They let me come home from the hospital last night. I wasn't prepared at all
for my energy being so low or for my breathing to be so bothersome. I had to
rest for 15 minutes in the parking lot at the hospital before I had the
energy to start the car up then needed help from the car to I go into the
house. I had gained over 20 pounds in the past 6 days and could hardly get
behind the wheel.

I'm on twice the oxygen I was on a week ago. I had gotten down to 7 mg's of
Prednisone a day and I am not complaining but am back to 40 mg's now. A
whole new set of stretch marks!

I've had such a hard time getting used to having to move so slow..no energy
around breathing right now. They say I will get better with time but then,
this is the first cold I've had since these lung problems first started 3
over years ago.

Living alone has become so scary. I don't think. I've ever felt as helpless
as I did last night. When I finally got out of the hospital parking lot I
had to go to the drug store (of course) they were really busy and the lady
pharmacist that works there is always so nice and last night she just bit my
head off when I told her I was in a real hurry (and I never ask for fast
service.always willing to wait). I called her today to she if she was all
right (they were running her ragged anyway last night) so I could explain
that it wasn't the waiting I minded.

I was afraid I would run out of air in my tank.

Oh well. I'm having such a hard time typing I'm going quit and go to bed, I
think. I have to have some early lab tests done tomorrow and am already
starting to worry about how I'm going get there. Maybe I'll take a cab this
time.

Thanks to all of you for writing me all the nice emails and caring about me
so much. I'm just kind of scared right now.

Michael