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Cynthia Ward - 13 Oct 2005 19:56 GMT

Hi Everyone, I finally got in with the pain doc. He was pretty good very
Lupus educated and read my little bio that is first test, if they
ignore it I know I probably don't want to work with them. He listened to
all I had to say and did not dismiss any of my input. Anyway he wants to
try me on Kadian twice a day and Pomelo once a day I have looked them
up and Kadian is a form of morphine and Pomelo is actually and
antidepressant for thins like add and so on but also for some pains. And
to keep the lidakane patches for the arm. and back if I want. He
believes I am dealing with RSD but was before the finger break. It does
not go away but is controllable. And we may also be able to control my
back and hip and joint pain. So I am a little hopeful here. Will give it
a chance
I would love any input if anyone has been prescribed these meds. I am
starting Saturday so if I do get real sleepy or have bad reaction I
don't have to go anywhere and John will be home. Thanks for listening.
Life has literally been a pain the last few month way more than usual
and I have not been handling it to well So maybe some relief. i have
always been proud of the fact that I have handled the pain part well but
it really snuck up on me this year.
Speaking of pain did you hear about the woman that just gave birth to
her 16th child in 17 years GOOD GRIEF CHARLIE BROWN
(0:
Cindy W.

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Candi Bowen - 14 Oct 2005 00:20 GMT

Hi Cindy, I haven't tried those particular meds but I know the
antidepressants in small doses are supposed to help the pain receptors in
your brain so you don't feel pain as much. When they prescribed them for me,
my doc assured me that it wasn't for depression, although I WAS depressed
because of constant pain, but to change my brain chemistry so I wouldn't
(maybe) feel the pain as much. 16 children?! God bless her; glad it's her &
not me. I had the baby from hell. He's 28 now & wonderful but the 1st 3
years - well . . .

Candi
----------

>Hi Everyone, I finally got in with the pain doc. He was pretty good very
>Lupus educated and read my little bio that is first test, if they
[quoted text clipped - 19 lines]
>(0:
>Cindy W.

Reply to this Message

Cynthia Ward - 14 Oct 2005 04:57 GMT

Thanks Candi he didn't explain that but I didn't know what it was till
I looked it up. That makes sense. The one thing I have never had is
depression but I do get mad at the limitations. I have always been
pretty tough and to admit I can't do something makes me mad. Giggle been
there my daughter Bless her heart was a incredibly fussy baby. She had
colic so bad and was extremely shy but so pretty ( not just mom talking)
that everyone always wanted to touch her she had the beautiful blonde
Shirley Temple riglets. Green eyes. She would just turn inside out and
cry when ever anyone said anything to her. She had tantrums I had to
wait to soothe her she would not talk to anyone except us and her
brother her talked for her she had hearing loss due to allergies. We
really worried about school. She never slept. It was rough till she was
about school age. She settled in about half way through kindergarten.
My son was so easy as a baby and child I always said if I had another
child it would be a holy terror lol they are 7 years apart thank
goodness!! He did make up for it as a teen really really rough.
But she is an absolute delight now beautiful and bright and so brave.
She nurtures me in a way no one can she can always tell when I am going
to have a seizure before I can sometimes. She goes right into nurse
mode. She can look in my eyes and tell what kinda day I have been having
and will cook dinner or clean up.She and my husband and son are the top
of my Hero list. I would be lost with out her. I am in awe that she came
from my husband and me. We really created something amazing and I hope I
get to see her as a full grown woman and get to spend sometime with that
beautiful woman that is what I want more than anything in this world.
Because I know she is going to be great in anything she takes on. I
believe it is our jobs in life to improve on what we were born to. My
childhood was a little rough my mom was an alcoholic and a very wounded
soul. I learned to forgive her I know she did the best she could with
what she knew how to do. And I never did to my kids what she did. So I
improved that for her. And I know my daughter will be braver than me and
do more in life than I did. But I would never trade being home with my
kids and I thank my husband for that. It was hard at times but it
worked. I am especially glad now as realistically I may not share in
there future, I do plan on it but I know the risks of my situation and
make every day count. lotsa I love yous and hugs. I also keep 3 journals
one for each child and one for my hubby thoughts and poems and quotes
and so on something personal from me to them. just so they know
ok I guess I needed to talk a little hope I didn't carry on to long
thanks again for listening you all are so important to me.
I bought 50 Lupus wrist bands I am going to put them in christmas cards
and such (0: Just liked the idea
Thanks again
Love Cindy

>Hi Cindy, I haven't tried those particular meds but I know the
>antidepressants in small doses are supposed to help the pain receptors in
[quoted text clipped - 35 lines]
>>
>>

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Nicole H - 14 Oct 2005 05:15 GMT

do you mean Pamelor aka NORTRIPTYLINE
Anti-depressants (SSRIs, SNRIs, tricyclics) are frequently used in chronic
diseases for things other than depression.
Serotonin helps raise the pain threshold, helps with sleep. Serotonin and
its derivatives regulate hunger, thirst, mood, breathing, sleep, confidence,
perspective, self esteem, empathy, attitude and many other things.

Tricyclics (Elavil, Pamelor, etc) are used in lower doses than used in
depression but tend to be more sedating and help to cycle sleep. Elavil has
helped many people receive that restorative sleep so many of us don't get.

