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Medical Forum / Diseases and Disorders / Lupus / April 2005

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could foot pain be raynauds

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herbwormwood - 22 Apr 2005 13:11 GMT
Have has foot pain for years, on a recent visit to a new podiatrist  to get
help for flat feet (theraputic insoles)  I told him about the way my feet are
freezing cold, when I go to bed at night I use a heat pack to warm them up,
when they warm up they hurt. The pain is not severe  but it is enough to keep
me awake. He said this was classic raynauds. I know I have raynauds in my
feet but I had never thought of it as causing the pain. They do not  only
hurt at night, they are hurting at the moment. They feel like they are
bruised, but no bruise shows. The pain is worst on the soles. I have the
livido rash on them too.
I wear warm  socks and sensible flat shoes.
Can anyone suggest any (non medication, I am on  a load already)  remedies
for thjs?
Cindy - 22 Apr 2005 13:36 GMT
My foot pain is from FM and OA....Most of my foot pain is o the top of my
foot....Covers on them hurt...just the pressure of the bed make mine hurt at
times..
Cindy
> Have has foot pain for years, on a recent visit to a new podiatrist  to
> get
[quoted text clipped - 12 lines]
> Can anyone suggest any (non medication, I am on  a load already)  remedies
> for thjs?
janers - 22 Apr 2005 16:49 GMT
I have the "ray" and believe me that is part of it.  My feet turn blue then
a pale white sometimes.

I was told beta blockers (a heart and bp drugs) make it worse. I am on one
of those but have to be for irregular heart rate.  So what ya gonna do LOL.
There are drugs to combat this or at least make it better and one is
calcium channel blockers and for the life of me can not think today.  MTX
day last night and my day is groggy.

I also use heating pad, and warm socks .  even in the summer.  When the air
conditioner is on it is painful then.  Also for me feels like my feet are
pumping and throbbing sometimes as well as swollen but no swelling noted.

I would suggest you ask him what you can use

But there maybe another thing, you may have neuropathy pain there too. Did
he mention that?
That is very painful in itself.  Neurontin is a drug for that but made me
an angry "b....:" so I had to get off it.  Others take it with good luck.

keep haning in there
janers
nfarrell22 - 24 Apr 2005 00:34 GMT
Cindy,
   I suffered with this for years before I thought of a cost-effective way
to mimic those metal frames used in hospitals to keep the covers off burn
patients: I bought the largest laundry basket Target offered and cut out the
long sides of it, leaving the ends as "legs". It is upside down on the bed
over my feet. Voila`! No covers on my feet! It does make a large cooler
airspace, so warm socks are a must except in summer when I use only a sheet
anyway.
   The relief is enormous and makes a BIG difference in my sleep quality.
The other thing I do is to put my warmed rice socks in bed before I get in
and then the space is warmed, too.
Nancy F, SoCal

> My foot pain is from FM and OA....Most of my foot pain is o the top of my
> foot....Covers on them hurt...just the pressure of the bed make mine hurt
> at times..
> Cindy
KCat - 22 Apr 2005 18:37 GMT
> I wear warm  socks and sensible flat shoes.
> Can anyone suggest any (non medication, I am on  a load already)  remedies
> for thjs?

Those are symptoms typical with raynaud's.

Since you have the livido rash though - it's also possible that this is
"evolving" into livido vasculitis (The Lupus Book, 1st Ed page 71)  I'm not
sure if this would contribute to the pain or not.

My feet definitely feel pain when the Raynaud's is acting up - it's usually
a burning though as if i'm walking on hot sidewalk.  But everyone is
different.

as far as treating it - if it is "just Raynaud's"  than the non-med
treatments are fairly few and far between. One of the most important things,
in my experience, with keeping this under control is keeping the core body
temp regulated.  Changes in temp vs. just cold seem to be more important to
triggering Raynaud's episodes. So, if you're wearing nice warm socks but not
keeping your body at a stable, comfortable temp, this could defeat your sock
efforts. :)  I've also found that wearing shoes that are snug can make
matters worse rather than better.  to keep my feet comfortable as much as
possible, I wear warm, thick socks in slip-on back-less "tennis shoes"
(these don't slip around like most slip-ons and clogs).

Apparently decongestants and ergots (for migraine) can make Raynaud's worse,
along with beta-blockers.

So can impact/vibration.  So even if your shoes are "sensible" (always a
good move IMO - Raynaud's or otherwise) you may need more cushioning.
Unfortunately, warmth from the outside only does so much.  I bought some
socks with gels pads that can be heated and they feel great and they help a
little when my feet are really cold.  But it's like I can feel the bones
staying cold.  An illusion I know but...

being sedentary (for some reason I can't spell today!) triggers attacks for
me as well - sitting too long especially. Right now I've got my right foot
tucked into my folded left leg because its toes were tingling and starting
to numb.  I'm being lazy and not doing what I recommend - socks and core
temp protection. :P
herbwormwood - 23 Apr 2005 11:59 GMT
>> I wear warm  socks and sensible flat shoes.
>> Can anyone suggest any (non medication, I am on  a load already)  remedies
>> for thjs?
>>
> Those are symptoms typical with raynaud's.

