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Medical Forum / Diseases and Disorders / Lupus / November 2004

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Nodules

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saskie - 24 Nov 2004 16:43 GMT
I was not sure what to call these but if I had given it a thought I would
have said nodules as my husband has Non Hodgkins Lymphoma and I am forever
palpating his lymph nodes.  Not really, he won't let me but I want too.
Thank you for your replies; BJ you are the first real person I have met who
has had these; I have them down the length of radius in both arms but they
are not painful.  I will get myself off to my Dr. here in town, he is very
well versed in autoimmune disorders.

Thank you J for the website; I will post the Dr. Wallace blurb later.  I
think you are right about the muscle perhaps being the problem with the
pain.  I am sorry you had such an experience with the removal; that is what
concerns me as I have a small node on my eyebrow [neuroma] I am not sure but
I will let no one touch it.

Saskie; very cold and dark here
BJ - 25 Nov 2004 15:57 GMT
I would be interested in what your doctor has to say about the nodules.
Particularly since I have them strung like beads along the sides of my
bones. I have never asked anybody about those. Only the ones on my spine
were talked about and treated. The others never hurt, so I let that one go.
Maybe it is a Sk, climate thing. <g> Seems we are the only ones that have
these little goodies. Good luck.
BJ-Sk. Canada
> I was not sure what to call these but if I had given it a thought I would
> have said nodules as my husband has Non Hodgkins Lymphoma and I am forever
[quoted text clipped - 11 lines]
>
> Saskie; very cold and dark here
J - 25 Nov 2004 19:19 GMT
> I was not sure what to call these but if I had given it a thought I would
> have said nodules as my husband has Non Hodgkins Lymphoma and I am forever
[quoted text clipped - 11 lines]
>
> Saskie; very cold and dark here

Hi I think BJ said something about the muscle.
It's hard to know what's on your eyebrow. When I looked up neuroma, I seem to
get either Morton's (foot) or acoustic neuroma (ear?/brain?). Your experience
could be different from mine, (we're all different).  3 (doctors) took guesses
at what the lump was and all were wrong (until after excision). One thought it
was bone or osteoarthritis, one thought it was attached to the bone, one thought
it was a rheumatoid nodule, another blew me off with a sebacious cyst idea and
gave me cream that seemed to make it worse..I think that was a harbinger of
things to come, in retrospect, becauwe I put a bandange over the cream and woke
up in the middle of night in severe pain, so the bandage must have been pressing
on nerves?).
I don't know what nerve pathways are in the eyebrow, but if we pluck a hair
there, we can sure feel it, eh? So there's got to be nerve pathways there.
Earlier you were asking about lupus profundus.
The only reason I wanted it gone was because of pain, so if you arm nodules
aren't hurting probably best to leave them alone?
If the eyebrow is unsightly and/or painful, maybe your GP can order up an EMG to
see if they can figure out nerve pathways, before surgery?  Just a thought.
J
saskie - 25 Nov 2004 15:50 GMT
The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and
speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like
nodules in the elbow area, which feel like little peas.  These nodules are
much smaller than those seen in RA and are of little clinical importance
except that they may cause the area below the elbow to fill up with fluid
when they break down"  The Lupus Book , Daniel Wallace, M.D.  Page 77

Strangely I do not have them in the elbow area but last night I was so itchy
and found a big one on my arm near my wrist and on my buttocks, just itchy
not sore.
The bump on my eyebrow comes and goes, it is there when I have bad neuralgia
; a Neuro I saw years ago said it is involvement with the 7th??  I think
cranial nerve.  So far feet and ear are alright so no neuroma; sorry for the
misuse of the term.
Another thing I wonder about is the ptosis of the eyelid, I have a hard time
opening my eyes really wide and have the hooded look , the eye fellow said
it is simple surgery but I will pass.  Also on my last exam the pressure in
one eye is up to 200; a sudden increase.
Carol in Sask Canada

> > I was not sure what to call these but if I had given it a thought I would
> > have said nodules as my husband has Non Hodgkins Lymphoma and I am forever
[quoted text clipped - 31 lines]
> see if they can figure out nerve pathways, before surgery?  Just a thought.
> J
J - 25 Nov 2004 22:06 GMT
> The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and
> speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like
> nodules in the elbow area, which feel like little peas.  These nodules are
> much smaller than those seen in RA and are of little clinical importance
> except that they may cause the area below the elbow to fill up with fluid
> when they break down"  The Lupus Book , Daniel Wallace, M.D.  Page 77

Thank you Carol for looking that up and typing it for us.
Hugs
J
BJ - 25 Nov 2004 22:29 GMT
I don't have them in the elbow area either, Carol. We must be misfits.
BJ-Sk. Canada
> The little blurb in Dr. Wallaces book is under Joints and Soft Tissues and
> speaks of rheumatoid-like nodules in the  elbow " may have rheumatoid-like
[quoted text clipped - 71 lines]
> thought.
> > J
J - 25 Nov 2004 23:37 GMT
> Strangely I do not have them in the elbow area but last night I was so itchy
> and found a big one on my arm near my wrist and on my buttocks, just itchy
[quoted text clipped - 7 lines]
> it is simple surgery but I will pass.  Also on my last exam the pressure in
> one eye is up to 200; a sudden increase.

Hi Carol, I'd like to withdraw the EMG idea on that bump on your eyebrow. I'd
forgotten about the neuralgia.
Might make things worse.

