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Melody M - 21 Jun 2004 05:05 GMT

Hi everyone,
This is lupielassy. We just got a new web so I had to get a new pic for
it. Thinking about lupylassy, what does everyone think? I have not
posted in so long. I really missed reading the discussion group and
everyone. How is everyone doing? I hope all is well. Melody aka
lupielassy

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J - 21 Jun 2004 07:52 GMT

> Hi everyone,
> This is lupielassy. We just got a new web so I had to get a new pic for
> it. Thinking about lupylassy, what does everyone think? I have not
> posted in so long. I really missed reading the discussion group and
> everyone. How is everyone doing? I hope all is well. Melody aka
> lupielassy

(screen name you mean ?) or a name to go with a pic?
Either one or your original "lassy" sounds good to me. :-)
Good to have you back, Melody.
How are you ? Did the flu shots work out ok for you? It's been so long
since we've heard from you.
Hugs
J

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BJ - 21 Jun 2004 14:08 GMT

Hi Melody,
It has been a while. How are you doing?
BJ-Sk. Canada

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Melody M - 22 Jun 2004 02:14 GMT

Pic?? LOL I ment to say nic. I am doing ok my neuro has me on 3,000 mg
of keppra. That stuff really messes with my cordnation and balance and
speach. I want to say something but it comes out all jumbbled. and it
makes me zombiefied. I want off of it. I still can't get anyone to
give me a ct scan or mri to follow up on my brain lesions. My rhummey
started me on dapsone for my rash on my arms. My oldest daughter is
complaining of alot of joint pain and run a low grade fever, I am
concerned about that but her doc doesn't think it warrents to test for
lupus. Doc said its growing pains.

I had my court date for ssi still no word yet. All in all i think it
went rather well. They brought in my medical file took three big trips
from the car, I thought it was kinda funny. My lawyer thinks I have a
good case, I hope so. I told my regualr doctor I wanted a new neuro but
trying to find someone to take medical is impossiable because I guess
its a speciality field. I dred going because my neuro is rather short
tempered.

Did I mention I really missed you all (((((((everyone)))))))) It is so
good to be back.

I don't know anyone else close by that has lupus who can relate. This
group is just wonderful. Everyone here cares. I love you all. Melody
aka lupielassy

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J - 22 Jun 2004 11:16 GMT

> Pic?? LOL I ment to say nic. I am doing ok my neuro has me on 3,000 mg
> of keppra. That stuff really messes with my cordnation and balance and
[quoted text clipped - 20 lines]
> group is just wonderful. Everyone here cares. I love you all. Melody
> aka lupielassy

Hi Melody, What a great idea to take your whole medical file. I can see
their eyes roll as each box comes in.
Good thing somebody helped. Best wishes with that !
I'd do something to get the neuro's attention, like when I went in, I'd say
"hey doc, did you hear the one about, oh never mind"..(then paste a big
smile on your face...or "what's up doc" (and big smile) . If he's mean to
you, I sure hope you can find another somehow..unless you can somehow
manipulate him into getting a bed side manner <smile>
Best wishes with the dapsone, hope it works for you.
It's a worry isn't it, when our kids start having symptoms. Hopefully the
answers will come out as time goes by.

Speaking of which, how long has it been since your last CT-scan or MRI ?
It's not good to have them too frequently, because exposures (over time) can
also do harm. So I was just wondering...

Thanks for clarifying about the nic. If you want it for newsgroups, don't
you want it to show up as your poster name?
(instead of Melody)? Just wondering, unless you're using it for Chat or
something else.
Huggers for you and welcome back !
J

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