I thought so. I have been told years ago I have it. But I also have
vasculitis and neuropathy.

> Since you have the livido rash though - it's also possible that this is
> "evolving" into livido vasculitis (The Lupus Book, 1st Ed page 71)  I'm not
> sure if this would contribute to the pain or not.

So do you think I should discuss it with my doctor? My GP is always
interested in any pains I have but the rheumatologist doesnt seem interested
in my feet. I have told him my feet hurt lots of times and he never comments.
I think he is more interested in my osteoporosis and CNS Lupus. I don't know
if my GP would recognise livido vasculitis.
I really do not want to take any extra medications so is there any point in
talking to a doctor about it? I have been on Lupus meds for 26 years, I am
fed up with them.

> My feet definitely feel pain when the Raynaud's is acting up - it's usually
> a burning though as if i'm walking on hot sidewalk.  But everyone is
> different.

Yes, I have that too. Burning pain, aching pain. W hen they are burning I get
out of bed and rub cooling peppermint foot lotion in. They get really hot to
the touch, but sometimes they feel hot but are cold to the touch., but not
sweaty hot, dry hot! The pain in my feet is my most consistent pain. Most
days and nights, all year round.

> as far as treating it - if it is "just Raynaud's"  than the non-med
> treatments are fairly few and far between. One of the most important things,
[quoted text clipped - 6 lines]
> possible, I wear warm, thick socks in slip-on back-less "tennis shoes"
> (these don't slip around like most slip-ons and clogs).

I have been told I need total support for my feet and advised by podiatrist  
not to wear backless shoes. I have hammer toes and shin splints and something
about the backless shoes is supposed to make that worse. My shoes are a snug
fit but not tight. They are a slip on trainer style.

> Apparently decongestants and ergots (for migraine) can make Raynaud's worse,
> along with beta-blockers.

I am not on those. I am on azathioprine (imuran), 1 mg prednisolone alternate
days, warfarin (coumadin) dispersible aspirin and paracetamol. Codiene as and
when necessary but I rarely take it due to side effects. Thats all my meds.

> So can impact/vibration.  So even if your shoes are "sensible" (always a

I try to do a lot of walking as I have osteoporosis. I am not sure if it
makes it worse or not. I think it does.

> good move IMO - Raynaud's or otherwise) you may need more cushioning.
> Unfortunately, warmth from the outside only does so much.  I bought some
[quoted text clipped - 7 lines]
> to numb.  I'm being lazy and not doing what I recommend - socks and core
> temp protection. :P

Ah, I never thought about the core temp preotection. I will monitor that and
see if it helps.
Thanks for the tips.
J - 22 Apr 2005 18:47 GMT
> Have has foot pain for years, on a recent visit to a new podiatrist  to get
> help for flat feet (theraputic insoles)  I told him about the way my feet are
[quoted text clipped - 8 lines]
> Can anyone suggest any (non medication, I am on  a load already)  remedies
> for thjs?

After bath, i put on loosefitting thick socks. Before bed, I add another layer.
If my feet ever pain the way yours do, I plan on checking out
http://my.webmd.com/content/article/79/96129.htm
http://www.healthibetic.ca/Diabetic-Foot-Cream.html
It says something about relaxing muscles of blood vessels and improving blood
flow.
I haven't looked for any at the store yet, so I don't know the cost;  the
ingredients (patch test your foot first?); nor can I say how it feels or if it
works or if it's the "right" or "wrong" thing for you.

Dr Scholl's HealthiBetic Transdermal L-Arginine Foot Cream (3.5 oz) ???  Are
there Dr. Scholl's products in UK?
from:
http://www.a2zba.co.uk/shop-online/health-personal-care/personal-care-beauty/foo
t-care/


J
Shelagh - 22 Apr 2005 19:45 GMT
I take a calcium antagonist or channel blocker called verapamil/isoptin
(sustained release) for MVP and it works very well for me with my raynauds
(secondary to my lupus dx). I am also on propanolol for cardiac
irregularities ... and it doesn't interfere with the relief of raynauds
symptoms, which I know is contrary to some other ng members opinions on this
matter.
HTH!
hugs from Shelagh
> Have has foot pain for years, on a recent visit to a new podiatrist  to
> get
[quoted text clipped - 12 lines]
> Can anyone suggest any (non medication, I am on  a load already)  remedies
> for thjs?
cloud - 25 Apr 2005 16:45 GMT
If you are on a ton of medicine like i am already, then perhaps a channal
blocker will help you even if it means being on more medicine.  But because
a channal blocker is also a blood pressure medicine, if you are on another
blood pressure medicine or have low blood pressure at this time, you will
deffinetely have to consult a doctor as your blood pressure will have to be
monitored closely.
What i have found works the best for me, is by putting on the medicated gold
bond creme.  I just fell in love with that stuff.  But have noticed also,
that if I do not wear socks to bed, then I have even more problems.  Putting
the gold bond on the soles and all over the foot, and then putting on the
socks seems to work the best for me.  If i am without socks in bed, i notice
the only releif i get with my feet is if i sleep on my back with my knees
bent and soles of the feet to the bed.  For some reason, this position seems
to keep the feet from overheating.  It is all a matter of the circulation in
the feet.
Might want to look into investing in a few pair of diabetic socks also.
Something which does not bind the feed at the ankel would probably be most
helpful.
Hope this helps.  And yes, I experience the same problems and also have a
bone spur in the top of my foot just past the ankle area.  This causes
swelling on the top of the foot as someone mentioned in one of the replies,
but can not remember who at this time.
Always,
..· ´¨¨)) -:¦:-
¸.·´ .·´¨¨))
((¸¸.·´ ..·´ cloud -:¦:-
-:¦:- ((¸¸.·´*

