I'm seeing my doc tomorrow morning for agoraophobia & wondered if there's a
link with lupus. I've been suffering from panic attacks for over a yr which
has escalated to agoraphobia in the past 6 months. Anyone else out there
with similar problems? I have a very hard time going to the store, ie
checkout, or driving, period, especially if it's more than 2 miles. The
freeway is now out of the question; I'll go whatever it takes to avoid
highways. Help!! I don't want to become one of those people who are
housebound; always thought they were whacked until it happened to me.
Thanks,
Candi
Beverley - 09 Jun 2004 00:32 GMT
BTDT, don't know if it is associated with lupus. Supposedly you need
counseling and anti-anxiety meds to cure it. I was given some meds for a
while. I guess I just got over it. There are some books on the subject and
maybe I should read them. I still occasionally have a panic attack. Being
home still feels more comfortable.
Bev
> I'm seeing my doc tomorrow morning for agoraophobia & wondered if there's a
> link with lupus. I've been suffering from panic attacks for over a yr which
[quoted text clipped - 8 lines]
>
> Candi
REP - 09 Jun 2004 12:09 GMT
> BTDT, don't know if it is associated with lupus. Supposedly you need
> counseling and anti-anxiety meds to cure it. I was given some meds for a
> while. I guess I just got over it. There are some books on the subject and
> maybe I should read them. I still occasionally have a panic attack. Being
> home still feels more comfortable.
Don't have lupus, was never agoraphobic, but had what turned out to
intense anxiety attacks (adernaline rush, jitters, pounding heart,
sweating hands, feeling of terror) over just about anything. Probably
still would, if not for wonderful Buspar.

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Maggie - 09 Jun 2004 13:12 GMT
Hi Candi:
I don't have any answers for you on this, but I hope you find your
answers this morning.
You'll be in thoughts...
Maggie
doe - 09 Jun 2004 01:57 GMT
>Subject: panic disorder/agoraphaphobia/quiclky pls
>From: "Candi Bowen" reenbow@neo.rr.com
[quoted text clipped - 11 lines]
>
>Thanks,
Well .. phytic acid is being used to treat anxiety / panic .. and heavy
addictions.
Phytic acid is an iron binder ..
Lupus has been shown to be involved in elevated iron levels evidenced by the
fact the sunblock being marketed TO those with lupus has iron binders
SPECIFICALLY placed in it in order to bind the iron KNOWN TO EXIST IN THOSE
WITH LUPUS ..
But .. that is just TOO .. clear ..
Too easy to understand ..
Who loves ya.
Tom

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Chaos Hill - 09 Jun 2004 14:19 GMT
I have no advice or suggestions - but anxiously await your report after you
see the doc!
I have had this problem as well and it comes and goes - but on all points I
am on the same page. Stupid things can trigger it - as in most of my flares
of various types - many a day I simply cannot leave this house no matter
what and if I do then I pay. I bawl. I tell myself that my little patch of
woods is enough and all I ever wanted anyway. Until cabin fever bites my
head off and I have to get out - this can sometimes be disastrous. It adds
to my depression.
What to do? I turn up the radio - or turn down the radio, sometimse I fall
apart - I dash madly out of stores or plop my tush on the floor like a
marionette that someeone let go of the strings. If too many people get
behind me I panic like a cornered critter and they seem to suck my air.
Oh boy I wish I had my magic wand back!
I wish you the best Candi! Let us know what your doc sez -
Leslie
> I'm seeing my doc tomorrow morning for agoraophobia & wondered if there's a
> link with lupus. I've been suffering from panic attacks for over a yr which
[quoted text clipped - 8 lines]
>
> Candi
KCat - 09 Jun 2004 18:16 GMT
> I'm seeing my doc tomorrow morning for agoraophobia & wondered if there's a
> link with lupus. I've been suffering from panic attacks for over a yr which
[quoted text clipped - 3 lines]
>
> Candi
I didn't see this until this a.m.
while I wouldn't say it is directly linked - any psychological "problem" can
be a result of lupus *if* there is activity of the disease in the brain. If
you've dealt with CNS lupus than it's possible that you are seeing a
manifestation of changes in the brain from the disease. But that's kind of
a reach I think... for the most part.
I am not so much agoraphobic as I just don't like to get out anymore. The
connection to the lupus is there for me - but it's not direct. I am very
photosensitive. I have a fear of getting out and being stuck out in the
sun. Now, most of the time that doesn't keep me from doing what I *need* to
do but it can keep me from doing things I'd like to do. But it's not a
panicky feeling - just "oh crud, it's sunny and I really don't want to go do
this on a sunny day..." I do get a little panicky if I've been out running
errands and start feeling the effects of the UV exposure - nausea, mild
fever, major fatigue. it's not a full blown panic attack.
Some panic attacks may be atypical asthma in disguise. If you have a panic
attack while out due to allergies to mold, pollen or whatever, you might
then connect it with the activity rather than the true cause. Would this
lead to agoraphobia? Dunno as I'm not an expert on this. I do know that my
panic attacks tend to be related to a sense of not being able to get my
breath and they happen sometimes when lying down (lungs compress, sensation
of not enough oxygen, panic) or after exposure to an allergen (perfumes,
etc.) The brain thinks you're not getting enough oxygen and you start to
breath faster and soon you're in the hyperventilation state and panicking
and feeling light-headed.
keep in mind...

