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Medical Forum / Diseases and Disorders / Herpes / August 2005

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HELP!!!! -- Are there any good vitamin substitutes (or close substitutes) for Valtrex/acyclovir?

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sm.mitch@gmail.com - 20 Aug 2005 04:02 GMT
Hello.  I can't afford Valtrex and don't want to take cheaper acyclovir
due to its potential hair loss properties.  I imagine there is no
substitute for these in terms of suppressing HSV 100%.... but is there
a vitamin or combination of vitamins out there that if taken daily will
help to reduce the overall number of outbreaks?........... or maybe
there are vitamin(s) out there I am unaware of that can supress herpes
in folks with otherwise strong immune systems?
Grant - 20 Aug 2005 12:22 GMT
As you already know, only the prescription meds have been shown to reduce
asymptomatic shedding.  Nothing else will do that.

Now if you have type 1, then you might want to try large doses of L-Lysine.  It
seems to help quite a few people.  If you have type 2, it might also help but
seems to help type 1s more.  But worth the try.  By large doses, I mean more
than what is said on the bottle.  But I can't remember the dose at this point...

The only other thing you really can do is to stay as healthy as you can.
Perhaps take a look at the foods that are triggers and experiment with staying
away from them:  caffeine, chocolate, nuts.  Take a look at the arginine/lysine
food chart which is around somewhere and eat less arginine, more lysine
containing foods.

A decent multivitamin is always a good idea, but a healthy diet is the better
choice.

Good luck.

ar

>Hello.  I can't afford Valtrex and don't want to take cheaper acyclovir
>due to its potential hair loss properties.  I imagine there is no
[quoted text clipped - 3 lines]
>there are vitamin(s) out there I am unaware of that can supress herpes
>in folks with otherwise strong immune systems?
Angela S. - 20 Aug 2005 16:54 GMT
Please keep in mind that too much L-lysine can hurt your body. So be sure
you go over all of this with your doctor if you decide to try L-lysine.
L-lysine is not an effective treatment for herpes simplex virus. Food charts
mean absolutely nothing when it comes to herpes simplex virus. The reason I
say this is because nothing about watching what you eat (unless you are
trying to just maintain a healthy lifestyle over all) is proven to prevent
herpes outbreaks or decrease asymptomatic shedding. What's the bottom line?
If you decide to avoid certain foods just to see what happens don't be
dissapointed if it doesn't work out for you.

Here's something you might find interesting ~

Vitamins, Minerals, Amino Acids and the Arginine Theory
http://www.yoshi2me.com/ipw-web/bulletin/bb/viewtopic.php?t=656

Good Luck,

Angela ;-)

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Jim - 31 Aug 2005 21:44 GMT
Angela:   With all due respect, you post a lot that is very beneficial and
obviously put a lot of time and care into your posts here.     I am
therefore disappointed to see you expressing what strikes me as undue
certainty about IMHO overly broad statements such as  L-lysine is not an
effective treatment for herpes simplex virus.

Viruses have different strains and the different strains can respond
significantly different to various things.  In addition Homo sapiens has a
great deal of genetic diversity resulting in a wide range of reactions and
outcomes from the same exposures (pathogenic, environmental, etc.)  On top
of all that, especially in the USA, there is a very broad range of
lifestyles with a large  number of widely ranging variables (diet, climate,
exercise or lack of it, degree of stress, and innumerable more) many of
which can on their own profoundly affect the effects of pathogens (among
other things).  And all that is just a very small sample of a very long
list!

Given the above and given the very large number of HSV patients who have
claimed that Lysine has very significantly helped them,  IMHO the statement
that  "L-lysine is not an effective treatment for herpes simplex virus."
appears to be not only very overbroad and far too certain but actually
harmful (In that such statements might prevent many from using an
inexpensive treatment that for many can be very helpful.

I am one of those for whom (until quite recently) the combination of Lysine
(1 GM 3 times/day) was totally effective in preventing any outbreaks for
many years, _if_ and _only_ if I also avoided chocolate, nuts and large
amounts of caffeine.    For years _for me_ even small amounts of chocolate
and/or nuts would guarentee an outbreak.   Same thing if I quit taking
lysine for more than a week or two.

So it doesn't help everyone.  And who's going to fund a study to show
possible efficacy in _this_ economic system?   No patent is possible, lysine
can be bought very inexpensively OTC from innumerable convenient sources.