> Have has foot pain for years, on a recent visit to a new podiatrist  to
> get
[quoted text clipped - 12 lines]
> Can anyone suggest any (non medication, I am on  a load already)  remedies
> for thjs?
FootProducts.Net - 26 Apr 2005 18:33 GMT
> If you are on a ton of medicine like i am already, then perhaps a channal
> blocker will help you even if it means being on more medicine.  But because
[quoted text clipped - 23 lines]
> ((¸¸.·´ ..·´ cloud -:¦:-
> -:¦:- ((¸¸.·´*

You can find diabetic socks at the link below, like the ones cloud was
talking about.. They are non-binding.

http://www.footproducts.net/footcare/catalog/Knit-Rite-Smartknit-Diabetic-Sock-p
-712.html


FootProducts.net
Diane Fblooms - 27 Apr 2005 04:44 GMT
I have some of these symptoms and was told I may have this.  

I went a few winters before I found something that helped, a thick
sleeping bag.  I bought one that had extra room in it, opened it fits
the top of my full size bed.  It is about 3 inches thick, I put it under
me to sleep and this did the trick. After two winters with almost no
sleep because of my cold feet I finally could sleep again.

This winter I wasn't as bad and I didn't need the sleepingbag.  I use to
have to run my feet under hot water before I went to bed as well.

I had some heal problems, that really hurt and itched something awful.
Taking a homeopathic product to correct my calcium level helped this a
lot.  I don't have much problems now but I know I still have a problem
because when I wake up that foot is missing a sock, somehow I take the
sock off at night.  Use to have to scratch that foot's heal alot so I
had my sock off all the time.  I must take off the sock when I'm asleep
for some reason but I'm not sure why I do it since during the day my
foot seems fine.  Most of the time I need to wear my socks to bed but
some times I actually don't need them.

I used an electric heating pad to warm my feet but that left my feet
kind of hurting a bit some times.  

Diane

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herbwormwood - 27 Apr 2005 09:52 GMT
> I have some of these symptoms and was told I may have this.  
>
[quoted text clipped - 21 lines]
>
> Diane

I have just received some special socks called soft tops. They don't cut off
the circulation. I also received some leg warmers. I wore them yesterday for
the first time, I will see if it makes ay difference to night time foot  
pain. I use a hot pack at night for my feet.
Could you try the aloe vera for your healing (dry skin thread).
Diane Fblooms - 27 Apr 2005 15:56 GMT
I didn't start the dry skin thread; I think there's two Diane's here
maybe the other Diane started that thread.

Diane

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herbwormwood - 27 Apr 2005 16:45 GMT
> I didn't start the dry skin thread; I think there's two Diane's here
> maybe the other Diane started that thread.
>
> Diane

There was a lot from me about the use of Aloe Vera in dry skin conditions. It
is also very good for healing scars and so on so I thought it might help you.
Can you see the dry skin thread or do you want me to summarise for you?
Diane Fblooms - 27 Apr 2005 19:40 GMT
I'm not sure why you feel I need aloe.  I'm trying to figure that one
out.  

I reread my post, all I can come up with is I spelled heel wrong, I
wrote it as heal.  

I was talking about a past problem with the heel of my foot, it use to
hurt and itch like crazy.

Diane

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herbwormwood - 28 Apr 2005 11:26 GMT
Hello Diane,
I do not know whether you need aloe or not, it is up to you  but I thought
you wrote that  you had some problems with your skin on your feet. Aloe is
wonderful for any skin problems, it is even excellent as a soothing
moisturiser even if your skin does not need healing. It is really good for
any skin problems which hurt or itch. I have even fond it helpful on insect
bites! It would work on heels as well as healing!!! :-)

On Wed, 27 Apr 2005 19:40:19 +0100, Diane Fblooms wrote
(in article <3520-426FDC93-55@storefull-3314.bay.webtv.net>):

> I'm not sure why you feel I need aloe.  I'm trying to figure that one
> out.  
[quoted text clipped - 6 lines]
>
> Diane
Diane Fblooms - 28 Apr 2005 18:14 GMT
Nope, the skin on my feet is normal.  I just used the work heal instead
of heel so it probably seemed like I was saying I had a heal problem
when I meant to say I had a heel problem.

I have used aloe before on small cuts and such and it was helpful.  I
appreciate you trying to help me; now I think I know why you thought I
had a skin problem or healing problem.

Diane

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