> I wear warm socks and sensible flat shoes.
> Can anyone suggest any (non medication, I am on a load already) remedies
> for thjs?
>> I wear warm socks and sensible flat shoes.
>> Can anyone suggest any (non medication, I am on a load already) remedies
>> for thjs?
>>
> Those are symptoms typical with raynaud's.
I thought so. I have been told years ago I have it. But I also have
vasculitis and neuropathy.
> Since you have the livido rash though - it's also possible that this is
> "evolving" into livido vasculitis (The Lupus Book, 1st Ed page 71) I'm not
> sure if this would contribute to the pain or not.
So do you think I should discuss it with my doctor? My GP is always
interested in any pains I have but the rheumatologist doesnt seem interested
in my feet. I have told him my feet hurt lots of times and he never comments.
I think he is more interested in my osteoporosis and CNS Lupus. I don't know
if my GP would recognise livido vasculitis.
I really do not want to take any extra medications so is there any point in
talking to a doctor about it? I have been on Lupus meds for 26 years, I am
fed up with them.
> My feet definitely feel pain when the Raynaud's is acting up - it's usually
> a burning though as if i'm walking on hot sidewalk. But everyone is
> different.
Yes, I have that too. Burning pain, aching pain. W hen they are burning I get
out of bed and rub cooling peppermint foot lotion in. They get really hot to
the touch, but sometimes they feel hot but are cold to the touch., but not
sweaty hot, dry hot! The pain in my feet is my most consistent pain. Most
days and nights, all year round.
> as far as treating it - if it is "just Raynaud's" than the non-med
> treatments are fairly few and far between. One of the most important things,
[quoted text clipped - 6 lines]
> possible, I wear warm, thick socks in slip-on back-less "tennis shoes"
> (these don't slip around like most slip-ons and clogs).
I have been told I need total support for my feet and advised by podiatrist
not to wear backless shoes. I have hammer toes and shin splints and something
about the backless shoes is supposed to make that worse. My shoes are a snug
fit but not tight. They are a slip on trainer style.
> Apparently decongestants and ergots (for migraine) can make Raynaud's worse,
> along with beta-blockers.
I am not on those. I am on azathioprine (imuran), 1 mg prednisolone alternate
days, warfarin (coumadin) dispersible aspirin and paracetamol. Codiene as and
when necessary but I rarely take it due to side effects. Thats all my meds.
> So can impact/vibration. So even if your shoes are "sensible" (always a
I try to do a lot of walking as I have osteoporosis. I am not sure if it
makes it worse or not. I think it does.
> good move IMO - Raynaud's or otherwise) you may need more cushioning.
> Unfortunately, warmth from the outside only does so much. I bought some
[quoted text clipped - 7 lines]
> to numb. I'm being lazy and not doing what I recommend - socks and core
> temp protection. :P
Ah, I never thought about the core temp preotection. I will monitor that and
see if it helps.
Thanks for the tips.