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Medical Forum / Diseases and Disorders / Lupus / May 2004Those aloe pills
I think they are actually helping. For those who have IC - I recommend talking to your doc about trying these. I've been on them for a month now and I do believe I'm getting some relief. The other day I realized I hadn't taken any Usept in several days. That's odd because I was to the point of having to take it daily. And I didn't get my monthly infection??? still a few days before I can say that last part too confidently but it's been over 30 days. http://www.desertharvest.com/interstitial_cystitis.html most of ya'll know I'm not a big advocate of alternative medicine - but I think this is worth looking into if you have IC or IC-like problems. Desert Harvest's pills are much different from GNC's or similar products. GNC et. al. use just the aloe goo - DH is whole leaf. GNC et. al. have about 25-50 mgs of the *assumed* active ingredients. DH has 200 mgs. I did have a mild burning the first week of use - that faded within moments. I have not had any since! I take 2 tablets 3X a day (vs. 3 tablets BID.) They are large capsules and I have choked on them 3 times. I now know that one must really have a lot of water in your first gulp - these use an all-natural gelatin capsule that will stick to your esophagus very easily! kcat I'm so glad to hear you have found some relief. About using alternative meds. - obviously I think they are perfectly alright in some cases. For instance I wouldn't use acupuncture to "cure" a UTI. But if was the 5th UTI in a short period of time I'd be looking for something to "fix" what was causing the UTI's. I don't think there is some great cancer cure lurking out there. But there's a lot of stuff that falls under the category of "might help doesn't hurt". I've studied enough on herbs to know not to mess too much with them. A little might be good - too much of some can kill. So where is the line between enough and too much? Depends on the resource you are using and it varies!!!! It's a little like apple seeds -if you eat one or two it isn't going to harm you but they contain arsenic and are considered poisonous. On the flip side some things have no recognized value yet people will swear by it. So somehow I think we each have to wade into the water and decide for ourselves if there is value to what we are doing. Acupuncture has been around for ages and considering they put thin pins in the nerves and I'm using it because I have a nerve problem - well, it seems to be helping me. But honestly it probably falls under the category of "might help doesn't hurt". Really I am glad to hear that your aloe pills are working. I'll swear to the value of applying aloe directly (topically) to minor burns and other boo-boos along with what it has done for my husband and his psoriasis. I got him on aloe shampoos, etc probably 28 years ago and he's had almost no problem since then. (Unless he doesn't use it for some reason.) It's no miracle cure but it has kept the condition away. Bev > I think they are actually helping. For those who have IC - I recommend > talking to your doc about trying these. I've been on them for a month now [quoted text clipped - 23 lines] > > kcat > So somehow I think we each have to wade into the water and decide for > ourselves if there is value to what we are doing. Really I am glad to hear > that your aloe pills are working. I'll swear to the > value of applying aloe directly (topically) to minor burns and other > boo-boos along with what it has done for my husband and his psoriasis. I use CIMER (type that into Google and it's the first website that comes up) Then we have to put the info in context of our individual situations (and dose/quantity and the source of the product, I guess) Here's part of... From the summary section: What it is used for Traditionally, as well as today, aloe gel has been used to sooth dry or damaged skin, treat minor cuts and burns, and the latex which contains a substance called "emodin", has been used for constipation. The root is sometimes used for colic. In some parts of the world, such as India, aloe is used to treat intestinal infections. Aloe may be able to help stimulate the immune system, and may also have an anti-inflammatory effect. Adverse Effects Aloe is generally regarded as safe for use both on the skin, but it can be carcinogenic if combined with alcohol and sun exposure. It is NOT generally regarded as safe when used for constipation and can actually worsen the problem, or cause dependency, or bring about an electrolyte imbalance. An allergic reaction to aloe is considered rare but possible. Aloe should not be taken internally by pregnant women or those with irritable bowel syndrome as it may cause uterine stimulation. from the long teckky section... The leaf of the aloe vera plant contains an inner gel and an outer set of cells just below the leaf surface that yields a yellow juice or latex. The inner gel is used for the emollient, moisturizing and other healing effects that aloe is thought to contain. The outer latex contains a substance known as emodin that is a gastrointestinal irritant responsible for cathartic effects1. (This substance is discussed further within the toxicity section.) Aloe vera contains anthraquinones, salicylates, magnesium lactate and polysaccharides. The concentration of substances may be affected, however, by growth, harvesting and processing How's it going KC? Still working? I might have someone else interested... J > I think they are actually helping. For those who have IC - I recommend > talking to your doc about trying these. I've been on them for a month now [quoted text clipped - 23 lines] > > kcat so far - so good. It's been 39 days without infection and though I haven't been able to quit a med, I have a greatly reduced need for Usept and/or pyridium. I would say that if someone is going to try it they need to stick to Desert Harvests recommendations of giving it at least 2 months. but yes, I'd say there's been significant improvements. kc > so far - so good. It's been 39 days without infection and though I haven't > been able to quit a med, I have a greatly reduced need for Usept and/or [quoted text clipped - 5 lines] > > kc thank you kc, I'm waiting the results from other lady as to whether she has an infection. She's got blood in her urine and cramping and bladder control problems. She's also had several surgeries, so it's hard to know what is causing what at this time. I may keep bugging you for updates. Hope you don't mind. Good to hear you're having success right through the 30 days ! That's great news. Hugs J it *really* is. definitely needs to make sure she is rid of any current infection. But i think if she has recurring problems than it is well worth trying. This was a recommendation from my urology NP - who's boss supports her opinions. Not just someone trying to make money off of me. there is or will soon be a peer-reviewed study in work to determine the efficacy of these pills. I'm impressed though. I'm certainly in a lot less pain than I have been for the past 2 years in that regard. k > it *really* is. definitely needs to make sure she is rid of any current > infection. But i think if she has recurring problems than it is well worth [quoted text clipped - 5 lines] > > k Hi KC, she's being referred to a urologist because blood keeps showing up in her urine and her BP is low. She's complicated. she has (apparently uncurable) thyroid cancer which usually doesn't spread elsewhere in the body, but she has had "female surgeries". In fact, they saw something on a CT-scan so went in and removed her last ovary and it was not cancerous. Good ness me ! So now they don't know if it's a complication of the surgery or when exactly the bleeding started, but apparently she does not have infection. The only other symptom she mentioned is loss of control of her bladder, so perhaps it is something to do with "somebody" changed something during the surgery? She did mention cramping but seemed to think it was a "flu". So I have to put a hold on the aloe idea. I did save your original post, so if applicable, she'll know which brand of aloe to take. Hugs and thank you for replying. J |
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