I am trying but have a really hard time understanding why you appear to have
a need to deny the possibility that this therapy may have some real benefits
for _some_ HSV patients.

I beg you to please try to be a bit more open minded.    Some of the
increased knowledge you could gain thereby just might prove to be very
useful to you.

Jim

PS:   Why did lysine quit working for me?   It could have been that I was
infected with an additional virus, but because of it's gradually increasing
ineffectiveness I suspect it was rather because my virus slowly evolve a
better version of whatever enzyme was unable to distinguish between lysine
and arginine (my understanding is that the virus needs arginine but its
enzyme (in at least some strains!) is incapable of distinguishing between
them (very similar chemical structure) so the higher the lysine/arginine
ratio the lower the percentage of useful protein it turns out.

PPS:  It could be that I was infected with a different strain of the
_same_virus that had a better version of the relevant enzyme.   **Note that
it is at least theoretically possible for two people with different versions
of the same virus to worsen each others infections**   which might pour cold
water on the notion that there is no need to try to reduce cross infections
if you both have the "same" virus.

But there is a _lot_ of guessing and speculation and unfortunately all too
much of it passes as knowledge.   Disappointingly this is true in science
and most especially true in medicine.   It is, IMHO, wise to keep that in
mind.

For all of us, some of what we "know" to be true is, in fact, false.   What
distinguishes between us is that some of us are more aware of that than
others and some can use that knowledge to make the application of their
knowledge and their acquisition of new knowledge far more effective.

PPPS:  The internet does not allow transmission of tone of voice and other
non-verbal communication and people differ greatly in how much they rely on
those elements for their interpretation of communications.   If anything in
the above causes offense, please consider that that may be due to
misinterpretation rather than intent.

> Please keep in mind that too much L-lysine can hurt your body. So be sure
> you go over all of this with your doctor if you decide to try L-lysine.
[quoted text clipped - 14 lines]
>
> Angela ;-)
Angela S. - 31 Aug 2005 22:35 GMT
Why not take this debate up with the University of Washington Virology
Department and the American Social Health Association which hosts the Herpes
Resource Center and the National Herpes Hotline.

Best Wishes to you Jim,

Angela

> Angela:   With all due respect, you post a lot that is very beneficial and
> obviously put a lot of time and care into your posts here.     I am
[quoted text clipped - 93 lines]
>>
>> Angela ;-)
Angela S. - 20 Aug 2005 16:45 GMT
> Hello.  I can't afford Valtrex and don't want to take cheaper acyclovir
> due to its potential hair loss properties.

Due to its potential hair loss properties? Where on Earth did you hear that?

> I imagine there is no
> substitute for these in terms of suppressing HSV 100%....

Nothing suppresses herpes simplex virus 100%. It is still possible to have
an outbreak while on suppression with proven herpes antiviral medications.

> but is there
> a vitamin or combination of vitamins out there that if taken daily will
> help to reduce the overall number of outbreaks?...........
> or maybe
> there are vitamin(s) out there I am unaware of that can supress herpes
> in folks with otherwise strong immune systems?

No, not at all. At least nothing that has been monitorred or proven in
clinical trials or studies.

Suppression with proven herpes antivirals reduces asymptomatic shedding by
about 95%, reduces transmission to a non-infected partner by 50%, and
reduces the intensity and frequency of herpes outbreaks overall. If you
can't afford to pay for Valtrex there is a patient assistance program OR you
can stick with Acyclovir which is VERY cheap compared to Valtrex and Famvir.

Good Luck,

Angela ;-)

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bittnerster@gmail.com - 20 Aug 2005 18:23 GMT
I would avoid L-lysine as it has nasty side effects at doses
recommended for suppressing herpes. There are too many people acting
like idiot parrots in this newsgroup so I am sorry if you are getting
true, but bad information. Sure, drinking gasoline will cure herpes
(permanently), but isn't a good choice. And yes, acyclovir is broadly
reported to accelerate hair loss - though I am unclear if it's
permanent. Just type "Acyclovir Hair Loss" in Google.

