I can't believe you are back here.  "Great balls of fire"" LOL.  I have
missed you and wonder a lot how you are. I keep sending you jokes "hoping"
that you might feel well enough to write me back.
I am sorry Cindy about your seizure and lung problems.  I tell you woman
"enough" is enough already....I feel for you, you have had your full of too
too many things, tis time to NOT do that ok??
But, (Sigh) how well I know and wish we could set our course for wellness
better.   Since we can't, we have to do what we can.
As far as my headaches, it is related the the neck. I had a neck fusion
done in 99 and now spondylosis of the spine (ART) he has decided to set in.
So the bones are hitting bones, inflammation and then pinching nerves.
These little buggers go up into the back of the head and KNOCK me around.
Hence headaches.  SO I will see what can be done for that.
Rheumy did mention that she wanted an MRI if the blocks did not work.  I
think tis a good idea, go any xanax?  I hate to have my head held down LOL.
Even in an open MRI....

I know of lots of people who have taken Neurontin and it has worked.  For
me NOPE.  In fact I became a person I didn't know was in me.  I was a Royal
Bi..., and I can be sometimes but this time on that drug, even I wanted to
slap myself silly.  MY mouth over ran my mind LOL.  never again....
But if you are reluctant to use neurontin then why not ask your doc about a
block.  I mean into the arm and numb that pain out?  how about a Tens unit
to that arm and try that?  I would try anything and it can't hurt to ask
about that.  they do blocks on arms all the time for pain in extremeties.
With better insulin and a new doc, you gonna lick that part woman.
Now where are you located?
We need to write more often...sorry this was so long
missed you
glad you are back
love
janers

Cindy, I am so sorry you are having such a rough time.
I have missed you...Hope that you will be around now...
Praying that your year will get better..
Hugs Cindy
Hi  Everyone. I finally have new computer and we figured out how to do the
newsgroup again. I have missed you all so much, I get Janers jokes and
appreciate that so much.
Janers I am so sorry for what you have been going through. As you know
steroids are pretty much all I have left to battle this too.  I just
finished my every 4 months visits and there "ok your legs look awful
(bruises) but not much we can do about it bah bah bah. I am also on Depakote
to fight the headaches and now little seizures. It really does help the
headaches. Has anyone mentioned that to you before? I know how bad they can
get. This has been a tough year here too pneumonia in May right on my
daughters birthday I am at the hospital getting chest xray the late
afternoon of the day we are going to meet at a restaurant for her sweet 16
birthday, the whole family, I am suppose to be bringing cake and presents
and I am  hoping I am not going to end up in hospital as my family Dr. is
threatening. So turns out some fluid but I can stay home  safer at home but
fever spikes go first call on way. I ignored the part about go home and rest
and got on with my daughters birthday.  Which was very nice. didn't matter
that I had no voice I just sat back and took pictures and was so happy to be
there and not in the hospital.
Then in June caught the top of my index finger in door and broke top two
knuckles. called crush fracture. be careful folks this is a bad one as I
pinched a nerve when I did it and it has been awful. The finger is ok now
but the arm up to elbow and then  thumb are all messed up they swell turn
red hurt unbelievably. Weirdest thing , rheumy and neurologist say can take
6 months to 5 years  They both say Neurotin may help. Not sure I want to
take it.
   One of the other things this year was small seizures but they are much
better thanks to the Depakote we raised dose to 2000 mgs.
I also was having bad time with sugar numbers, went to new endocrinologist.
He put me on a stronger glucophage and glipizide and changed my insulin. I
have lost 12 pounds on this in 3 months it is a great program.
I wanted to mention it if someone is having trouble there.
   I just want to tell BJ a special hello and I am so sorry to hear about
your loss I do understand as you know. I miss you and I am here if you want
to email me.
And to all the others I was so happy to see Beverley and  I remember
Paulette I hope all goes well I have not had a chance to read all the post
as I just got on and wanted to send a post quickly sorry so long.
   Anyway it is so nice to see familiar names I hope this keeps working. I
have missed this and all of you so much.We also sold our old place and we
are leasing a regular house that doesn't leak LOL the ones that remember me
may remember about my old house.  We are looking at homes a little south of
here near the water more in the country where they are not developing do
much .  That a story all in it's own won't get into it but still a little
sad to leave the old Bat Cave behind. A classic case of Be Careful What you
Wish For..
Love Cindy Ward

Cindy,
I'm so glad to see you back!!!!  I think of you often.  I e-mailed but they bounced a few times so just kept wondering how you were doing.  I remember the old house and thought of you everytime the rain and storms were in your area hoping you didn't flood again!  Welcome back and I hope that you feel well enough to check in frequently.