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I am not a Lupus/Fountain Pen Expert. I am not a Medical Doctor. I do not
make my living in medicine or in fountain pen repair. All opinions herein
are based solely on my experience and observations. Take them with a grain
of salt (unless you have high blood pressure...)
Chaos Hill - 10 Jun 2004 14:56 GMT
Well put dear kitty cat - - sometimes the mere knowledge that such and such
is going to lead to a flare leads to apanic attack! In my case it is the
CNS and yes the photosensitivity.
Now I have to ask you Karen as I wrestle with the urge to get out and the
need to stay home - how do you stay sane!? Suffering cabin fever lately, yet
have to keep close to home and not get worn out and not end up in bed for a
week and I hae lately gotten sick and tired of it!
Leslie
> > I'm seeing my doc tomorrow morning for agoraophobia & wondered if there's
> a
[quoted text clipped - 36 lines]
>
> keep in mind...
KCat - 10 Jun 2004 16:40 GMT
> Well put dear kitty cat - - sometimes the mere knowledge that such and such
> is going to lead to a flare leads to apanic attack! In my case it is the
> CNS and yes the photosensitivity.
>
> Now I have to ask you Karen as I wrestle with the urge to get out and the
> need to stay home - how do you stay sane!?
I don't. I think I am just slightly nutty in part because I do not get out
much. Sometimes I get outside after dark with the dog and just sit there
and listen to all the wonderful night sounds. Poor hubby, he gets home and
I start chattering. He gets frustrated with me but... all day long and
your only conversations are with your dog or with 'net friends and you
*have* to talk. And of course, in this part of the world where summer is a
sauna - that's the worst time of the year for me. I get depressed after too
many days of sunshine.
>Suffering cabin fever lately, yet
> have to keep close to home and not get worn out and not end up in bed for a
> week and I hae lately gotten sick and tired of it!
Don't I know it. We have a rule when we go out - 3 stops maximum. So - we
have to decide what our 3 priorities are on a Saturday planned as an errand
day. Things like "Walmart to replace the laundry basket that broke,
followed by lunch, followed by the drug store to pick up x, y and z." or
when we got our tax return "Circuit City, followed by Best Buy, followed by
lunch." Lunch almost always takes up one of the 3. :-) Inevitiably when
we go past the 3-stops rule, I end up sleeping the rest of the day and
having to nap the next day after church.
Chaos Hill - 11 Jun 2004 14:44 GMT
we have a two hour restriction also - I seem to cave after
that..................
once upon a time we were busy all over the place - - but at least we are in
a place where we want to be and so I don't mind the scenery
Leslie
> > Well put dear kitty cat - - sometimes the mere knowledge that such and
> such
[quoted text clipped - 26 lines]
> we go past the 3-stops rule, I end up sleeping the rest of the day and
> having to nap the next day after church.