The good news is that one natural and relatively unknown alternative
showing promise is Camu Camu powder extract. I have read a number of
reports of it having excellent suppressive qualities. Some people are
reporting going for a year or more between outbreaks. I don't have
personal experience with it, but this may be something to try or
consider if going down your natural remedy path......... Good luck!
Grant - 20 Aug 2005 20:46 GMT
"idiot parrots in this newsgroup"

You're a nice person.  Thanks.  Appreciate it. Nice to meet you.

Some people do quite well with Lysine.  It has side effects, as does most
everything else.  We are here to do our best to answer people's questions and it
is up to them to decide what road they want to take.

Now, instead of insulting us, why don't you teach us something new?

http://thyroid.about.com/cs/alternativehelp/a/herbsautoimmune.htm

ar



>I would avoid L-lysine as it has nasty side effects at doses
>recommended for suppressing herpes. There are too many people acting
[quoted text clipped - 10 lines]
>personal experience with it, but this may be something to try or
>consider if going down your natural remedy path......... Good luck!
M.L.S. - 22 Aug 2005 01:39 GMT
<snip>

>                                  And yes, acyclovir is broadly
>reported to accelerate hair loss

Actually, it is generally reported that Acyclovir *may* accelerate
hair loss in *some* people.  The association is so rare that no one
can even put a number on it.

As with any medication (or anything else that is ingested, injected,
or trowelled on) there are potential side effects.  There is a long
list of side affects for Acyclovir, but they are a problem for only
a small portion of the general population.  Read the paper that
comes with the drug.  The side effects are listed there.  The paper
even tells you what to do if you experience any of the side effects:
Stop taking the drug and inform your doctor.

>                                              - though I am unclear if it's
>permanent. Just type "Acyclovir Hair Loss" in Google.

>The good news is that one natural and relatively unknown alternative
>showing promise is Camu Camu powder extract. I have read a number of
>reports of it having excellent suppressive qualities. Some people are
>reporting going for a year or more between outbreaks. I don't have
>personal experience with it, but this may be something to try or
>consider if going down your natural remedy path......... Good luck!

http://www.rain-tree.com/camu.htm

"There has been no research conducted or published on any medicinal
or therapeutic properties of camu-camu. However, there are a few
herbal supplement companies in the United States marketing camu-camu
extracts in powders and pills and alluding to claims of its
benefits-from curing viral infections and colds/flu and cold sores
and autoimmune disorders to even weight loss. The fact is there just
isn't any research to back up these claims. There is some research
suggesting high dosages of vitamin C offer a benefit for various
illnesses and conditions, yet even some of those studies are
controversial. And, remember, this research is on vitamin C, not on
camu-camu specifically.

"Make no mistake - camu-camu is a great source of natural vitamin C.
In addition, it comes with many other naturally occurring vitamins,
minerals, and amino acids that may well help with the absorption and
efficient uptake of vitamin C. This is thought to be superior to
just taking an ascorbic acid tablet alone. Don't believe some of the
more far-reaching and far-fetched marketing claims that are in the
marketplace today, however. The only studied and verified health
benefit today regarding camu-camu is based upon its vitamin C
content-and not other "mysterious" chemicals that surround it."

And, of course, we can rule out even a tenuous link between Camu
Camu and hair loss.  ;-)

Mike
Jim - 31 Aug 2005 23:08 GMT
I would be very interested in knowing what those side effects are and at
what does they appear.

I would suspect that "can have side effects" would be far less inaccurate.
I took 1 gm lysine 3 X/day for many years with no side effects at all
(AFAIK) except for a complete absence of flair-ups so long as I avoided
chocolate and nuts (both guaranteed a flare-up) and excessive amounts of
caffeine.

Lysine is an essential amino acid that occurs naturally in _all_ foods (in
varying concentrations).     Balance of amino acids is, however, important.
It is possible that a pronounced imbalance of lysine/arginine caused by
taking lysine supplements and avoiding high arginine foods of prolonged
periods could cause problems in some individuals.    (Sir Archibald Garrod's
"biochemical individuality" again).   However, because of the wide
variability of levels in normal foods and diets I suspect that most
individuals would be fairly resistant to such effects.

I would be very interested in seeing the evidence/reasoning you have for
that statement.

Jim

PS: a request for disclosure:  do you have any financial interest in Camu
Camu?

