Hi Cindy,
I miss you too. I wish I could figure out why my emails to you keep bouncing. I am okay, in a fashion anyway. There have been a lot of emotional issues, that have been so stressful. We are not planning to move until next year. We will put our place up for sale in the spring. After that, it will all depend on how long it takes us to sell. A long haul move will be difficult but, ultimately for the best. I am suffering physically, but that is a long story. Trying to get a handle on that too. I hope you can resolve that pain issue. It always seems to be something. Unfortunately, the somethings aren't usually good somethings.
BJ-Sk. Canada
 Hi BJ hope your ok miss you think bout you all the time. Have you moved yet. That can be such an ordeal. Cindy W.

 BJ wrote:

Hi George,
I am a little late, but Happy Birthday to you. I hope you had a really nice
day. Retuxin is used for people who have thrombocytopenia. Doctors seem to
turn to that, if the platelets do not respond to prednisone and IVIG. I did
not realize that it was used for other lupus related problems. Are you on
pred as well? I will be interested to hear how it works for you long term.
My platelets have taken a downturn and I have thought of requesting Retuxin,
if I need treatment again. Good luck with this and keep us posted.
BJ-Sk. Canada
 Hi all,
I haven't been here for a while so I thought I should check in for an
update.  I celebrated a birthday yesterday so I feel thankful the
dastardly lupus has been thwarted for another year.
I have provided the link below which is a good explanation of the new
(chemo type) therapy I am getting.  It is called Retuxin therapy. I have
had 3 infusions with one more to go.  My Rheumy doctor is enthusiastic
as am I.  I will try to come back with results after I have completed
the series.
This therapy holds great promise and I hope it may be of benefit  to
others here.
George Parton

http://www.hon.ch/News/HSN/511214.html

   

 

O do apologize George I was just so happy to see BJ post I did not mean
to ignore you. I hope this treatment helps and if you don't mind my
asking what is it and what exactly for. I have been through so many and
failed them all so only really on Pred and pain meds. Sounds like it
would be for someone after chemo as chemo cam really mess with
platelettes. Thanks I have Lupus CNS with lung involvement, Diabetes
Polymyocitis and the other fun everyday stuff And now seems a new fun
thing called RSD )0: could live with out that one.
And looks like a hurricane is headed somewhat our way I am really hoping
it goes south sorry to wish it on someone else but last thing we need up
here.
Cindy W.