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Medical Forum / Diseases and Disorders / Lupus / March 2004

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World Lupus Day

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Andy - 25 Mar 2004 20:38 GMT
You read it here first!

There is a proposal to declare a World Lupus Day, to be on 10 May every
year.

When I hear more, you will...
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

Andy - 29 Mar 2004 15:16 GMT
>You read it here first!
>
>There is a proposal to declare a World Lupus Day, to be on 10 May every
>year.
>
>When I hear more, you will...

I have...

http://www.lupus.org/webmodules/articles/anmviewer.asp?a=181&z=15

The meat of which follows. There is a poster available; I have scanned
it but even compressed it's a bbiigg file. If there's a demand for it
I'll put it on my site.  The W L D web site will be
www.worldlupusday.org but it isn't there yet. I also have press releases
etc.

==========================================
World Lupus Day Set for May 10

The first-ever World Lupus Day observance will occur on Monday, May 10,
2004, to coincide with the 7th International Congress on SLE and Related
Conditions.  Sandra C. Raymond, President of the Lupus Foundation of
America, and Brian Hanner, Director of Lupus UK (United Kingdom), are
co-chairs for this inaugural worldwide awareness event.

World Lupus Day will focus on the need for improved patient healthcare
service, increased research into the causes of and a cure for lupus,
enhanced physician diagnosis and treatment of lupus, and better
epidemiological data on lupus globally.

An international steering committee representing lupus organizations
from nine countries met in London on January 23 and 24 to finalize plans
for World Lupus Day activities around the globe.  Each participating
country will request that their government's health ministry endorse the
World Lupus Day Proclamation authored by the Steering Committee, and
urge their citizens to learn about lupus.  The crowning event will be a
press conference in New York City on May 10.  Representatives of leading
global health organizations have been invited to speak.

A World Lupus Day international logo has been created and will be
displayed on a special website created to provide information about
international efforts to promote lupus awareness.   When operational,
the website will include a directory of international lupus groups and
links to their websites, information on the impact of lupus in each
country, and updates on World Lupus Day activities around the globe.
World Lupus Day is supported by a grant from the Pfizer Foundation.

Lupus is a global health problem.  Individuals of African, Asian, or
Hispanic origin have higher prevalence of lupus than Caucasians.  Due to
the lack of definitive epidemiological information on lupus, the exact
number of people with lupus is unknown.  Based on limited existing data,
researchers believe at least five million people worldwide have lupus
and more than 100,000 new cases develop every year, though it is likely
that these estimates are low
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

 
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