>I would avoid L-lysine as it has nasty side effects at doses
> recommended for suppressing herpes. There are too many people acting
[quoted text clipped - 10 lines]
> personal experience with it, but this may be something to try or
> consider if going down your natural remedy path......... Good luck!
SJ - 21 Aug 2005 06:50 GMT
Hi SM-Mi,

Yes, there is a product that will reduce Herpes outbreaks.  I should
know, I had genital herpes and used to get it frequently.  Since I
started taking Transfer Factors I haven't had an outbreak in at least 9
months.  I would normally get it when I was under stress and overworked
and I still haven't had a recurrence even though I have been through
hell at work.

You will find info at http://www.healthandhabitat.com/TF-index.html

Transfer Factors were discovered in the late 1940 by Dr. H. Sherwood
Lawrence but the product has only come out on the market in the last 5
years or so. Lots of info on TF there - it is really worth a look.

Also, in 2004, the Russian Academy of Medical Sciences conducted
numerous studies involving transfer factor preparations and various
conditions.  These studies included the following diseases:

   * chlamydia
   * psoriasis
   * herpes
   * HIV
   * viral hepatitis
   * osteomyelitis
   * stomach cancer
   * pediatric conditions

At the conclusion of their investigations, they released a
Methodological Letter authorizing and encouraging health care
professionals in Russia to use Transfer Factors in their efforts at
rehabilitating and retraining the immune system after infections and
diseases.

There is so much information coming out on TF, but the medical
profession in general has not taken it up.  Anyway, I hope you will
take the time to investigate my website
http://www.healthandhabitat.com/TF-index.html

By the way, I was introduced to TF by Dr. Stephen Hardy who was doing a
seminar on  "Chemicals, Cancer, The Immune System and You".  He has 20
years experience in research science, Organic Agriculture and
Permaculture.  I investigated the product and was sold on it, that's
why I signed up to market it under MLM, even though I am not a sales
type person.  In all honesty, this product is amazing.

Cheers and all the best,
SJ
Tom - 21 Aug 2005 16:41 GMT
I think foods are a BIG part of outbreaks. During the past week I had a
large outbreak. Since it ended, I have been having minor repercussions that
usually happen after I have a large one. Most of the repercussions are like
prodrome and no lesions. Kind of like tremors after an earthquake. Anyway,
what I remember is that the week or two before the OB I had been drinking
alot of beer, having corn on the cob, chocolate cake, peanut butter, and
alot of coffee!!! All of these foods are high in arguinine. On top of that
there was alot of stress both at home and at work, and stupidly I used
cortisone on a bug bite and I think that may have added to it all. I'm not a
doctor or a pharmacist so these are only ideas based on my experience and a
little reading.

What I started doing is eliminating more of the foods above (except coffee)
and taking alot of vitamins especially the following that I found have
helped me:

A 10,000 iu
C 500 mg
E 400 iu
Zinc 60 mg
B6 50 mg
Centrum Multi Vitamin with minerals and iron
Lysine 1000 mg
(sometimes I also take a B50 complex)

I try to get enough sleep and eat well also. I rarely drink and don't smoke
or use drugs either. I didn't even know that acyclovir causes hair loss, but
I didn't want to take it anyway. Maybe I will consider taking Valtrex if I
continue to have wild outbreaks for a long time. Basically I have been
getting bad OB's for the past 6 months and I am talking about 1-2 a month.
If I got the norm of 4-5 a year I wouldn't even be complaining, but that is
not the case. Luckily mine are frequent but not that bad in terms of
lesions, more the prodrome is a real pain in the a.s. I have had some very
bad lesions, but they are more infrequent luckily.

> Hi SM-Mi,
>
[quoted text clipped - 44 lines]
> Cheers and all the best,
> SJ
Grant - 22 Aug 2005 00:47 GMT
Hi Tom,

Keep us informed on how the food thing goes for you.  I think that people who do
NOT have food as a trigger really have no idea how strong of a problem it can
be.  I have a friend who has an outbreak soon after ingesting ANYthing with
caffeine in it.  The connection is so strong, it can't be denied.

ar

>I think foods are a BIG part of outbreaks. During the past week I had a
>large outbreak. Since it ended, I have been having minor repercussions that
[quoted text clipped - 79 lines]
>> Cheers and all the best,
>> SJ
Angela S. - 22 Aug 2005 17:27 GMT
As I sit here sipping my morning cup of coffee ~ and have no outbreaks. hmmm

Angela ;-)

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Grant - 22 Aug 2005 19:16 GMT
Angela,

You can stop playing these games at any time.

