I just found out i have lupus

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Brenda - 18 Nov 2005 20:25 GMT

I been going to the doctor since the begining of summer with a skin
rash, first they said it was ringworm gave me cream it went away with
the cream came back got a cream again it came back i finally went to see
a dermatologist, she did a biopsoy, i just found out today its lupus, i
went for blood work today, results will take a week to come back, my
family doctor wants me to see a rhumatologist after he reviews my blood
results, what am i going to expect??? i am scared to death, is this
fatal??? Can someone please help me.,Brenda

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Andy - 18 Nov 2005 21:46 GMT

>I been going to the doctor since the begining of summer with a skin
>rash, first they said it was ringworm gave me cream it went away with
>the cream came back got a cream again it came back i finally went to see
>a dermatologist, she did a biopsoy, i just found out today its lupus,

Sounds like Discoid Lupus

> i
>went for blood work today, results will take a week to come back, my
>family doctor wants me to see a rhumatologist after he reviews my blood
>results, what am i going to expect???

See http://www.northeastlupus.org.uk

and in particular

http://www.northeastlupus.org.uk/faqshets/faqs20.htm

>i am scared to death, is this
>fatal???

That would be most unusual - and getting the diagnosis makes it highly
likely that you'll get the correct treatment.

Read things; come back here and ask questions; and avoid direct
sunlight.

>Can someone please help me.,Brenda

Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

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Cynthia Ward - 19 Nov 2005 01:34 GMT

You have found a wonderful place for support and information. Andy is so
right about the staying out of the sun, another thing that will be
helpful is to start a journal any other symptom's or other things that
you have been feeling. I have been battling lupus for almost eight years
and when first diagnosed allot of my symptoms didn't have allot in
common ,but I had a great family doctor and she put it together fast.
So as Andy said read the info and come here anytime for questions and
support you will find it.
Good Luck
Cindy W.

>> I been going to the doctor since the begining of summer with a skin
>> rash, first they said it was ringworm gave me cream it went away with
[quoted text clipped - 23 lines]
>
>> Can someone please help me.,Brenda

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Andy - 19 Nov 2005 10:07 GMT

>You have found a wonderful place for support and information. Andy is
>so right about the staying out of the sun, another thing that will be
>helpful is to start a journal any other symptom's or other things that
>you have been feeling.

Good point - especially as some symptoms are caused by something you did
(or that happened to you) several days beforehand.

Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

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J - 19 Nov 2005 09:33 GMT

> I been going to the doctor since the begining of summer with a skin
> rash, first they said it was ringworm gave me cream it went away with
[quoted text clipped - 4 lines]
> results, what am i going to expect??? i am scared to death, is this
> fatal??? Can someone please help me.,Brenda

Hello Brenda and welcome.
This is a nice group for support and sometimes lots of chuckles too.

I gather they do the bloodwork to rule out systemic Lupus (SLE)
http://www.ghg.net/schwerpt/ASLFAQ/symptoms.htm#discoid

I suppose discoid is difficult to cope with because there's outward signs
whereas with SLE, some bemoan the fact that they "look so good" (blush on
the face) people don't take their symptoms seriously. Can't win with one nor
the other.

We usally tell people to watch out for health insurance increases/high rates
or not able to get health insurance, with a Lupus diagnosis, but I don't
know if that happens, if the diagnosis clearly reads "Discoid". Maybe it
does, if some of the medicines are the same. I'll post a Discoid Lupus
website separately.
Hope all goes well with the rheumie.

Keep in touch
J

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