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Medical Forum / Diseases and Disorders / Lupus / December 2005Need help for my mom, PLEASE..
My mom was officially diagnosed with Lupus in 1988. This last year has been the toughest on her and we find even more challenges because she has state medical. Unfortunately, due to the illness she was forced to retire from a great job at a very early age, in her 30’s, and so did not have the equity built up in her work history in order to continue her medical from her employer nor retirement money either. It is awful how she is mistreated and forced to suffer because she doesn’t have money. She needs help badly. Recently, a new local pharmacist that came to town complained to her Dr. about how much Darvocet my mom has been taking. But it has helped so much over the years with her pain. Because of this pharmacist the Dr. has now taken my mom off this med all together and it worked so well, now her blood pressure has skyrocketed and she has endured two TIA’s recently which makes us very nervous. She has NEVER, EVER had issues with her blood pressure until she was removed off of the pain meds. He did not even try to reduce the Darvocet first he just stopped it cold on her and replaced it with something called Darvon that doesn't even touch the pain. We have expressed our feelings to him on many occasions now and he ignores our plea's. I believe this is a common sense issue, that by removing the pain reliever meds it has caused her pain to become more severe, which causes stress, which would cause high blood pressure. Doesn’t this make sense? This has been the worst year for her and we need a new Dr. please that will accept her med-i- cal and that is not afraid of a pharmacist because his/her patient is suffering. We need a Dr. that will help her live a quality of life and NOT a QUANTITY of life. Can anyone help us, PLEASE? We need a Dr. in the Chico, CA or Sacramento, CA area quickly that isn't afraid to help my mom with her get rid of her pain and will take state medical before my mom has a full blown stroke that she cannot come out of. We are willing to travel. Please can anyone help us. Thank you, Rhonda M. Caldwell Arcaldwell04@yahoo.com hello dear rhonda.i understand your mum.i have my group in which i try to help in more study about that killer and like whith therapy,research.maybe you can to find a something useful for your mum from my group.all info i put from our russian scienists.my group is kill a lupus.i written about that in group.feel free applu your name and i will accept you.thank you.i hope that one day we kill lupus!!take care,good days,julia > My mom was officially diagnosed with Lupus in 1988. This last year has been > the toughest on her and we find even more challenges because she has state [quoted text clipped - 27 lines] > medical before my mom has a full blown stroke that she cannot come out of. We > are willing to travel. Please can anyone help us. Hello Rhonda, There's some posters here from California. Hang in there and hopefully you'll have a helpful reply soon. Hugs J Rhonda, Welcome to the group. I am one of the posters from CA. I live about 90 miles south of Sacramento. Unfortunately I have not found a doctor that is really willing to deal with the pain either. I have had numerous people suggest that I go to a "pain specialist" so maybe that would be an option for your mom. I think that some of these Docs and the pharmacists should walk a week in our shoes. I bet after a day they too would be asking for the same help that so many of us are unable to find. Mair, also from CA and closer to the Bay area seems to have luck with her doc....so maybe she can jump in and let you know who she sees. I wish you luck in finding a new physician or at least a new pharmacy! Hugs, Sherry > My mom was officially diagnosed with Lupus in 1988. This last year has > been [quoted text clipped - 46 lines] > Rhonda M. Caldwell > Arcaldwell04@yahoo.com I would love to hear from Mair. If we don't do something soon I am going to lose my mom to a stroke. The Dr. has not even addresses her high blood pressure at this point and I am afraid he might never or will too late. I don't mind driving my mom to the bay area if I must. Whatever it takes. I just want to see her back the way she was 6 months ago. Before this Dr. began making all these changes to her meds. I am new to this how do I contact Mair? Thanks, Rhonda >Rhonda, > [quoted text clipped - 19 lines] >> Rhonda M. Caldwell >> Arcaldwell04@yahoo.com > I would love to hear from Mair. If we don't do something soon I am going to > lose my mom to a stroke. The Dr. has not even addresses her high blood > pressure at this point and I am afraid he might never or will too late. I > don't mind driving my mom to the bay area if I must. Whatever it takes. I > just want to see her back the way she was 6 months ago. Before this Dr. began > making all these changes to her meds. I am new to this how do I contact Mair? Hopefully she'll she your post. Did you see the post about stroke? Hugs J Hi Rhonda, Sorry about your mom. I agree with your theory that the removal of pain meds caused the rise in her blood pressure. It makes sense to me that it is her body's reaction to pain. Perhaps you could find a pain clinic in your area. That is the only thing that comes to my mind at the moment. It is a quality of life issue. I don't understand doctors sometimes. They just don't get it, do they? Or maybe they really don't care, because it isn't one of their family members who is suffering. I wish you good luck in getting help for you mother. BJ-Sk. Canada > My mom was officially diagnosed with Lupus in 1988. This last year has been > the toughest on her and we find even more challenges because she has state [quoted text clipped - 9 lines] > the Dr. has now taken my mom off this med all together and it worked so well, > now her blood pressure has skyrocketed and she has endured two TIA's recently > which makes us very nervous. She has NEVER, EVER had issues with her blood > pressure until she was removed off of the pain meds. He did not even try to [quoted text clipped - 5 lines] > meds it has caused her pain to become more severe, which causes stress, which > would cause high blood pressure. Doesn't this make sense? This has been the > worst year for her and we need a new Dr. please that will accept her med-i- > cal and that is not afraid of a pharmacist because his/her patient is [quoted text clipped - 10 lines] > Rhonda M. Caldwell > Arcaldwell04@yahoo.com > My mom was officially diagnosed with Lupus in 1988. This last year has been > the toughest on her and we find even more challenges because she has state [quoted text clipped - 32 lines] > Rhonda M. Caldwell > Arcaldwell04@yahoo.com Mair's had computer problems. We're trying to get her rheumatologist's name. If you get desperate you might try the local support groups http://www.saclupus.org/supportgroups.htm Sacramento meeting would be the 20th of this month. (dobule check that by calling first because it's so close to Xmas) J |
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