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Medical Forum / Diseases and Disorders / Lupus / July 2005

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Baby, it's cold outside...

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Nicole H - 15 Jul 2005 20:07 GMT
I mean, hot outside... come on in.

115* yesterday!  Thank God for the air conditioning.
I'm in CA in the central valley..... it's hot here but 115* is just wrong.
Same weather today and I have to go out.
Have a party up in the mountains to go  to where it's still 95* (which is
unheard of).
Ugh.
Plus I just want to curl up into a ball and cry for being a big fat pig.  I
don't eat, I vomit frequently and yet gain weight.  I was under 130 lbs
(could wear a size 3- very muscular) and now I'm almost 180.  It's so damn
depressing.

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Sherry - 15 Jul 2005 21:36 GMT
Nicole,
I can sympathize with you on both the heat and the weight!  I also live in
the Central Valley and we are melting....and if we turn on the ac as much as
we need it we won't be able to pay the bill!  As for the weight...I weighed
105 almost all of my life from the time a teen to my  late 40's then I
weighed no more than 115 for several years...now at almost 55 I am going
nuts cause no matter how much I was excercising, cutting back what I ate,
and how much I ate the weight just keeps clicking higher on the ole scales.
I don't have a clue why....I'm not as active as I was....but I am still get
regular excercise and I was never a big eater and now I even eat less....I
almost always eat healthy food and seldom have junk food/fast food. Wish I
knew what to say or do to make you feel better other than to let you know
you have lots of company!!!!

Hugs,
Sherry
>I mean, hot outside... come on in.
>
[quoted text clipped - 9 lines]
> (could wear a size 3- very muscular) and now I'm almost 180.  It's so damn
> depressing.
Nicole H - 16 Jul 2005 22:49 GMT
Sherry
Where are you at?  I'm in Kern County.
Did you know that PG&E offers a medical discount?
Our bill is high also but I simply can't handle the heat. .... Hubby jokes
about having to work overtime to pay the bill.  LOL
> Nicole,
> I can sympathize with you on both the heat and the weight!  I also live in
[quoted text clipped - 25 lines]
> > (could wear a size 3- very muscular) and now I'm almost 180.  It's so damn
> > depressing.
Sherry - 17 Jul 2005 00:43 GMT
Nicole,
I am in Stanislaus County.  The heat is real hard on me also .  Oh well.

> Sherry
> Where are you at?  I'm in Kern County.
[quoted text clipped - 41 lines]
> damn
>> > depressing.
nfarrell22 - 21 Jul 2005 06:15 GMT
Nicole,
   I'm down here in Ventura, Edison territory. How does one apply for the
medical discount? We already have the low-income discount. Is SLE a
qualifying illness, or did you have to do a lot of "proving" that you have a
need for more AC?

Signature

Nancy F, SoCal

> Sherry
> Where are you at?  I'm in Kern County.
> Did you know that PG&E offers a medical discount?
> Our bill is high also but I simply can't handle the heat. .... Hubby jokes
> about having to work overtime to pay the bill.  LOL
Nicole H - 23 Jul 2005 20:49 GMT
J - 25 Jul 2005 10:45 GMT
>  http://www.sce.com/CustomerService/understandingBaseline/MedicalBaselineAllocati
on.htmEligibility
:  1.. Regular use in the customer's home of one or more medical life-supportdevices essential to maintain the life of a full-time resident of thehousehold; and/or  2.. A full-time resident of the household is: a paraplegic, hemiplegic,quadriplegic, multiple sclerosis, scleroderma patient, being treated forlife-threatening illness, and/or has a compromised immune system.

Run-on-senten-itis? <smile>
<http://www.sce.com/CustomerService/understandingBaseline/MedicalBaselineAllocati
on.htmEligibility
>
Probably hard to copy and paste that web page.
Looks like it's for Southern California.

We've got "goug-itis" up here.
If a person is on provincial disability and pays less rent (or mortgage) than they allow (which is approx 425.00, they can use their utility costs towards the shelter portion, so they don't get that portion clawed back. but very few pay 425 (approx) or less for rent /mortgage anyway. hence utility cost gougitis.

No matter how much we try to conserve, for water, gas and hydro, the bill never drops lower than a certain amount because 2/3 of the bill is extra fees and delivery and taxes (not actual use).
The use part is the smallest part of the bill. (exdept for those who have ari conditioning or houses that aren't well insulated (for winter or summer) can make the bills higher.

Last I checked, everything's going up (food, insurance, auto gas etc), except for income. Eh Bruce?
J
Ruth Tay - 16 Jul 2005 04:34 GMT
> I mean, hot outside... come on in.
>
[quoted text clipped - 8 lines]
> (could wear a size 3- very muscular) and now I'm almost 180.  It's so damn
> depressing.

Are you taking prednisone.  that is a real weight gainer.  I know that
180 weight and had it for about 10 years.  Finally got off prednisone
almost a year ago and dropped 30 #s.  The best part of losing was getting
rid of that huge ugly lump on my upper back.  As for the heat  it  must
be terrible.  Hope you had a good time at the party       ruth
Mair - 17 Jul 2005 18:50 GMT
Aren't you hot up there, Ruth?  We are in for a scorcher today in Santa
Rosa.  SR is just a bit too far inland from the coast to be kept cool in the
daytime.  Most times at night the temp will drop... but not this time... we
are in for a hot day.

I also gained weight when I needed higher doses of pred, and am finding it
so hard to take that weight off.  I have fought with my weight every day to
keep too much weight from going on.... leveled out at l64, and now, down to
7.5mg, am inching downward (and I mean inching)... I am at 162.

See my other post about Relacor...

Mair.

Surf the heat waves, dude.

>> I mean, hot outside... come on in.
>>
[quoted text clipped - 17 lines]
> rid of that huge ugly lump on my upper back.  As for the heat  it  must
> be terrible.  Hope you had a good time at the party       ruth
Ruth Tay - 18 Jul 2005 16:17 GMT
I am ashamed to admit that a high temperature here is 75.  It is going
to be about 70 today.  People come to Mendocino to get away from the
heat and that is why we moved here.  Thick fog this A.m. and its about
58 outside.  Somehow I feel guilty for enjoying such a great place to
live.  Mair it is great that you are able to lose weight and you are
still on Prednisone.  Good luck          ruth

> Aren't you hot up there, Ruth?  We are in for a scorcher today in Santa
> Rosa.  SR is just a bit too far inland from the coast to be kept cool in the
[quoted text clipped - 33 lines]
> > rid of that huge ugly lump on my upper back.  As for the heat  it  must
> > be terrible.  Hope you had a good time at the party       ruth
Mair - 18 Jul 2005 17:20 GMT
It's good to hear from you, Ruth!  Yeah, down here the place to live is
Sebastopol, it gets the morning fog and the lower daytime temps.  Not much
housing comes available there.

regarding weight, it is really hard to get it off, prednisone or not.  I am
not very exercise tolerant.  I am using all sorts of stuff in combination to
try to help me: hypnosis, diet, stationary bike, calisthenics and Tai
Chi--but the exercise is so difficult when the weather is so hot!
Fortunately the heat takes my appetite away!

Good talking with you!

mary

It is much better here in Santa Rosa if you can get outside and be in the
wind

> I am ashamed to admit that a high temperature here is 75.  It is going
> to be about 70 today.  People come to Mendocino to get away from the
[quoted text clipped - 49 lines]
>> > rid of that huge ugly lump on my upper back.  As for the heat  it  must
>> > be terrible.  Hope you had a good time at the party       ruth
 
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