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Medical Forum / Diseases and Disorders / Lupus / November 2005

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success with echinacea/perpetual respiratory infections?

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pellmellwillynilly@hotmail.com - 15 Nov 2005 04:52 GMT
OK, I know echinacea is supposed to be bad for lupies. I'm also
desperate at this point. I had either pneumonia or bronchitis every 6-8
weeks from Oct. 2004-early March 2005. This year, the bronchitis hit in
late September, I just got over the pneumonia and already have the next
bronchitis.

A guy in the sinusitis ng says a cocktail of echinacea, astragalus and
elderberry have been the answer for him. (He doesn't have lupus.)

Have any lupies here been successful taking echinacea and/or the other
herbs mentioned? If not, has anybody had the same perpetual respiratory
problems and tackled them successfully with some process other than the
above herb cocktail?
dropbear1@gmail.com - 15 Nov 2005 05:16 GMT
Those herbs have no effect on the immune system, other than as a
placebo. If you have pneumonia or bronchitis, you should see a doctor
and get actual medical treatment with proven medications.
KCat - 15 Nov 2005 16:58 GMT
i don't have any answers for you here but...

even though we are constantly warning folks to be leery of preparations that
claim to boost the immune system, i have heard of some folks who take some
of these supplements without ill effect and perhaps with some help.

So my feeling is that really, it's very much a YMMV thing and that if you
want to try it, then you should as long as you talk to your doctor about it
first.  They need to know what you're doing whether your response is good or
bad.

also, make sure and keep track of when you started it and perhaps keep a
general symptom diary for a few weeks.  Responses (either way) can be hard
to track sometimes without good records.  Also, i'd recommend that you have
a symptom diary at *least* one week before starting the regimen.  you need a
baseline.  otherwise i can be even harder to figure out if some reaction or
improvement you're having is due to the addition of the supplements or just
chance because you happened to get too much UV the day after you started the
med or something like that.

Let us know what you decide to do and if you do go on it, if you get any
relief.  We're all far too different medically to totally disregard
treatments that are not high risk.  I suspect this is a low risk regimen.
William R  Thompson - 16 Nov 2005 09:41 GMT
> OK, I know echinacea is supposed to be bad for lupies. I'm also
> desperate at this point. I had either pneumonia or bronchitis every 6-8
> weeks from Oct. 2004-early March 2005. This year, the bronchitis hit in
> late September, I just got over the pneumonia and already have the next
> bronchitis.

> A guy in the sinusitis ng says a cocktail of echinacea, astragalus and
> elderberry have been the answer for him. (He doesn't have lupus.)

I'd be leery of taking any sort of unprescribed "natural" medication.
You never know what the active ingredients are, in what quantity you
receive them and how they might interact with anything you're already
taking.

--Bill Thompson
KCat - 16 Nov 2005 18:06 GMT
news:t9Def.1051$N45.21@newsread1.news.atl.earthlink.net...

> I'd be leery of taking any sort of unprescribed "natural" medication.
> You never know what the active ingredients are, in what quantity you
> receive them and how they might interact with anything you're already
> taking.
>
> --Bill Thompson

True - when I have added supplements, I've taken the list of ingredients in
to the doc to get her approval.  One big risk is if they use alfalfa as a
base for the supplement.  in small doses, most lupies don't react to this.
But if it's something you end up taking daily and in significant amounts you
could get in trouble.  Alfalfa (and other legumes) are thought to cause
inflammation and all the more so in someone with autoimmune disease.
Herbwormwood - 18 Nov 2005 14:52 GMT
X-No-Archive

Elderberry is a food, not a natural medicine.
We  harvest and use fresh  elderberry here in UK  to make cordial, pies
and to add to jam.
People  also make elderflower cordial and fritters.

I have never used the other two things so I can't comment. However I
do take 1000 mg time realease vitamin c for years now and I think that
keeps some of the bugs away.
If you havea course of  antibiotics take live natural yoghurt to
replace the natural  gut bacteria as antibiotics can kill them, leaving
you vulnerable to other things.
Don't smoke or breathe in other' s smoke. It messes up your lungs.  Eat
healthy  with plenty of fresh fuit and vegs. Drink enough fluids (you
need more when you have a respiritory infection).  Keep warm at all
times. We use Olbas Oil to put in the bath (soothing vapours) on
hankies and in aromatherapy burners. It helps you breathe more easily.
Do you take immunosupressive drugs such as steriods, imuran, cytoxan,
etc, if so, have appropriate blood tests reguarly to ensure your immune
system is functioning normally.
Take care,
Herb,
Tyneside,
UK
By the way I have had lupus over 26 years now.
 
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