Love & hugs,
Sherry
 Hi  Everyone. I finally have new computer and we figured out how to do the newsgroup again. I have missed you all so much, I get Janers jokes and appreciate that so much.  
  Janers I am so sorry for what you have been going through. As you know steroids are pretty much all I have left to battle this too.  I just finished my every 4 months visits and there "ok your legs look awful (bruises) but not much we can do about it bah bah bah. I am also on Depakote to fight the headaches and now little seizures. It really does help the headaches. Has anyone mentioned that to you before? I know how bad they can get. This has been a tough year here too pneumonia in May right on my daughters birthday I am at the hospital getting chest xray the late afternoon of the day we are going to meet at a restaurant for her sweet 16 birthday, the whole family, I am suppose to be bringing cake and presents and I am  hoping I am not going to end up in hospital as my family Dr. is threatening. So turns out some fluid but I can stay home  safer at home but fever spikes go first call on way. I ignored the part about go home and rest and got on with my daughters birthday.  Which was very nice. didn't matter that I had no voice I just sat back and took pictures and was so happy to be there and not in the hospital.  
  Then in June caught the top of my index finger in door and broke top two knuckles. called crush fracture. be careful folks this is a bad one as I pinched a nerve when I did it and it has been awful. The finger is ok now but the arm up to elbow and then  thumb are all messed up they swell turn red hurt unbelievably. Weirdest thing , rheumy and neurologist say can take 6 months to 5 years  They both say Neurotin may help. Not sure I want to take it.
     One of the other things this year was small seizures but they are much better thanks to the Depakote we raised dose to 2000 mgs.
 I also was having bad time with sugar numbers, went to new endocrinologist. He put me on a stronger glucophage and glipizide and changed my insulin. I have lost 12 pounds on this in 3 months it is a great program.
 I wanted to mention it if someone is having trouble there.
     I just want to tell BJ a special hello and I am so sorry to hear about your loss I do understand as you know. I miss you and I am here if you want to email me.
 And to all the others I was so happy to see Beverley and  I remember Paulette I hope all goes well I have not had a chance to read all the post as I just got on and wanted to send a post quickly sorry so long.
     Anyway it is so nice to see familiar names I hope this keeps working. I have missed this and all of you so much.We also sold our old place and we are leasing a regular house that doesn't leak LOL the ones that remember me may remember about my old house.  We are looking at homes a little south of here near the water more in the country where they are not developing do much .  That a story all in it's own won't get into it but still a little sad to leave the old Bat Cave behind. A classic case of Be Careful What you Wish For..
 Love Cindy Ward

It is just so good to hear from all all of you I am just posting a quick
note to say hi, today was my daughter's first day at 11th grade and last
night we both were so nervous that we didn't sleep well so we are tired
tonight her day starts at 530 as school is 7:15 to 2:30 so I am off to
bed and looking forward to reading this tomorrow.
Soft hugs to all of you
and thanks for the wonderful posts
cindy

Hi Cindy,
I heard the good news of your return. It is so great to see you back. We have some wonderful new people here, but I have missed so many of the "old" ones who no longer post. You brought me out of hiding. <g> I have been down in the dumps and have not been active around here lately. J wanted me to tell you how pleased she was to see you too. She would have told you that herself, but she has been suffering with her elbow and shoulder. Add to that her computer problems and you will know why she has not been posting. I see that you are still fighting to do as much as you can. Sorry that you are having such a bad time. I am on Neurontin and I don't have any side effects from it. It does seem to help with the constant nerve pain. It takes the edge off it anyway. It doesn't seem to make me crabby, but maybe I am so crabby by nature that it is difficult to tell. <g> Hope to see you here as a regular again.
Hugs and a big welcome back,
BJ
 Hi  Everyone. I finally have new computer and we figured out how to do the newsgroup again. I have missed you all so much, I get Janers jokes and appreciate that so much.  
  Janers I am so sorry for what you have been going through. As you know steroids are pretty much all I have left to battle this too.  I just finished my every 4 months visits and there "ok your legs look awful (bruises) but not much we can do about it bah bah bah. I am also on Depakote to fight the headaches and now little seizures. It really does help the headaches. Has anyone mentioned that to you before? I know how bad they can get. This has been a tough year here too pneumonia in May right on my daughters birthday I am at the hospital getting chest xray the late afternoon of the day we are going to meet at a restaurant for her sweet 16 birthday, the whole family, I am suppose to be bringing cake and presents and I am  hoping I am not going to end up in hospital as my family Dr. is threatening. So turns out some fluid but I can stay home  safer at home but fever spikes go first call on way. I ignored the part about go home and rest and got on with my daughters birthday.  Which was very nice. didn't matter that I had no voice I just sat back and took pictures and was so happy to be there and not in the hospital.  
  Then in June caught the top of my index finger in door and broke top two knuckles. called crush fracture. be careful folks this is a bad one as I pinched a nerve when I did it and it has been awful. The finger is ok now but the arm up to elbow and then  thumb are all messed up they swell turn red hurt unbelievably. Weirdest thing , rheumy and neurologist say can take 6 months to 5 years  They both say Neurotin may help. Not sure I want to take it.
     One of the other things this year was small seizures but they are much better thanks to the Depakote we raised dose to 2000 mgs.
 I also was having bad time with sugar numbers, went to new endocrinologist. He put me on a stronger glucophage and glipizide and changed my insulin. I have lost 12 pounds on this in 3 months it is a great program.
 I wanted to mention it if someone is having trouble there.
     I just want to tell BJ a special hello and I am so sorry to hear about your loss I do understand as you know. I miss you and I am here if you want to email me.
 And to all the others I was so happy to see Beverley and  I remember Paulette I hope all goes well I have not had a chance to read all the post as I just got on and wanted to send a post quickly sorry so long.
     Anyway it is so nice to see familiar names I hope this keeps working. I have missed this and all of you so much.We also sold our old place and we are leasing a regular house that doesn't leak LOL the ones that remember me may remember about my old house.  We are looking at homes a little south of here near the water more in the country where they are not developing do much .  That a story all in it's own won't get into it but still a little sad to leave the old Bat Cave behind. A classic case of Be Careful What you Wish For..
 Love Cindy Ward