Muscles tightening?

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Lisa - 27 Sep 2005 12:39 GMT

Good Morning,

I will throw this question out at you guys since my Dr. did not want to
even hear about it.

Do any of you experience your let muscles tightening up suddenly to the
point that it is almost too painful to walk? That is the only way that
I can describe it, my muscles feel as if the shrink from one minute to
the next.

Thanks!

~Lisa~

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janersagain - 27 Sep 2005 17:35 GMT

Lisa
you need a new doctor. If the doc won't listen to you then he ain't worth
the money to go to. Let alone treat you.
Is there a way to get to another rheumy? I mean you are not going to get
relief if he won't treat or find out why you feel like you do.

There is myositis which is muscle inflammation that is very painful, Fibro
is painful and that is muscular "they think". There are lots of other
reasons to why muscles tighten, can be due to electrolyte imbalance.

You need to contact your family doc or someone about this. Where do you
live? Is there someone else you can go too? Did this doc diagnose you at
all with lupus or any connective tissue disease?

Hugs to you
janers

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Lisa - 28 Sep 2005 02:42 GMT

Hi :)

Wow, thanks for the replies. My primary Dr. was the one who diagnosed
me with Lupus. It took him TWO years to finally take me seriously. He
swore that my problems came from my thyroids but when the test results
came back and he saw that he was wrong he got irate. Long story short,
I ended up with this rheumy because my PCP said...and I quote..."Your
symptoms are part of your desease and there is no cure for what you
have. I can no longer care for you" Yea, sure, this after I begged
for some kind of test to tell me why I was sooo anemic, why my hair
kept falling out, why my joints hurt so much etc.

I can't stand him BUT my insurance is an HMO and I feel that at least
the rheumy give me my plaquinil. I know that they don't care about
how I feel but I, at this point, have lost all hope in Dr's. I feel
that if I go looking for another PCP, it's like winning the lottery,
the odds are against finding one who A: cares, B: knows about Lupus C:
will try to help.

I will do some research on my own on the myositis and fibro.

My legs to go weak and an very rare occassions do they give out. They
mainly just HURT and kind of come to a hault when my muscles shrink.
(geezz...who could understand that description right?? lol)

Anyway, I appreciate everyones replies and I can't wait to get to know
all of you.

~Lisa~

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BJ - 27 Sep 2005 22:06 GMT

Hi Lisa,
Doctors can be such a pain in the "you know where." They only seem to pay
attention when it is an all out crisis. Anyway, I do have a lot of muscle
problems. I have spasms, occasional weakness, twitching, and pain. If this
happens in your leg, for instance, does it ever give out? In my case this
occurs in the early stages of a flare. I also think that meds, such as pred,
can cause weakness and muscle pain.
BJ-Sk. Canada

> Good Morning,
>
[quoted text clipped - 9 lines]
>
> ~Lisa~

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Ruth Tay - 28 Sep 2005 00:51 GMT

In article <11jjdcrq6c4s6c3@corp.supernews.com>,

Hi BJ

Have been suffering leg cramps for the past month and never thought
about the 60 mg of prednisone a day might be the cause. Have been
taking quinine to ease the severe cramps and it is not working. Thanks
for the information ruth

> Hi Lisa,
> Doctors can be such a pain in the "you know where." They only seem to pay
[quoted text clipped - 18 lines]
> >
> > ~Lisa~

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BJ - 28 Sep 2005 02:02 GMT

Hi Ruth,
Sorry you have the cramping. Gad, that can hurt. Will you be on 60mgs for
long? You might try some extra calcium. I don't know if it will help, but it
might be worth a try.
BJ-Sk. Canada

> In article <11jjdcrq6c4s6c3@corp.supernews.com>,
>
[quoted text clipped - 27 lines]
> > >
> > > ~Lisa~

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Beverley - 28 Sep 2005 05:31 GMT

I take extra B complex vitamins when I have problems with it. Seems to help.
Bev

> In article <11jjdcrq6c4s6c3@corp.supernews.com>,
>
[quoted text clipped - 27 lines]
> > >
> > > ~Lisa~

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Cynthia Ward - 28 Sep 2005 11:36 GMT

As usual everyone i right on I have polymyocitis as well and get the
tightness in arms and legs as well as in my back I do have soma but vita
b helps as Bev said. I can't take it everyday it upsets my stomach but I
take it bout 3 times a week like calcium. My stomach is a mess so have
to ration what I put on it.
And Janers I SO SO RIGHT FIRE THAT DARN DR. We have enough trouble with
out some idiot not listening. This is not in our head and no matter how
trivial may sound it is important to us we live it daily. And not just
the big things ,the rashes the joint pain, the eye infections( I have
one in my right eye) just keeping up ya know. We have to allow for a
flare if something stressful comes up happy or annoying. Then we get
some dr that brushes you off and makes you feel an inch tall , well ya
just have to get tough and find the one with a brain and a heart.
OK I vented
(0:
Cindy W.
Cindy W.

>I take extra B complex vitamins when I have problems with it. Seems to help.
>Bev
[quoted text clipped - 80 lines]
>
>

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janersagain - 29 Sep 2005 04:24 GMT

I also heard to up your doses of calcium. That is suppose to help also
with muscle cramps too

hugs
janers

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J - 01 Oct 2005 09:34 GMT

calcium or magnesium, janers?
I thought I saw magnesium for muscle tightening or cramping?

In any event, females can't absorb too much calcium at one sitting, so they
suggest taking half the daily dose in one meal and the other half in
another meal. I think they said the maximum females can absorb is 500 or
600 mg/intake..somewhere around that amount.

I take a calcium with magnesium once a day, then with supper take a calcum
with Vit D
Vit D is necessary for aborption? and especially those who don't get sun
exposure
(but not required by African americans - sorry folks I can't remember the
PC term)
hugs
J

> I also heard to up your doses of calcium. That is suppose to help also
> with muscle cramps too
>
> hugs
> janers

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janersagain - 01 Oct 2005 14:33 GMT

My MIL family doctor told her just to take ONE more of her calcium pills.

more later

me janers

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Herb Wormwood - 01 Oct 2005 16:21 GMT

> Good Morning,
>
[quoted text clipped - 9 lines]
>
>> Lisa~

Hi,
It may not be the same thing but a lot of lupies have problems with muscles
being very tense.
I have it so bad that whenever I go for any kind of massage type treatment (I
do aromatherapy massage, indian head massage, I have done swedish but it is
too firm for me) and I also have Reiki treatment, all the therapists say my
muscles are really tight and tense, all over. They are tight and tense even
when I feel relaxed.
I have this thing called shin splints too, which is to do with the muscles in
the shins getting damaged by flat feet and the muscles doing something wierd.
I go to a podiatrist for that who has made me special insoles.
Lupus can cause muscle wasting, which is why it is important to keep the
muscles excercised as much as you can.
I don't know about prednisolone causing it, but you are on a high dose. Do
you know about the side effects? It is a really dangerous drug to take long
term. I finally got off it this year after 26 years.
By the way I too have had the doc totally ignore stuff that is not life
threatening or "unique".
For this sort of stuff, I find complementary therapists and support groups
offer the best advice. Don't forget about the pharmacist too, any thing
related to drugs and medication side effects is their speciality and their
advice should be free!

Let us know how you get on.

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