As you know, Kadian is a time released morphine. I use Avinza which is a 24
hr dose of morphine.

I'm interested in the lidocaine patches. Let me know how those work. I
have an area that is constantly in pain despite the Avinza and Norco.

Take care
Nicole

> Hi Everyone, I finally got in with the pain doc. He was pretty good very
> Lupus educated and read my little bio that is first test, if they ignore
[quoted text clipped - 18 lines]
> (0:
> Cindy W.

Reply to this Message

Cynthia Ward - 14 Oct 2005 05:19 GMT

The patches are great no effects just relieves the pain in that spot
best thing I have tried in ages. Yes on the pomelo that makes sence now
He just said it works with the Kadian but didn't go into detail.
Thanks
Cindy W.

>do you mean Pamelor aka NORTRIPTYLINE
>Anti-depressants (SSRIs, SNRIs, tricyclics) are frequently used in chronic
[quoted text clipped - 43 lines]
>
>

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bo.morgan@janus.com - 17 Oct 2005 15:24 GMT

Hi Cindy, I've been on Kadian for a few years now. Kadian is great
because it doesn't feel like a narcotic. You don't get the highs and
lows of many pain meds. I'm on 60mg twice daily. I suggest that you
take 1 in the morning and 1 at night to get the most even results.
Kadian keeps my constant joint pain mostly under control. I also take
Roxicodone for more severe pain. The only side effects that I have
experienced are: (how should I say this discreetly? you might get a
bit plugged-up), your skin might itch, and sometimes it's hard to
swallow (weird). Chronic pain destroys your quality of life. Don't be
a hero, get the relief you need.

Let us know how you are doing.

~Bo

> Hi Everyone, I finally got in with the pain doc. He was pretty good very
> Lupus educated and read my little bio that is first test, if they
[quoted text clipped - 19 lines]
> (0:
> Cindy W.

Reply to this Message

Cynthia Ward - 18 Oct 2005 02:06 GMT

You are right my fingers and wrists and ankles and toes which always
hurt feel much better. And I as well don't feel any highs or lows just
relief. I am taking one am and one pm. I have felt a little itchy and
have had a sore throat but better today. As far as the "other thing" I
would not mind a little stopped up Hope that was not to graphic. (0:
Anyway I think this just may work. I really have felt less pain with out
too much trouble. I also have the patches and they help alot. I can cut
a small piece and put right on painful spot.
Just nice to have something work for a change.
Cindy W.

>Hi Cindy, I've been on Kadian for a few years now. Kadian is great
>because it doesn't feel like a narcotic. You don't get the highs and
[quoted text clipped - 39 lines]
>
>

Reply to this Message

Sherry - 18 Oct 2005 03:53 GMT

Cindy,
I'm so glad that your new meds have you feeling better as far as your pain.
I hate that so many of the meds just make your mind not care that you are
hurting or don't do anything but put a big dent in your pocketbook.

Hugs,
Sherry
You are right my fingers and wrists and ankles and toes which always hurt
feel much better. And I as well don't feel any highs or lows just relief. I
am taking one am and one pm. I have felt a little itchy and have had a sore
throat but better today. As far as the "other thing" I would not mind a
little stopped up Hope that was not to graphic. (0: Anyway I think this just
may work. I really have felt less pain with out too much trouble. I also
have the patches and they help alot. I can cut a small piece and put right
on painful spot.
Just nice to have something work for a change.
Cindy W.

bo.morgan@janus.com wrote:

Hi Cindy, I've been on Kadian for a few years now. Kadian is great
because it doesn't feel like a narcotic. You don't get the highs and
lows of many pain meds. I'm on 60mg twice daily. I suggest that you
take 1 in the morning and 1 at night to get the most even results.
Kadian keeps my constant joint pain mostly under control. I also take
Roxicodone for more severe pain. The only side effects that I have
experienced are: (how should I say this discreetly? you might get a
bit plugged-up), your skin might itch, and sometimes it's hard to
swallow (weird). Chronic pain destroys your quality of life. Don't be
a hero, get the relief you need.

Let us know how you are doing.

~Bo

Hi Everyone, I finally got in with the pain doc. He was pretty good very
Lupus educated and read my little bio that is first test, if they
ignore it I know I probably don't want to work with them. He listened to
all I had to say and did not dismiss any of my input. Anyway he wants to
try me on Kadian twice a day and Pomelo once a day I have looked them
up and Kadian is a form of morphine and Pomelo is actually and
antidepressant for thins like add and so on but also for some pains. And
to keep the lidakane patches for the arm. and back if I want. He
believes I am dealing with RSD but was before the finger break. It does
not go away but is controllable. And we may also be able to control my
back and hip and joint pain. So I am a little hopeful here. Will give it
a chance
I would love any input if anyone has been prescribed these meds. I am
starting Saturday so if I do get real sleepy or have bad reaction I
don't have to go anywhere and John will be home. Thanks for listening.
Life has literally been a pain the last few month way more than usual
and I have not been handling it to well So maybe some relief. i have
always been proud of the fact that I have handled the pain part well but
it really snuck up on me this year.
Speaking of pain did you hear about the woman that just gave birth to
her 16th child in 17 years GOOD GRIEF CHARLIE BROWN
(0:
Cindy W.

Reply to this Message