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Medical Forum / Diseases and Disorders / Lupus / March 2005Question about the malar rash
As some of you may remember, I became worred I might have lupus in December. ANA came back normal and no diagnosis of anything was ever made. Fortunately I have not had any more joint pain issues since that wierd experience in November/December. My hair seems to be growing back nicely. However, I think I have the malar rash. I get really flushed on my cheeks in the butterfly shape. Here is the strange thing though. This rash seems to appear most afternoons (and is worse when I haven't slept well) but is either non-existent or very light in the mornings. I can't tie it to anything I eat, it just happens in the afternoons. Has anyone else had an experience like this? >As some of you may remember, I became worred I might have lupus in >December. ANA came back normal and no diagnosis of anything was ever [quoted text clipped - 8 lines] >tie it to anything I eat, it just happens in the afternoons. Has anyone >else had an experience like this? Could it be brought on by exposure to lights? What do you do in the mornings, and where, and if indoors what type of lighting does it have? any difference at weekends or holidays?  SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! It might be related to the flourescent lights in the office. I am going to start to pay attention and see if I get it on weekends or not. I don't really care that I get the rash since I feel ok, but I do find it very strange. > However, I think I have the malar rash. I get really flushed on my > cheeks in the butterfly shape. Here is the strange thing though. This > rash seems to appear most afternoons (and is worse when I haven't slept > well) but is either non-existent or very light in the mornings. I can't > tie it to anything I eat, it just happens in the afternoons. Has anyone > else had an experience like this? I haven't had this exact experience. But in general I usually am more symptomatic in the afternoons and evenings than in the a.m. What about UV exposure? I don't recall if you are working (does your office have fluorescent lighting?) or if you work outside or... I have seen a couple of folks (self included) that are so UV sensitive that even covered fluorescents leak enough UV to cause them to turn red or in my case, get feverish. It's a very odd thing indeed. other things could be impacting - daily stresses, something you eat regularly but several hours earlier. It's hard to tie some of this to particular exposures because while some might react in minutes, others might react in hours or even days. HTH, kcat Thanks so much. I do work in an office and my bf says he doesn't think I get the rash on weekends. (I am going to start paying more attention). I don't seem to get worse when I am out in the sun (I went on a long walk on a sunny day a few weeks ago with seemingly no ill affects) but the face rash is really odd. My first year of symptoms I often got very "flushed" by my afternoons. I am not sure if one would call it the malar rash as it wasn't raised (does that rash have to be raised?) - but it was on my nose and cheeks. With it often came hives on my neck, chest and stomach. Afternoons were bad for me in that it was the time I would start to run fevers and get more achy and tired - so I always associated the hives and red face with that. Don't know... my rheumy codes my insurance sheet with SLE but I know my bloodwork doesn't really support that diagnosis - just my symptoms. So I can't say if that was or wasn't a typical malar rash. Our bodies are strange, aren't they? > As some of you may remember, I became worred I might have lupus in > December. ANA came back normal and no diagnosis of anything was ever [quoted text clipped - 8 lines] > tie it to anything I eat, it just happens in the afternoons. Has anyone > else had an experience like this? Malar rash does NOT have to be raised. Candi ---------- >My first year of symptoms I often got very "flushed" by my afternoons. I am >not sure if one would call it the malar rash as it wasn't raised (does that [quoted text clipped - 18 lines] >> tie it to anything I eat, it just happens in the afternoons. Has anyone >> else had an experience like this? I have seen a couple of folks (self included) that are so UV sensitive that even covered fluorescents leak enough UV to cause them to turn red or in my case, get feverish. It's a very odd thing indeed. I have done this all my life. Those lights cause me to feel feverish and I get rashes. In school I couldnt stand it because I always felt sick. I didnt feel sick when the teachers would teach with out the lights on and we would get natural lighting. RhondaM > As some of you may remember, I became worred I might have lupus in > December. ANA came back normal and no diagnosis of anything was ever [quoted text clipped - 8 lines] > tie it to anything I eat, it just happens in the afternoons. Has anyone > else had an experience like this? ---------- >As some of you may remember, I became worred I might have lupus in >December. ANA came back normal and no diagnosis of anything was ever [quoted text clipped - 8 lines] >tie it to anything I eat, it just happens in the afternoons. Has anyone >else had an experience like this? Yup, sometimes mine is barely noticeable, yet my doc sees it. Sometimes I don't have it at all. I've noticed sometimes that it's worse after I eat, or in the late afternoon. It's not necessarily a constant thing, just like with everything else about lupus. BUT when it's hot & red, over the years I've come to realize that's a harbinger of a flare. I've gone years without joint pain or any other symptoms, then out of the blue everything will flare up. Also talked to a lot of other lupoids who get a red rash on their neck/chest area in the shape of a 'V'. Candi [] >Also talked to a lot of other lupoids who get a red rash on their neck/chest >area in the shape of a 'V'. Do they wear V-necked clothes? SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Nope. ---------- >[] >>Also talked to a lot of other lupoids who get a red rash on their neck/chest >>area in the shape of a 'V'. >> >Do they wear V-necked clothes? I fit right in here.... very photosensitive and 'rashed out' within minutes, sometimes resulting in fever and mild flare and depending on duration of exposure, even fully covered, a full blown nasty flare up of my lupus! It is apparently, looking at all the responses to this thread, quite common, at least in this group, to be sensitive to fluorescent lighting (especially if you are also sun sensitive); and btw, the rash doesn't have to be raised to be classified as malar. HTH! Signaturehugs from Shelagh http://continue.to/lupus My rash is similar in timing but not pattern. Since I developed the rash, my face is always on the ruddy side, although not to the point that other people see it's a rash. At work I'm under UV lights. If I stay too late or come tired, by late afternoon I have a red stripe down my right cheek and some red on the left. For me, it's a barometer. If I see that in the mirror, I know I need to go home FAST! Sun doesn't seem to change the rash substantially, but the combination of sun and heat can put me in bed for five days with flu-like symptoms, even if I'm covered to my fingertips and wearing sunblock. My photosensitivity started when I was 17 vacationing in FL & no one knew what was going on. It was on my chest & neck & felt & looked like an acid burn. Welts, swelling, pain, etc. It wasn't until I was 30 that a doc finally put 2 & 2 together & I learned there is no such thing as 'sun poisoning', unless of course you've been very overexposed. I used to get the rash on my arms thru my car window. Unfortunately, I like to tan & so far this year the tanning beds haven't caused the rash. I know it's really stupid but if I DO get a rash, Pred clears it up for the rest of the summer. I've noticed that UV lights are bad too; I got those UV shields at work that helped. But then I go home & lay out in the sun duh. That has nothing to do with the malar rash though. They're completely different. Candi ---------- >My rash is similar in timing but not pattern. Since I developed the >rash, my face is always on the ruddy side, although not to the point [quoted text clipped - 5 lines] >can put me in bed for five days with flu-like symptoms, even if I'm >covered to my fingertips and wearing sunblock. I don't have the rash on my face but I had a chest rash this winter that really drove me crazy with itch. It was where I had gotten a slight turned during the summer. It didn't bother me but it seemed it flaired up during the winter. This is the first time I had this happen, has anyone else experienced this before? Diane SignatureVisit my site for scriptures, medical alert cards/tags and freebies http://www.geocities.com/fblooms/menugeo.html That should read, where I got a slight burn. I only got a few hours sleep last night and it is showing. Good thing I'm going over my girlfriend's place later in the day so I can get some sleep before I go. Diane SignatureVisit my site for scriptures, medical alert cards/tags and freebies http://www.geocities.com/fblooms/menugeo.html My last bad skin flare was end December/January; my right hand came off worse, but also right side of my face and ear. Admittedly I had quite alot going on, working too much, admitted to hospital with suspected PE, family illness.Generally my rash always seems to be worse in winter than summer. UV lighting is a killer, far worse than direct sunlight for me, I have to time myself in certain stores as my skin starts to prickle after about 20/30 minutes, and I need to get out. DEB X > I don't have the rash on my face but I had a chest rash this winter that > really drove me crazy with itch. It was where I had gotten a slight [quoted text clipped - 3 lines] > > Diane |
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