 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Lupus / April 2004Support
I've recently been called "narcissistic" and "Eeyore" for sharing some of my fears around the possibility of losing my Medicaid (Medi-Cal) coverage that pays for all my meds including the life-saving but very expensive Cell Cept for lupus. It occurred to me that I may be looking for support in the wrong place! I really can't expect people unfamiliar with lupus to begin to understand the trials and tribulations of living with the physical, emotional, social, and financial challenges this disease can pose. So I'm dipping a toe in here :) Please don't shove the cure-all diet or exercise program of the month on me, call me a whiner, pick on my weight (I was on prednisone from 1985 to this year), be angry with me for "living off " of your tax money, etc... and hugs for each of you :) Pam -- email address: beep at west dot net Rheumatic Disease info: http://www.sblupus.org blog: http://www.livejournal.com/users/beepbeep/ ßëëþ > I've recently been called "narcissistic" and "Eeyore" for sharing some > of my fears around the possibility of losing my Medicaid (Medi-Cal) [quoted text clipped - 14 lines] > > Pam Hi Pam, welcome to alt.support.lupus You've found the right place for support. ( ( ( ( Pam ) ) ) ) J > > So I'm dipping a toe in here :) Please don't shove the cure-all diet > > or exercise program of the month on me, call me a whiner, pick on my [quoted text clipped - 9 lines] > ( ( ( ( Pam ) ) ) ) > J Welcome to the family Pam Vent of life all you wish here . Non will condem your thoughts. We the people would be brighter and healther if 90% of OUR tax , covered all education and health. Bruce On." see Bev I can soapbox at times:))) " Welcome. I'm sure there are a few out here that have been down those same roads with Medi-Cal and can probably offer some help. We're pretty used to people not understanding the problems of course it still frustrates us. But we also celebrate the little things we do accomplish (CGT's). So often this disease has to be measured in small increments. Bev > I've recently been called "narcissistic" and "Eeyore" for sharing some > of my fears around the possibility of losing my Medicaid (Medi-Cal) [quoted text clipped - 20 lines] > blog: http://www.livejournal.com/users/beepbeep/ > ???? >Welcome. I'm sure there are a few out here that have been down those same >roads with Medi-Cal and can probably offer some help. [quoted text clipped - 4 lines] >increments. >Bev just to clarify - a CGT is a "Cheesy Good Thing" BFOT(D/W/M) is Brain F*rt of the Day, Week or Month. :-) *********************************** KCat - I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/kcspages/ http://www.ghg.net/schwerpt/ASLFAQ/ ("`-''-/").___..--''"`-._ (`6_ 6 ) `-. ( ).`-.__.'`) (_Y_.)' ._ ) `._ `. ``-..-'' _..`--'_..-_/ /--'_.' ,' (()),-'' (()),' (((.-' Hi Pam, This is the right place to find support. There are many understanding and helpful people here. You are right. I believe you have to have lupus or some other chronic illness to really know what it is like. Talk to us about anything. I would like to welcome you. BJ-Sk. Canada > I've recently been called "narcissistic" and "Eeyore" for sharing some > of my fears around the possibility of losing my Medicaid (Medi-Cal) [quoted text clipped - 20 lines] > blog: http://www.livejournal.com/users/beepbeep/ > ???? well - you'll find none of that nonsense here. We've been through it all. The group's FAQ "prohibits" (in as much as is feasible on the 'net) the posting of "snake oil" and other "cures." When asked, we are all more than willing to share our experiences with things that *help* but we are all very realistic about how different bodies react differently. This is a great group with not only a lot of knowledge and experience but a lot of support and caring. welcome and pull up a chair (preferably with a lot of cushions.) kcat *********************************** KCat - I am not a medical professional. The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/kcspages/ http://www.ghg.net/schwerpt/ASLFAQ/ ("`-''-/").___..--''"`-._ (`6_ 6 ) `-. ( ).`-.__.'`) (_Y_.)' ._ ) `._ `. ``-..-'' _..`--'_..-_/ /--'_.' ,' (()),-'' (()),' (((.-' Welcome to our group....I've been down the prednisone road too.. you should see my thighs Nice to meet you. We all get the eeyor syndrome every once and a while...here it is called have some cheese with your whine...everyone here is wonderful, and are very very helpful when you need to know something about Lupus or other connective tissue disorders. I have Lupus and RA. Hope to see you around sometime bye for now > I've recently been called "narcissistic" and "Eeyore" for sharing some > of my fears around the possibility of losing my Medicaid (Medi-Cal) [quoted text clipped - 20 lines] > blog: http://www.livejournal.com/users/beepbeep/ > ???? Hi Pam! Jump in. The water is nice and warm here, and we have shark nets in place! Hugs to you, Wes > I've recently been called "narcissistic" and "Eeyore" for sharing some > of my fears around the possibility of losing my Medicaid (Medi-Cal) [quoted text clipped - 14 lines] > > Pam Hi Pam, All I can add is a warm welcome! David p.s. to "Bruce On": >>We the people would be brighter and healther if 90% of OUR tax , covered all education and health.<< AMEN!! > Hi Pam! > [quoted text clipped - 22 lines] > > > > Pam |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.