YOU might not have food as a trigger.  But that doesn't mean that EVERYone is
able to indulge as you can.  Remember, we are all different and our bodies react
in different ways to different triggers.

Go ahead and continue to drink your coffee.  But don't deny others a simple fix.
There are those who would rather give up their coffee than go on meds for the
rest of their lives.  It works pretty darn good for my friend.  No meds.  And he
isn't a caffeine junkie.

ar

>As I sit here sipping my morning cup of coffee ~ and have no outbreaks. hmmm
>
>Angela ;-)
Angela S. - 23 Aug 2005 00:24 GMT
> Angela,
>
> You can stop playing these games at any time.

Sounds like you are having a bad day AR.

> YOU might not have food as a trigger.  But that doesn't mean that EVERYone
> is
> able to indulge as you can.  Remember, we are all different and our bodies
> react
> in different ways to different triggers.

Food is not a trigger for me at all ~ how observant of you! Which is why I
try to let folks know not to be dissapointed if they can't figure out the
food theories.

> Go ahead and continue to drink your coffee.  But don't deny others a
> simple fix.

I'm not denying anybody of anything ~ I drink coffee and I don't get flare
ups. When I first contracted herpes I stopped drinking coffee and continued
to get flare ups. I'm merely sharing my own personal experiences.

This leads to another point ~ they say that herpes outbreaks decreases over
time and for me I have found that to be quite true. I have had herpes for 10
years now and I don't get outbreaks (that I know of) any more AND I'm not on
suppressive therapy.

> There are those who would rather give up their coffee than go on meds for
> the
> rest of their lives.

Perhaps it's time for you to stop insinuating that people have to be on
proven herpes antivirals for the rest of their lives. That fact is simply
ridiculous and untrue.

> It works pretty darn good for my friend.  No meds.  And he
> isn't a caffeine junkie.

I'm glad to see that your friend is working everything out but that doesn't
mean it was due in part of avoiding certain foods or stopping certain
drinks. There are many reasons out there why folks don't get outbreaks and
are able to keep them under control such as ~ how long they've had the
virus, which type of virus they have along with the location ~ etc etc.. I
could go on and on.

Angela

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Grant - 23 Aug 2005 01:22 GMT
I have no problem with you letting people know that food is not a trigger for
you.  But that is not what you are saying in your posts.

ar

>> Angela,
>>
[quoted text clipped - 43 lines]
>
>Angela
Angela S. - 23 Aug 2005 01:53 GMT
Ar,

I believe you are making a HUGE deal out of nothing.

None of my responses were directed toward you AND I always clarify things
based on my own personal experiences along with materials I have personally
read.

There are many factors that come into play when you are trying to figure out
why people get outbreaks and why people don't get outbreaks and yes we are
all different. Herpes is a complicated STD.

I think perhaps it's time for you to take a step back and realize that my
experiences are my own and there is nothing wrong with my pointing out that
obvious ~ avoiding certain foods is not always the reason why folks do not
get outbreaks.

I hope you have a nice evening and stop taking everything I write so
personally.

Angela

>I have no problem with you letting people know that food is not a trigger
>for
[quoted text clipped - 57 lines]
>>
>>Angela
Grant - 23 Aug 2005 12:20 GMT
Angela,

I disagree.  However, I will be more than happy to not post to you on this
matter after this post so you can go ahead and have the last word.

Your responses have not been helpful nor have they been meant in a kindly
fashion.

Here they are, in case you have forgotten:

"As I sit here sipping my morning cup of coffee ~ and have no outbreaks. Hmmm"

"If foods are such a BIG part of outbreaks then how come I eat everything I'm  
not supposed to according to "the charts" and don't get outbreaks?

If foods are such a BIG part of outbreaks then how come when I avoided  
everything I was supposed to I still got outbreaks?"

If you had wanted to be helpful, you could simply write, "Food is not a trigger
for me."  However, instead, you wrote sarcastic replies.  Your responses were
meant to ridicule people who do feel that food is a trigger.  And you seem to be
unhappy that I called you on it.

>None of my responses were directed toward you AND I always clarify things
>based on my own personal experiences along with materials I have personally
>read.

The first one I copied above was directly in response to me.  And there was
nothing clarifying your own personal experience.