I don't know if it's the 7th of II/III rd cranial nerve
Have a look here. Maybe you can figure it out.
They also mention a large muscle that makes the eyelid open.
http://brighamrad.harvard.edu/Cases/bwh/hcache/357/full.html

I don't like the sounds of the eye pressure going up.
I think someone else had that here. Numerous have had tests for eye pressure but
I forgot who and what was found.
maybe BJ remembers.
Hugs
J
Beverley - 27 Nov 2004 14:20 GMT
That might have been me you were thinking about. Years ago I was tested for
some kind of arteritis at John Hopkins. The pain was terrible and by eye
sight was being affected. When I told the doctor he sent me to a
ophthalmologist who discovered the eye pressure thing. Well, they never
found what they were looking for - thank goodness as it was considered
deadly (Takayasu's arteritis. But so was lupus back in those
days.............. Shame they didn't pick up on the lupus but I don't think
they were looking for it. When I was dx'ed with lupus they used my medical
history and that episode was one of the places the doctor referred to as a
major lupus flare and questioned why John Hopkins never even tested or
considered lupus.

The problem started with pain in my neck. I think I have a lymph node under
the artery that swells and puts pressure on the artery. It feels like a
killer earache but it's the artery because you can follow it with your
finger. The pain is really bad and although I can move my neck/head when it
occurs I don't want to move it. John Hopkins tried to say it was an inflamed
strap muscle because they could find nothing conclusive after about 6 days
of trying. But it has hit several times since then and I find it does go
away especially if I have been given a round of antibiotics. I still say it
is from the lymph node and it's my body!!!! But it does screw up the
pressure in my eye. (And in those days testing the pressure in my eyes was
terrible. At John Hopkins they inserted little disks onto my eyeballs which
were connected to tubes to a machine. The ophthalmologist wasn't quite as
bad he used a tube that looked like a thermometer, cocked it and fired a
thing into my eye that bounced back up the tube. Damn, it hurt!! Now they do
it with a little puff of air. Isn't it wonderful when they actually improve
something!)

But the kicker to all of this is I now have trigeminal neuralgia. It is on
the same side as the "other" problem. I often wonder if somehow it is
connected.
Bev

> > Strangely I do not have them in the elbow area but last night I was so itchy
> > and found a big one on my arm near my wrist and on my buttocks, just itchy
[quoted text clipped - 23 lines]
> Hugs
> J
saskie - 27 Nov 2004 10:09 GMT
Bev, the pain you describe is similar to what I have, my eyes hurt when I
move them, usually by night but sometimes as soon as I wake up.  I have pain
in my right temple that no one wants to address it seems.  It is also on the
same side as the TMJ.  I never thought of your theory.
Carol
> That might have been me you were thinking about. Years ago I was tested for
> some kind of arteritis at John Hopkins. The pain was terrible and by eye
[quoted text clipped - 66 lines]
> > Hugs
> > J
Shelagh - 26 Nov 2004 20:14 GMT
<snip>"saskie"  wrote in message
> Also on my last exam the pressure in
> one eye is up to 200; a sudden increase.
> Carol in Sask Canada
</snip>

I too was told I am 'under suspicion' for glaucoma right now due to a sudden
increase in pressure in my right eye along with a minimal loss of peripheral
vision....
I was told as well that it may be due to the angle of my lens because I am
so short sighted;
I do have field vision studies done every 6 months as well as my eye
pressure is measured and my optic nerve viewed each time as well...
this news just came up last visit and the opthm. said not to worry and he
also did say that people with a high degree of short sight (which is me in
my right eye only) are more prone to chronic glaucoma (not acute);  he also
mentioned that diabetes is believed to increase the risk of developing this
condition..... I don't have diabetes, just lupus and I am being watched
carefully;
I would suggest that you too should have the 3 tests done regularly 'in
case'.
FWIW,
from Shelagh
Andy - 26 Nov 2004 21:12 GMT
In article <j8Mpd.357053$%k.154729@pd7tw2no>, Shelagh <noyb@myob.bc.ca>
wrote
[
>I too was told I am 'under suspicion' for glaucoma right now due to a sudden
>increase in pressure in my right eye along with a minimal loss of peripheral
>vision....

Our group had a talk from an eye doctor recently, and he said that
glaucoma can nearly always be successfully treated once it is diagnosed.
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

Beverley - 27 Nov 2004 13:47 GMT
It is important to catch glaucoma early enough to avoid damage to the eye.
The damage cannot be undone. (I have a niece with glaucoma and she's had it
since she was a very small child - maybe 4-5 years old when diagnosed.)
Bev

> [
> >I too was told I am 'under suspicion' for glaucoma right now due to a sudden
[quoted text clipped - 3 lines]
> Our group had a talk from an eye doctor recently, and he said that
> glaucoma can nearly always be successfully treated once it is diagnosed.
Shelagh - 28 Nov 2004 01:21 GMT
<snip>"Andy"  wrote in message
> Our group had a talk from an eye doctor recently, and he said that
> glaucoma can nearly always be successfully treated once it is diagnosed
> </snip>

Yes, I  was told the same; as I said it is 'suspiciously' presenting as
glaucoma and being monitored closely so I am not worried; my vision is not
changed 'to my perception'; time will tell and with luck it will be good
news!
......... Shelagh
saskie - 27 Nov 2004 10:12 GMT
Shelagh;
The increased pressure was found during a routine eye exam; the Optho guy
said my optic nerve and blood supply were 'wonderful' and so healthy and
then he tells me of the increase in pressure.  He said he is 99% sure I do
not have glaucoma and I am to come back in 6 months to go through the whole
thing.  Carol
> <snip>"saskie"  wrote in message
> > Also on my last exam the pressure in
[quoted text clipped - 19 lines]
> FWIW,
> from Shelagh
 
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