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Medical Forum / Diseases and Disorders / Lupus / December 2004My rheumy wanted me to take imuran
I had stopped taking it for awhile when I got really sick. I told him about it but he figured it might have been food poisoning. Now I'm not so sure. I took it with food and no other meds to make sure whatever happened I could pin down. Looks like imuran might be out for me. I was got really sick again. When I called him he said to stop it and just take my other two (plaquenil and pred). He wanted me to use the imuran to get me off pred. Funny. My rheumy in Missouri (I live in New Jersey now) had me taking the plaquenil to get me off pred. I called the pharmacy to make sure it was the med and not possibly a bad lot. Nope, the pharmacist said it can cause the reaction I got. Nell Hi Nell, Sorry to hear that the Imuran is not going to work out for you. I have been on it for quite a while now and it certainly has helped me. I am off pred, and have only had to take it again for brief intervals. Perhaps there is another option that will agree with you. I wish you luck finding something. BJ-Sk. Canada > I had stopped taking it for awhile when I got really sick. I told him > about it but he figured it might have been food poisoning. Now I'm not [quoted text clipped - 9 lines] > > Nell Had you tried Methotrexate yet? Often I have heard that it is second choice. As far as the prednisone, I can thank it for my diverticulosis and my osteoporosis. At least I know I won't develop these issues when I take prednisone in the future. How long have you been on the Plaquenil? What amount are you taking? It took almost full nine months to work on me. After three years on the Plaquenil, my stomach went crazy and had to come off. Have been on the Methotrexate for over a year now and it's been the most successful for treating my symptoms, of which I have TOO MANY! When you say you got really sick, in what way? Is your pain medication adequate? The rheumy in Missouri makes more sense to me then the one in NJ but all doctors are different as turkeys are to chickens. They all have feathers but. Hopes this post finds you feeling better! Always, ..? ???)) -:?:- ?.?? .????)) ((??.?? ..?? cloud -:?:- -:?:- ((??.??* >I had stopped taking it for awhile when I got really sick. I told him about >it but he figured it might have been food poisoning. Now I'm not so sure. I [quoted text clipped - 9 lines] > > Nell I don't mean to discourage you but......I'm under the impression that osteoporosis can be caused (or made worse) by Prednisone. I didn't have osteoporosis until I started on large doses (60mg/day) of Prednisone. I have to take Forteo injections for the Osteo. There are other med's to take for the osteo. too but I understand Pred. to be a cause of the osteo. As far as the chemo goes. I took Imuran last year and am on Cytoxan now. Don't be afraid of em. I haven't lost my hair with either and other than a little nausea and low energy, they're not so bad. I also haven't had a flar that put me in the hospital since I started taking the Cytoxan. Just my 2 cents worth. Michael > Had you tried Methotrexate yet? Often I have heard that it is second > choice. [quoted text clipped - 38 lines] > > > > Nell > I don't mean to discourage you but......I'm under the impression that > osteoporosis can be caused (or made worse) by Prednisone. I didn't have > osteoporosis until I started on large doses (60mg/day) of Prednisone. I have May I say, without judgement, that it is indeed the case that prednisolone use can cause osteoporosis. This is a well documented fact and not scaremongering. Size of dose and length of treatment will have an effect, as will the presence of other risk factors. The longer you are on it and the higher the dose, the more likely you are to develop prednisolone induced osteoporosis. I think age will have an effect too as bone density develops in youth and childhood and declines with age. I have heard that short IV pulses of prednisolone do not carry the same risk for osteoporosis as tablets but I don't know if this is true. > to take Forteo injections for the Osteo. There are other med's to take for > the osteo. too but I understand Pred. to be a cause of the osteo. [quoted text clipped - 7 lines] > > Michael >>I don't mean to discourage you but......I'm under the impression that >>osteoporosis can be caused (or made worse) by Prednisone. I didn't have [quoted text clipped - 22 lines] >> >>Michael My PCP put me on Fosomax since I am pre osteoporosis (can't think of the term right now). Nell >>> I don't mean to discourage you but......I'm under the impression that >>> osteoporosis can be caused (or made worse) by Prednisone. I didn't have [quoted text clipped - 30 lines] > > Nell Hi Nell, Would that be osteopenia? Bones are thinner than they should be but not enough to qualify as osteoporosis? I was prescribed fosomax too but it gave me acid indegestion and diarhoeea. My docs agreed with me I was at too high a risk for GI bleeding to tolerate these side effects. I am on warfarin and aspirin too. I am now taking IV pamidronate for the osteoorosis. Next one January 6. I am only 38 so we all want to get my bones as stong as possible before I get menopause, as post menopause bone density can go way down, which could be scary when I already have osteoporosis. Get on Forteo ASAP....It's about $700. a month but they have an excellent PAP plan if your insurance won't pay for it, you can get it free every month. All you have to pay is a $12.00 service charge to the RX and the needles themselves cost about 30 bucks (I think) for 100 (3 months). It's a daily injection using an insulin type pen. Michael > >>> I don't mean to discourage you but......I'm under the impression that > >>> osteoporosis can be caused (or made worse) by Prednisone. I didn't have [quoted text clipped - 43 lines] > menopause, as post menopause bone density can go way down, which could be > scary when I already have osteoporosis. Hi, What is Forteo? Is it a drug? I am in the UK, we have our free National Heath Service paid through general taxation, private doctors and health insurance are too expensive here for most people, we get what our doctors decide for us and that is that. Very few people have private health insurance. Those who do will often end up getting the same doctors and treatment as those who use the National Heath Service. Most doctors are open to suggestions but usually if they think the budget can afford it, the budget of the local health authority. It is a completely different system here to in the states, the advantage being it is free to almost all ((UK residents) but a lack of choice and control is the disadvantage, those with a good doctor will be ok but a lot of it depends on what part of the UK we live in, for example when I lived in Wales my treatment was very poor, but now I am in a district neat Andy I see an very good rheumatologist. But we cannot demand to be given a treatment of our choice. Thank you for the suggestion. > Get on Forteo ASAP....It's about $700. a month but they have an excellent > PAP plan if your insurance won't pay for it, you can get it free every [quoted text clipped - 64 lines] >> menopause, as post menopause bone density can go way down, which could be >> scary when I already have osteoporosis. http://health.discovery.com/encyclopedias/reference/drug.jsp?drug=45568 What is teriparatide? FORTEO . Teriparatide is a man-made form of the naturally occurring hormone parathyroid. Teriparatide forms new bone, increases bone mineral density and bone strength, and as a result, reduces the chance of getting a broken bone. . Teriparatide is used for men and women with osteoporosis who are at high risk for bone fractures. . Teriparatide may also be used for purposes other than those listed in this medication guide. If you click on the link it will give you more info on what the drug is. Sherry |
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