>There are many factors that come into play when you are trying to figure out
>why people get outbreaks and why people don't get outbreaks and yes we are
>all different. Herpes is a complicated STD.

So then please allow people to explore all avenues instead of just the Chosen
Path of Angela.

>I think perhaps it's time for you to take a step back and realize that my
>experiences are my own and there is nothing wrong with my pointing out that
>obvious ~ avoiding certain foods is not always the reason why folks do not
>get outbreaks.

I don't need to take a step back, Angela.  I freely invite other points of view.
You are the one that needs to take the step back and allow others to express
THEIR point of view without being ridiculed by you.

>I hope you have a nice evening and stop taking everything I write so
>personally.

HAHAHAHAHAHAHA

ar
Angela S. - 24 Aug 2005 13:19 GMT
Ar,

You are just pissed off because I keep reminding people that food is not
always a trigger for people that have herpes. I don't want folks getting
their hopes up when they cut out drinking their morning cup o' jo and still
wind up with an outbreak. There are MANY factors that tie in to why people
don't get outbreaks.

It seems that my point of view is clearly quite threatening to you and THAT
is not my problem.

Try and have a better day,

Angela

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> Angela,
>
[quoted text clipped - 60 lines]
>
> ar
Angela S. - 22 Aug 2005 17:26 GMT
>I think foods are a BIG part of outbreaks.

If foods are such a BIG part of outbreaks then how come I eat everything I'm
not supposed to according to "the charts" and don't get outbreaks?

If foods are such a BIG part of outbreaks then how come when I avoided
everything I was supposed to I still got outbreaks?

Angela ;-)

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Grant - 22 Aug 2005 19:17 GMT
Because, Angela, food isn't a trigger for YOU.  But it is for other people.

ar

>>I think foods are a BIG part of outbreaks.
>
[quoted text clipped - 5 lines]
>
>Angela ;-)
Tom - 22 Aug 2005 23:56 GMT
I think my biggest problem is every now and then I "forget" that I have
genital herpes and this is also because the person I am in a relationship
with has it also so we never feel the need to worry about it. Then I also
forget to becarful what I am eating until I have eaten it and then say to
myself "wait a minute, wasn't I supposed to avoid peanuts and chocolate?"
but by that time its a week later and the prodrome is just beginning.

I am still drinking a large coffee a day, because being in online support I
need to be on the ball when it comes to solving problems for mean customers
that are calling us. Right now my outbreaks had mostly stopped, but I did
have some minor prodrome a few days ago and still suffering with a very achy
lower back and hip area.

Being that it is summer I did drink beer, have corn on the cob and peanuts
and chocolate cakes and things that I probably don't eat all the time, so I
think over doing it lead to the outbreaks when you combine that with stress
and stuff like that. Once the problem calms down I'll stop taking the lysine
and continue the other things.

> Because, Angela, food isn't a trigger for YOU.  But it is for other people.
>
[quoted text clipped - 9 lines]
> >
> >Angela ;-)
Angela S. - 23 Aug 2005 00:27 GMT
Hope you get it figured out Tom ~

http://www.yoshi2me.com/ipw-web/bulletin/bb/viewtopic.php?t=656

Angela ;-)

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www.yoshi2me.com/herpes-h-pals.html

>I think my biggest problem is every now and then I "forget" that I have
> genital herpes and this is also because the person I am in a relationship
[quoted text clipped - 20 lines]
> lysine
> and continue the other things.
Angela S. - 23 Aug 2005 00:25 GMT
http://www.yoshi2me.com/ipw-web/bulletin/bb/viewtopic.php?t=656

Enjoy!

Angela ;-)

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> Because, Angela, food isn't a trigger for YOU.  But it is for other
> people.
[quoted text clipped - 11 lines]
>>
>>Angela ;-)
Tom - 23 Aug 2005 03:31 GMT
I have the book: Managing Herpes - How to live and love with a chronic std..

This is a great book and has alot of good information and I also recommend
it.
I guess it seems to be safe to say that lysine isn't that helpful, but
arguinine can trigger outbreaks. I know they have for me. Maybe I should
just take the vitamins and forget the lysine but limit argunine consumption.

> http://www.yoshi2me.com/ipw-web/bulletin/bb/viewtopic.php?t=656
>
[quoted text clipped - 17 lines]
> >>
> >>Angela ;-)
Angela S. - 23 Aug 2005 04:42 GMT
>I have the book: Managing Herpes - How to live and love with a chronic
>std..

