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Medical Forum / Diseases and Disorders / Lupus / May 2004Thinking about posting :-)))
I have been browsing here off and on for several months when reading on the diabetic support group is low. It's usually when I cannot sleep. NOT to mean you all are not *worthy* reading, I just shrink from adding more support groups. My history is LONG and complicated, and *life* has affected my health, and I feel is relevant for understanding *why, what, and who* I am today. This is said so that you have the option to delete *my story* when you see it coming. LOL In *short*, I am a 62 y/o mom of three children, four granddaughters, and one great-grandson *s*, with generic abnormalities (surgical correction required and passed to all three kiddos), a childhood of lung problems (think early asthma), rheumatic diseases, e.g. r. fever and nephritis, and heart disease - endocarditis, everything escalating after marriage, and exploding after my first childbirth, with rheumatoid arthritis hitting me like a two ton truck suddenly one night. I am on 20 mg Prednisone (only part of my morning cocktail), unable to decrease until I am back on Methotrexate (*my* miracle drug), hopefully by early June. My heart goes out to each one here, and (((((HUGS)))) to ALL! Billie Son and Great-Grandson Matthew at Christmas: http://wagesloft.net/jimbomatthew4.jpg Me, 6:30 Christmas morning :) http://wagesloft.net/beforesunup3.jpg Hi Billie, Thank you for sharing your story. I am glad that your browsing brought you to us. I hope you will add us to your list of support groups and join in the discussions whenever you can. We all have so much to learn from each other. BJ-Sk. Canada > I have been browsing here off and on for several months when reading on the > diabetic support group is low. It's usually when I cannot sleep. NOT to [quoted text clipped - 25 lines] > Me, 6:30 Christmas morning :) > http://wagesloft.net/beforesunup3.jpg This will be my first post here ---- but my ?interest? is a bit diff than Billie's in that I am not the one "suffering" (in any physical sense - to speak of) but someone for whom I care greatly does have Lupus AND "I haven't a clue" as to what she is going through --- so my education begins NOW. P.S. I have chosen this particular "placement" because she too is in Canada. > Hi Billie, > Thank you for sharing your story. I am glad that your browsing brought you [quoted text clipped - 33 lines] > > Me, 6:30 Christmas morning :) > > http://wagesloft.net/beforesunup3.jpg > This will be my first post here ---- but my ?interest? is a bit diff than > Billie's [quoted text clipped - 4 lines] > > P.S. I have chosen this particular "placement" because she too is in Canada. Hello NYer and welcome to alt.support.lupus There's a number of us here who are from Canada. I think you'll find reading the posts will be very informative as to what that person might be going through. If you find a topic hasn't been covered, check the FAQ http://www.ghg.net/schwerpt/ASLFAQ/index.htm or Andy's.. How about joint pain, fatigue, frequent checking of the bloodwork, often being followed by many types of specialists (sometimes co-ordinated by one main doctor). Tired of being told "you don't look sick". Or tired of being told "you do look sick". Tired of being on steroid, if applicable (and the side effects). Maybe you can fill us in on what the person is experiencing? Best, J Thx for the response "J" and I will definitely be reading up on the previous posts. Most of what you outline are things she either has stated outright, or at least eluded to at one time or another --- especially the "pain". However, part of the difficulty is that she "doesn't want to burden me" or "BE a burden to me" so specifics are hard to come by ! ? ! ?  Signature{~._.~} /)/) I may not be this ( 0 ) ( ?.?) "cute" ()~*~() o(_('')('') but I'm playful (_)-(_) --- thx agn - jts > Hello NYer and welcome to alt.support.lupus > There's a number of us here who are from Canada. [quoted text clipped - 12 lines] > Best, > J >This will be my first post here ---- but my ?interest? is a bit diff than >Billie's >in that I am not the one "suffering" (in any physical sense - to speak of) >but >someone for whom I care greatly does have Lupus AND "I haven't a clue" >as to what she is going through --- so my education begins NOW. You could begin it here: http://www.northeastlupus.org.uk SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Thx - will do -- jts Signature{~._.~} /)/) I may not be this ( 0 ) ( ?.?) "cute" ()~*~() o(_('')('') but I'm playful (_)-(_) > >This will be my first post here ---- but my ?interest? is a bit diff than > >Billie's [quoted text clipped - 4 lines] > > You could begin it here: http://www.northeastlupus.org.uk > You could begin it here: http://www.northeastlupus.org.uk Andy, I took a quick peek and ended up on a page where there's picture of a man and a dog. Is that you? J In article <40963BD9.584C79F4@execulink.com>, J <DownLoad@example.org> wrote >> You could begin it here: http://www.northeastlupus.org.uk > >Andy, I took a quick peek and ended up on a page where there's picture of a man >and a dog. >Is that you? No - the man is Stewart MacFarlane, our Group's Patron and well-known (hereabouts) on local radio. Not sure what his dog's name is. SignatureAndy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more! Hi NYer, I would like to welcome you. Please feel free to ask questions. We are here to help. BJ-Sk. Canada > This will be my first post here ---- but my ?interest? is a bit diff than > Billie's [quoted text clipped - 51 lines] > > > Me, 6:30 Christmas morning :) > > > http://wagesloft.net/beforesunup3.jpg Thank you for the welcome. I am sure that questions will spill forth as I read. Signature{~._.~} /)/) I may not be this ( 0 ) ( ?.?) "cute" ()~*~() o(_('')('') but I'm playful (_)-(_) see ya -- jts > Hi NYer, > I would like to welcome you. Please feel free to ask questions. We are here [quoted text clipped - 61 lines] > > > > Me, 6:30 Christmas morning :) > > > > http://wagesloft.net/beforesunup3.jpg Not doing so *hot* today, as we are having a weather change, plus my diabetes is up today, too. I'd like to toss these autoimmune disease in the Mississippi! Just took meds, and hopefully might feel like *talking* later. Have my 14 y/o granddaughter here, so *all* of my time is not mine. Billie : I have been browsing here off and on for several months when reading on the : diabetic support group is low. It's usually when I cannot sleep. NOT to [quoted text clipped - 8 lines] : Me, 6:30 Christmas morning :) : http://wagesloft.net/beforesunup3.jpg |
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