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Medical Forum / Diseases and Disorders / Lupus / August 2004

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Katerina - 31 Aug 2004 04:54 GMT
I want to thank you all for sharing and helping me understand this
thing we all have.  I have just started feeling some of the side
effects this Lupus has on people.  All the doctors have told me so far
is I am starting Lupus, but I am not full blown SLE  YET.. he says..
gee thanks dr. for the wonderful positive notes..  :)

I go see the rheumatologists this Friday for the first time with notes
and lab work in hand.  

I guess its getting to me finally that I am sick, today at work I
actually had to take a nap on my lunch break. I have never felt so out
of whack for better words, all this resting is hard for me to do.  At
first I just ignored it and now its letting me know it is in control.
I love reading your messages and they help me cope with all this new
changes my body is making with out my permission.

I wrote messages on here under Veronica because my husband would read
this to try and understand what I am going through and I finally
realized how wonderfully lucky I am to have someone who is trying to
understand before I even do.  *say prayers for him he needs all the
help he can get trying to keep me under control, I am a bit .. umm..
bullheaded  *smiles*

My real name is also Rhonda and please email or write back here to me
as I do read and will reply more now that I am finally starting to
accept, but not willingly doing so.  

Thank you all for your words of support and your rantings, they help
me realize that others really do understand what I am going through.

Katerina_98  aka Rhonda Z
Boo - 31 Aug 2004 07:04 GMT
> My real name is also Rhonda and please email or write back here to me
> as I do read and will reply more now that I am finally starting to
> accept, but not willingly doing so.

My real name is Boo.  But I am thinking of changing it to Boo-Hoo, because
life is giving me such a difficult time. hehehehehe he he.
Glad to have you here.

B.
BJ - 31 Aug 2004 15:05 GMT
Hi Katerina,
Now I am confused. :)) It doesn't take much to do that, I am afraid. I don't
know what to call you. I think I will go with Katerina, since there are
other Rhondas on the group. I am glad you have such a supportive husband.
Our families do need our prayers as they try to cope with our illness. I
wish you luck when you see the rheumy on Friday. Please let us know what
he/she finds.
BJ-Sk. Canada
> I want to thank you all for sharing and helping me understand this
> thing we all have.  I have just started feeling some of the side
[quoted text clipped - 27 lines]
>
> Katerina_98  aka Rhonda Z
Norman & Wende - 31 Aug 2004 15:21 GMT
Welcome Rhonda, you have come to the best group there is for support and
information. I usually am in "lurk" mode. However thought I would say hello
to you. I am tired too, as are most of us. I don't like the changes my body
has made without my permission either. Kcat and Andy, have very informative
web sites regarding Lupus. Check them out. I hope you feel better soon.
Wende
> I want to thank you all for sharing and helping me understand this
> thing we all have.  I have just started feeling some of the side
[quoted text clipped - 27 lines]
>
> Katerina_98  aka Rhonda Z
 
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