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Medical Forum / Diseases and Disorders / Lupus / April 2004Unexpected trip
To the emergency room, I mean, and then admitted and worked up for a possible stroke. CT scan and MRI were negative. They also did an echocargiogram with a bubble test, which was negative as well. Symptoms were excessive PVCs and numbness and tingling on my right side, especially my face. Right now, they have attributed the symptoms to too high a dose of Synthroid and Cortef. I think perhaps they are right. I am home, but still extremely uncomfortable. That's scary!!!!!!!! Please take care. ((((((((((((((HUGS)))))))))))))) Bev > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. Aieeee. Hang in there, Wes! > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. Wes, What are we going to do with you? Take care. I hope it was just the meds and that they got you straightend out... Hugs Cindy > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. I don't know what this all means Wes, but do hope you feel better soon. Hugs J > > To the emergency room, I mean, and then admitted and worked up for a > > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 7 lines] > Hugs > J I don't know, J, but I'm still scared to death that I'm going to have a stroke. My endocrinologist called this morning to say that it can't possibly be from the dose of cortef or synthroid. There has to be another cause. When I was having the MRI, and they were injecting the contrast, the outside of my right upper arm felt as though it was on fire. This is so strange. I just don't need this right now! > > > To the emergency room, I mean, and then admitted and worked up for a > > > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 14 lines] > contrast, the outside of my right upper arm felt as though it was on > fire. This is so strange. I just don't need this right now! Wes, 26 years ago, when I had contrast to check my kidneys, I had the same thing happen with my right arm. It scared me. At the same time, I was in hospital getting diagnosed for thyroid problems. (so my thyroid levels were whacky at the time). I've since read on another newsgroup that there might be two types of contrast dyes, one has iodine. I don't know which you or I had - two are mentioned there. <http://www.clevelandclinic.org/heartcenter/pub/history/future/mri.asp?firstCat=5 6&secondCat=57&thirdCat=529> It says there to look for damage to the heart muscle. I know people can have mild heart attacks without having the damage show up on tests. It's a question of degrees and the number of times that it happens. My Dad had a mild heart attack after the doctor increased his thyroid med. He was okay after that. His heart remained strong but they sure kept an eye on his thyroid levels because he got mad at them. But he wasn't complicated like you are. I don't know which (all) tests rule in or out various heart problems but I do know that thyroid and heart problems are possible..AND cortef and heart problems http://www.thyroid.ca/Articles/EngE6A.html (thyroid and heart) http://www.rxlist.com/cgi/generic/levothy_wcp.htm Synthroid http://www.rxlist.com/cgi/generic/levothy_od.htm Synthroid Overdose http://www.netdoctor.co.uk/medicines/showpreparation.asp?id=2430 Cortef (and heart). So I wonder what planet your endocrinologist is from OR if he was trying to cover their collective butts. The thyroid canada web site above does not mention "lack of patient compliance" (in taking thyroid meds OR "mismanagment by doctors" - not monitoring/adjusting meds or understanding that one medication might affect the other condition. For example, I can't remember what thyroid problem you have. Thyroiditis is inflammation, so if you take cortef (or a steroid for inflammation), that might suppress your thyroid function whereas taking your medication does that too. So then the thyroid (IMO) is too hypothyroid so they have plan, monitor and adjust the meds for that. Similarly, if a person is taking too strong a thyroid med, they can have symptoms of hyperthyroidism, which certainly speeds up the heart. Feb 02 you said they checked your thyroid and a recheck was scheduled for 3 weeks later and now you have another bloodwork (at ER). Can you not get the results of all 3 and see what the results say? If they've not been monitoring and prescribing properly, then you can give them "what for" for that. I don't want to scare you, but I'd like to see this type of thing stopped before permanent damage occurs. (on the other hand, since you've mentioned adrenal and pituitary, maybe you are a "management nightmare" - there I go waffling again, because I'm not