I'm SO happy to hear that you have this book! I have it too so I know YOU
know what I'm talking about..

> This is a great book and has alot of good information and I also recommend
> it.

For those that don't have it I highly recommend ordering it from ASHA.
Proceeds go towards herpes research and outreach programs via the Herpes
Resource Center. You can also find a listing of helpful reading materials
here:
http://www.yoshi2me.com/herpes-hpv-books.html

> I guess it seems to be safe to say that lysine isn't that helpful,

Exactly ~

> but
> arguinine can trigger outbreaks. I know they have for me.

Yes, certain foods may have triggered outbeaks for you and for those out
there that are baffled by this just know that it doesn't hold true for all
people that have herpes. Food doesn't trigger my outbreaks and I pretty much
eat whatever I want to whenever I want to. Tom ~ have you figured out which
foods have done this for you and if so how did you manage to figure it out?

> Maybe I should
> just take the vitamins and forget the lysine but limit argunine
> consumption.

Vitamins are good for you whether you have herpes or not. Just make sure you
don't over do it and to do this check to make sure it's ok with your doctor
because only your doctor knows your medical history, etc. If you don't have
a doctor that knows your medical history then perhaps a complete work up is
in order.

Again ~ I'm glad you have that book!

Angela ;-)

PS Now you'll know what I'm referring to when I say to look on page # such
and such..

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>> http://www.yoshi2me.com/ipw-web/bulletin/bb/viewtopic.php?t=656
>>
>> Enjoy!
>>
>> Angela ;-)
Tom - 25 Aug 2005 03:37 GMT
> Yes, certain foods may have triggered outbeaks for you and for those out
> there that are baffled by this just know that it doesn't hold true for all
> people that have herpes. Food doesn't trigger my outbreaks and I pretty much
> eat whatever I want to whenever I want to. Tom ~ have you figured out which
> foods have done this for you and if so how did you manage to figure it out?

Well, so far it seems to be that cafeine (more than 1 medium Dunkin Donuts
Coffee per day or 16oz), chocolate and peanuts seem to be the worst, less
for beer and corn. The way I figured it out was that I didnt have any corn
or beer since a couple of weeks ago. I had a medium sized outbreak in terms
of pain and prodrome at that time. The lesions were mild as usual. I
continued to have some chocolate, but nothing exceptional, minimal peanuts
or nuts, but still the same amount of coffee in fact on a couple of days I
also had a diet Coke 16 oz. Well the prodrome and outbreak started back up
again and I am now at the latter side of this one.

Realistically the biggest problem I have is that I've got to have a coffee
in the morning in order to wake up and function normally, and this is the
only thing I really have on a regular basis. I havent elimitated coffee all
together, and so far I am still getting 1-2 outbreaks a month even if they
are not that serious, they are still 1-2 a month.

> PS Now you'll know what I'm referring to when I say to look on page # such
> and such..

Pretty much, in fact I just bought another book for dealing with herpes from
Amazon.com. Its called The Truth About Herpes by Stephen Sacks, and I found
this as a recommended book from the Westoverheights.com site. I know its 316
pgs. and It was about 20.00 with s/h.
Grant - 25 Aug 2005 10:26 GMT
That's a great book, Tom.

If you honestly want to know if food is a trigger, then you'll have to stop all
suspect foods for at least a month.  If you continue to have outbreaks, then it
isn't the food.  And, if you don't, you can start adding foods back into your
diet one at a time (one each week) to see if it causes an outbreak.  Then you'll
know for sure.

Caffeine addictions can be hard to break.  You don't really need that coffee to
wake up.  :)  But you'll not ever really know if caffeine is a problem for you
unless you give it up totally and then try it again.

Good luck.
ar
Angela S. - 25 Aug 2005 16:22 GMT
> Pretty much, in fact I just bought another book for dealing with herpes
> from
[quoted text clipped - 3 lines]
> 316
> pgs. and It was about 20.00 with s/h.

I also have this book. It's a good one to have!

Have you tried to cut out all caffeine products from your diet to see if
that does the trick?

By the way ~ I got your note that you sent me via e-mail and answered it
already.

