourself, the Hydrocodone doesnt make my ears ring thank goodness, if anything happens with this medicine, I will be done for since I cant take anything else and the only other thing that helped me before was chemo the Dr used to knock down my immune system but it was harsh on my body and I was considered high risk for that too. I have to get my records from the hospital on the chemo since I may have to have that again since the illnesses are getting so bad, its hard to find a Dr that knows the mixture and the original Rheumy that ordered it is no longer in my area. I wasn't able to contact you anywhere else but here. Take care! >Rhonda, >If you ever need someone to listen, I'm here. You can email me personally if [quoted text clipped - 12 lines] >> -- >> RHONDA SignatureRHONDA > Hello all, > Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 8 lines] > + years. The only thing that will help is loritab and anti-inflammatory make > my ears ring. Thank goodness this is Friday. Go home and chill out. So it's the 11th Paulette and I'm betting you're all tuckered out. Rest and we'll see you when you're feeling up to it. Many hugs J Don't mean to bring everyone down but the 11th was a bust. I froze on both performances. I talked with my daughter which is used to performing under pressure in front of people. She said that until I resolve some self-esteem issues I will continue to have problems. I am really down right now. All that practicing for naught. Right now I feel like I not only let the orchestra down but the Lord as well. I am on the verge of just giving up playing. I enjoy my guitar and want to share it with other people but maybe it has to do with my lupus (not looking for excuses) but my heart was beating out of my chest and my mind went blank in mid stream both times. Right now it has ruined my Christmas. It will be hard to go to orchestra practice tomorrow night. Thank you for thinking about me. Paulette :( > > Hello all, > > Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 13 lines] > Many hugs > J Paulette, Don't be so hard on yourself....maybe you just need to share your guitar and the pleasure of the music with a smaller group till you are comfortable with "lots" of people being present! Don't let this ruin your holiday!!!! The Lord understands and he would not want this to spoil the celebration of his birth!!!!!!!!!!!! ( I never have been able to stand up in front of a group of people and "perform" and even taking speech class in high school didn't help....could write a fantastic speech just couldn't deliver it) Hugs, Sherry Paulette, Please don't give up on your playing. I'm still a newby to this site but after looking back on your postings, sweetie, you've had alot on your plate and Lupus is a very real medical condition not an excuse. You know how it affects everything in your daily routine, don't think for one minute it's not going to try to upstage your performance. Maybe you should have added a repeat performance of the triple-half-gainer you did over your guitar (back in July wasnt it?) haha, just kidding--just tryin to cheer you up. You didnt let anyone down, you just have high standards for yourself and maybe concentrating way too hard, I hope you go to your practice session and loosen up and play for yourself, don't judge yourself on this one performance, you'll surely have many good ones to look back on if you give yourself a chance. I'm sure quite a few in that orchestra have had their share of oopsies that had them mortified and I'm sure they were silently pushing you to keep going. The lord has a very special place in heaven for people like you. Even though you've been dealing with your own medical problems and stressing about this performance, you took the time to care about my problems without knowing much about me. The medical problems you have been having, I've had almost identical problems myself, the sciatic (sp?) nerve problems and all. Yet I wouldnt have had the energy or drive to get up to perform what you did, on that I applaud you. You've been the same caring way with others on this site. You know you wont be happy if you stop playing---something that you obviously love to do----so let us know how practice goes and when we can expect your next upcoming events--we're all behind you! Many hugs to you! Rhonda >Don't mean to bring everyone down but the 11th was a bust. I froze on both >performances. I talked with my daughter which is used to performing under [quoted text clipped - 17 lines] >> Many hugs >> J SignatureRHONDA Thank you Rhonda for your kind words, I am feeling better about some things. I went to the church's counselor and we have a plan to help me with my self image and confidence. I had my guitar lesson yesterday. My teacher has a plan too. We are going to work up at least 5 pieces for me to play and then I am going to go around the area hospitals and nursing homes a lunch time with him to get me used to playing in front of people more. He said the more you do it the less it will bother you. At least I will be able to hopefully help someone and share my interest like I want to. He said playing in waiting rooms is very comforting to the people there. Hope I can work out something at work to do it. Shell shocked, Paulette > Paulette, > Please don't give up on your playing. I'm still a newby to this site [quoted text clipped - 57 lines] > Message posted via MedKB.com > http://www.medkb.com/Uwe/Forums.aspx/lupus/200512/1 "Mermaid" wrote in message <My teacher has a plan too. We are going to > work up at least 5 pieces for me to play and then I am going to go around > the area hospitals and nursing homes a lunch time with him to get me used [quoted text clipped - 4 lines] > interest like I want to.> > Paulette What a wonderful thing to do Paulette! I think that playing for elderly and/or sick people will be such a boost to their spirits and at the same time boost your self confidence, IMO greatly! You have a gem of a teacher and I am sure you will be able to show your stuff without 'nerves' in no time at all with this great 'idea' the two of you have put together! Having been in hospital as a 'patient' and 'patiently waiting' I know your music will be very welcomed! Good luck and I also wish you a happy holiday along with warm wishes for a truly special and healthy new year! hugs, Shelagh http://clik.to/lupus You just whine anytime. I took a fall the other day my two smallest toes on both feet have been like perivial frozen thing for a couple months and i stood up and on the side of my foot and just went down. On the way down was trying to miss the fire place so twisted and landed on shoulder and knee so have a nice skinned knee and sore shoulder to middle back BUT I did miss the fire place. I am seeing my neurologist next week so will discuss the toes. Also really freezing feet wearing 2 pairs of socks even in day time. I guess I know thats Raynauds did I spell it wrong? Ok I will stop whining now Thanks and I do Hope everyone has a Happy Holiday. I am a bit Foggy today worried bout my friend and my other friends Mom. I appreciate all of you so much a place to go and express my feelings Love Cindy W. >Hello all, >Just needed to whine a little. Here I am having a performance on Wed (Dress [quoted text clipped - 14 lines] > > Cindy, I hope you get good news on your friends, and like I said in another posting to you, I hope you find out soon whats going on with that fall and your eye problem. My day's been depressing. My younger sister passed away 3 yrs ago on this day, she had just turned 39 3 days before. She had Schleraderma, Polymyosistis and cancer. It was the Schleraderma that actually got her. The Chemo had been keeping it at bay but had to be stopped for a surgery. It came back with a vengence and shut down her kidneys and other organs. We had always shared info with each other on our auto-immune diseases. She was also my best friend. You just never know how much these diseases can progress or what turn they'll take. I know you all know how important it is to keep on top of it all, but when you're going thru it, it gets really over- whelming. My diseases are really out of control myself even though I battle it every day. I know it's alot to deal with since you're trying to watch over your friends' ordeals and yet, be having some serious medical problems of your own. Best thoughts to you and prayers to you and your friends! Rhonda >You just whine anytime. I took a fall the other day my two smallest toes >on both feet have been like perivial frozen thing for a couple months [quoted text clipped - 13 lines] >>Just needed to whine a little. Here I am having a performance on Wed (Dress >[quoted text clipped - 14 lines] SignatureRHONDA Thank you so much and I am sorry about the loss of your sister. We have lost so many in the last few years all four of our parents and close friends and a little one to cancer she was 4 New years eve will be 6 years still hard to understand. I miss everyone so much feels weird not to have that older generation now we are not sure I like that. Anyway thanks for the kind words there is always some one here that understands and that really does help Hope you have a good holiday and feel well too Love Cindy W >Cindy, >I hope you get good news on your friends, and like I said in another [quoted text clipped - 48 lines] > > |
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