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Medical Forum / Diseases and Disorders / Lupus / September 2004

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Cellcept

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BerryOne - 25 Sep 2004 23:28 GMT
does anyone have any experience or know anything about treating SLE
with the medication Cellcept?
J - 26 Sep 2004 00:03 GMT
> does anyone have any experience or know anything about treating SLE
> with the medication Cellcept?

Hello Susanna,
I saw your post on sci.med and wondered why you weren't asking here.
So welcome :-)
So here you are and yes there's several (if not more) on cellcept.
Hopefully you'll get replies on that
Several have just posted recently about that.
What would you like to know?  Do you have SLE?

http://www.rheumatology.org/public/factsheets/sle_new.asp?aud=pat
More aggressive therapy is required for life-threatening and more serious
manifestations such as kidney inflammation, lung or heart involvement, and
central nervous system symptoms. Treatment in these circumstances might
involve high dose corticosteroids such as prednisone (Deltasone) and other
immunosuppressive drugs such as azathioprine (Imuran), cyclophosphamide
(Cytoxan),  and cyclosporine (Neoral, Sandimmune). Recently mycophenolate
mofetil (CellCept) has been used to treat severe lupus kidney disease.
Sometimes several medications must be combined to control the disease and
prevent tissue damage.[end quote]
J
BerryOne - 26 Sep 2004 15:12 GMT

> Hello Susanna,
> I saw your post on sci.med and wondered why you weren't asking here.
> So welcome :-)

Thanks J.

> So here you are and yes there's several (if not more) on cellcept.
> Hopefully you'll get replies on that
> Several have just posted recently about that.

I have been reading the thread. Very informative.

> What would you like to know?  Do you have SLE?

Yes, I have SLE and recently diagnosed with NP-SLE. I have been
struggling with lupus and all sorts of medications for over 16 yrs
now. I do get some breaks but flares seem to be worse each time.

Last visit to the hospital, my dr decided to switch me over to
Cellcept. That's why I was asking. :)

Susana

> http://www.rheumatology.org/public/factsheets/sle_new.asp?aud=pat
> More aggressive therapy is required for life-threatening and more serious
[quoted text clipped - 7 lines]
> prevent tissue damage.[end quote]
> J
Timothy Luders - 26 Sep 2004 17:56 GMT
>  
>> Hello Susanna,
[quoted text clipped - 17 lines]
> Last visit to the hospital, my dr decided to switch me over to
> Cellcept. That's why I was asking. :)

Linda (my DW) was switched from cytoxan to Cellcept a couple of years ago.
She is now off of both. She had a DNA-antibody test two or three weeks ago
and it came back negative - first time in many years. Other test are also
better than in a long time including the most important test of all; she
feels better. She still is a walking drugstore though (I'm sure you know
what I mean).

HTH and YMMV

Timothy
BerryOne - 26 Sep 2004 04:25 GMT
I found some information on cellcept at
http://abcnews.go.com/sections/living/Living/lupus_cellcept031027.html

it's an interesting piece to read

i jsut started on it, so i'll let you all know how it goes

susana
 
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