a doctor). Hugs J > Wes, > [quoted text clipped - 46 lines] > Hugs > J J, my friend, you can't scare me any more than I already am. Just the opposite. Information is power and ammunition, and you are supplying me with both. I am going to print all these things out. I think I have said before on this group that the endocrinologists in this town aren't worth the powder it would take to blow them up. They know one thing and one thing only...diabetes. Everything else is up for grabs. I am a management nightmare, because they must also include renal failure, hyperparathyroidism, and adrenal insufficiency. Therefore, it is crucial that my nephrologist has a hand in every decision. He is not happy with me being on so much Cortef, nor is he happy with the increase in Synthroid. The problem is that he is not the easiest guy to get hold of. I know he was on the phone with the docs on the floor, but I never saw him. I'm going to try to get hold of him tomorrow by phone, but I really need to see him at his office. And there is another problem. Every five minutes a different intern was coming through the door telling me something completely different. It was making me crazy. One minute I was being discharged, the next minute I was going for an X-ray, and the next minute something else. I was so glad to get out of there, but I really should have been kept for a few more days. However, they really don't do anything over the weekend, so I might as well be home. > > The thyroid canada web site above does not mention "lack of patient compliance" (in > > taking thyroid meds OR "mismanagment by doctors" - not monitoring/adjusting meds or [quoted text clipped - 6 lines] > > Similarly, if a person is taking too strong a thyroid med, they can have symptoms of > > hyperthyroidism, which certainly speeds up the heart. Hi Wes, I may have somehow messed the above up or forgot to say if a person's thyroid med dose is too low, then a person can be too hypothyroid which also is a risk for heart. But again, the bloodwork should show that. So don't quote me on any of the above. Cause I'd have to reread those urls then write up a thesis <g> Hugs J > J, my friend, you can't scare me any more than I already am. Just the > opposite. Information is power and ammunition, and you are supplying [quoted text clipped - 19 lines] > for a few more days. However, they really don't do anything over the > weekend, so I might as well be home. Hi Wes, My head just swims when you explain. It's not you, it's the complexity of the situation that is difficult for me to grasp. I know what you mean about those interns, they are enough to drive a person right out of the hospital <g> I suppose they could have had you on a heart monitor if you'd stayed? There may also be portable monitors - I forget what they're called. I'm sure it's possible to lower one or the other (thyroid or Cortef). The question would be which (or both) ? Perhaps the bloodwork would tell him which? Unless you are in immediate risk, I would think he would only make a small change, then monitor ? I sure hope you can reach the nephrologist and you feel some better soon. Hugs J > , so I might as well be home. > [quoted text clipped - 13 lines] > Hugs > J According to the endocrinologist (who has been really nice through this ordeal), my T4 is spot on, so he's happy with the dose of Synthroid. The Cortef may be a bit high, however. I'm to have an AM cortisol drawn tomorrow morning, so we'll see. If the Cortef dose is just right, then I should not have any side effects from it, such as swelling and increased appetite. I have both right now, big time. I hope he cuts it in half, but I don't think he will, not all at one time anyway. That would make the transplant docs happy. Speaking of which, I finally heard from my transplant coordinator. She was not happy that no one from the transplant team saw me while I was in hospital. They make me drive the 25 miles to that hospital specifically so that they can have some kind of control! Duh! She emailed everyone on the team twice. The nephrologist is still AWOL as well. She is going to email him again too. > According to the endocrinologist (who has been really nice through > this ordeal), my T4 is spot on, so he's happy with the dose of [quoted text clipped - 11 lines] > emailed everyone on the team twice. The nephrologist is still AWOL as > well. She is going to email him again too. Hi Wes, it seems to be called "hydrocortisone sodium succinate " so it's got salt in it? It does rather sound like you may be getting a bit too high a dose, but I don't know. You almost need a hotline (their pager numbers) to these doctors for when