Hang in there,

Angela ;-)

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Tom - 26 Aug 2005 01:15 GMT
> I also have this book. It's a good one to have!
>
[quoted text clipped - 7 lines]
>
> Angela ;-)

Hi Angela and Ar,

Thank you for your responses.

No I havent given up all caffeine, but if it keeps up I will eventually try
it. I think stress is my biggest factor in fact I swear that some days at
work I actually have had stressful days so much that I get worse in terms of
the outbreak in a day or two following that because of it. Correct me if
this is not possible?

Thanks.
Grant - 26 Aug 2005 11:56 GMT
Hi Tom,

I suppose all things are possible.  My I suspect that the more stressed you are,
the less tolerant of pain you'll become.  So perhaps it only FEELS like the
outbreak is getting worse??

ar

>Hi Angela and Ar,
>
[quoted text clipped - 7 lines]
>
>Thanks.
Angela S. - 26 Aug 2005 22:47 GMT
> Hi Angela and Ar,
>
> Thank you for your responses.

You're Welcome! :)

> No I havent given up all caffeine, but if it keeps up I will eventually
> try
> it.

In order to find out if caffeine is trigger for you it's necessary to give
it all up and to monitor your consumption. So basically you are not 100%
positive that caffeine is a trigger, right?

> I think stress is my biggest factor in fact I swear that some days at
> work I actually have had stressful days so much that I get worse in terms
> of
> the outbreak in a day or two following that because of it. Correct me if
> this is not possible?

Stress can be a major factor in outbreaks ~ especially if there is stress on
the body from major surgery or illness.

Hang in there,

Angela ;-)

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Tom - 27 Aug 2005 19:28 GMT
Well it is possible that I am feeling worse then it really is, because of
stress and I really don't know for sure that it is the caffeine, only
because I have been having coffee for the past 2 weeks and I haven't really
had any new outbreaks aside from some minor prodrome symptoms here and
there. I think the real factor is stress and illness, but I think peanuts
could be a factor. I guess cortisone could be also since I used that before
the other OB. I suppose I could go and buy some peanuts and eat them to see
if it triggers it, but I really don't like getting outbreaks as they are
quite bothersome sometimes.

> In order to find out if caffeine is trigger for you it's necessary to give
> it all up and to monitor your consumption. So basically you are not 100%
[quoted text clipped - 12 lines]
>
> Angela ;-)
Angela S. - 27 Aug 2005 20:26 GMT
> Well it is possible that I am feeling worse then it really is, because of
> stress and I really don't know for sure that it is the caffeine, only
> because I have been having coffee for the past 2 weeks and I haven't
> really
> had any new outbreaks aside from some minor prodrome symptoms here and
> there.

Yeah ~ in order to know for sure if caffeine is a trigger you are going to
have to resolve your outbreaks and do away with all foods that contain
caffeine including the consumption via drinks that may have caffeine.

Stress can play a big roll in outbreaks and from the likes and history of
your posts here on the herpes newsgroup I would say that your stress levels
are at a constant. Of course, I would be stressed out to if I had outbreaks
all the time and no way to get them under controll. (Well ~ there are ways
but so far it seems you need to post about it more than to actually try the
things that have been proven to work which is completely fine because that's
how you are going to learn about your condition.)

> I think the real factor is stress and illness, but I think peanuts
> could be a factor.

Peanuts could be but you won't know for sure until you get your outbreaks
under controll and then take out everything that has peanut ingredients from
your diet, etc.

> I guess cortisone could be also since I used that before
> the other OB.

Anything that has any type of steroid in it is not good and I believe that's
been shared with you before too.

> I suppose I could go and buy some peanuts and eat them to see
> if it triggers it, but I really don't like getting outbreaks as they are
> quite bothersome sometimes.

Well ~ first you have to get your outbreaks under controll before you can
figure out what your possible food triggers may or may not be.

Again ~ not everybody has a food trigger when it comes to herpes outbreaks.

Hope you get it figured out soon!

Angela ;-)

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Grant - 28 Aug 2005 00:07 GMT
Tom,

It won't do you any good to keep binging on foods to see if they cause an
outbreak.  You have to STOP eating those foods and wait till the outbreaks go
away before you can eat them again to see if they trigger an outbreak.

ar

>Well it is possible that I am feeling worse then it really is, because of
>stress and I really don't know for sure that it is the caffeine, only
[quoted text clipped - 24 lines]
>>
>> Angela ;-)
 
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