something comes up so you can bug them on their golf courses <wink> to meet you in hospital. Keep in touch and let us know how you're doing Big hugs J What are they going to do about the PVC's? I hope you can find some comfort this weekend... Sending you comfy thoughts and hoping you can get some relief RhondaM > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. I hope you are feeling better by now! Bin Saying prayers for you..... RhondaM > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. Hi there, I totally understand the PVC's. I get them ALL the time, and other arrythmias, too. Sometimes I get bigiminy, sometimes tri. A few times I actually get 5 PVC's then one good beat... that lasted about 20 minutes the last time, and I greyed out. Yuck. I sure do hope that yours is medicine related- it's not fun to live with this day by day. I know that I get more of them just before I get sick or before I start a flare- keep your eyes open for signs of either of these, then you can gauge the severity of the upcoming illness. Works about 80% of the time for me. Good luck, and if you're in the Encino, CA area, I have the name of a great cardiologist and electrophysiologist/surgeon. -Kristin Wes is sort of on the opposite coast. LOL But that's Ok I was thinking you were in Maine - don't ask me how I got Maine out of Calif. Bev > > To the emergency room, I mean, and then admitted and worked up for a > > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 16 lines] > cardiologist and electrophysiologist/surgeon. > -Kristin Hi Wes, I am sorry to hear that you have yet another problem. Take care of yourself. I hope answers are coming for you. BJ-Sk. Canada > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. The nephrologist finally called back, and he doubled the Procardia XL. I now take 30 mg twice a day. Hopefully, my BP will fall into a low-normal range. He gave me some story about President Roosevelt, and how it took 30 years of much higher BP than mine to cause a stroke. It didn't help. He said that it was more likely a clot that caused it, if I truly had one. I hope I have not, but as I sit here, I know something is amiss. I'm calling my PCP tomorrow to see if I can track down the neurologist whom I saw in the ER last Thursday. I would really like a follow-up MRI if I can get one. If it is negative, I'll feel better. P&E Wes, I'm worried about you! Are you feeling any better? Did you find the doc? What about stress? I think the stress of moving alone would cause some of these symptoms. You've got so much to do, they won't let you do it, you want to do it, you know you can't, then you feel really guilty because if you were healthy you would be doing it, etc. That equals STRESS!!!!!!!!!!!!! ((((((((((((HUG)))))))))))))) Bev > > To the emergency room, I mean, and then admitted and worked up for a > > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 14 lines] > would really like a follow-up MRI if I can get one. If it is > negative, I'll feel better. I have tried to post this twice, but I don't see it, so I will try again. I was told yesterday that my AM cortisol level from the day before was 0.8. That is pretty low. Normal is from 6 to 23. Perhaps this is root of my problems. My nephrologist is chalking all this up to panic attacks. I guess that could be, but I would think that the numbness and tingling would be on both cheeks, arms, and legs, not just the right side. Who knows? > To the emergency room, I mean, and then admitted and worked up for a > possible stroke. CT scan and MRI were negative. They also did an [quoted text clipped - 3 lines] > symptoms to too high a dose of Synthroid and Cortef. I think perhaps > they are right. I am home, but still extremely uncomfortable. > I have tried to post this twice, but I don't see it, so I will try > again. I was told yesterday that my AM cortisol level from the day [quoted text clipped - 6 lines] > be on both cheeks, arms, and legs, not just the right side. Who > knows? Hi Wes, apparently stress can affect the cortisol levels. I don't know if it can make it that low (or not). http://www.ich.ucl.ac.uk/factsheets/test_procedure_operations/cortisol_deficiency/ http://www.merck.com/mrkshared/mmanual/section2/chapter9/9b.jsp Recognition of patients with Addison's disease is not difficult. However, a significant number of patients with "limited adrenocortical reserve" who appear healthy experience acute adrenocortical insufficiency when under stress. Shock and fever may be the only signs observed. No idea if thes help you or not. (note to me: Google search on "cortisol deficiency" Hugs J |
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