Medical Forum / Diseases and Disorders / Herpes / February 2005
could the tests be wrong?
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Tom - 10 Feb 2005 21:53 GMT Hello,
I got the results and its negative for both, but I still have the symptoms, so I am going to talk to the urologist on Tuesday and find out what he thinks. A family member of mine thinks that the doctor ordered the wrong tests or made a mistake because she is convinced it is herpes. Actually I don't know what to believe because I have all the symptoms. The doctor suggested that its a yeast infection, but I know that they don't turn into open sores and reoccur with the same pattern. I have all the symptoms of herpes 2. I have been having these same symptoms for about 5 years and finally decided to check on it. I have almost all the symptoms. I cannot believe that a yeast infection would be going on for 5 years with 5-6 outbreaks a year with hives turning into sores and itching and tingling and burning, plus the other things like burning in the urine and aches and slight temp and headache etc. I had some urine tests to make sure it wasn't another STD. Is it possible that the tests could be wrong or something wasn't done right?
Thanks,
Tom
M.L.S. - 10 Feb 2005 23:30 GMT >Hello,
>I got the results and its negative for both, but I still have the symptoms, >so I am going to talk to the urologist on Tuesday and find out what he [quoted text clipped - 11 lines] >another STD. Is it possible that the tests could be wrong or something >wasn't done right?
>Thanks,
>Tom Yes, it's possible the test is wrong, though not very likely. Modern tests are all in the 98% or better range for reliability.
Did you find out what kind of test it was?
The most reliable way to test is to wait until you have fresh sores, and have those *cultured*. Ask your doctor about that.
Take care,
Mike
Tom - 11 Feb 2005 00:00 GMT Hello,
According to the clinic I had IGG for HSV 1 and 2 and IGM(?) for HSV 1 and 2 and there was no decimal reading according to the clinic only a neg or pos and it came back negative. The tests took 5 days. They said they don't use western blot. I don't have the sores now, everything already healed. What should I do? Should I wait until I get another outbreak and then rush to the clinic to test the sores? I want to talk to my urologist for the heck of it. How reliable is IGG and IGM?
Thanks, Tom
> Yes, it's possible the test is wrong, though not very likely. > Modern tests are all in the 98% or better range for reliability. [quoted text clipped - 7 lines] > > Mike M.L.S. - 11 Feb 2005 00:45 GMT >Hello,
>According to the clinic I had IGG for HSV 1 and 2 and IGM(?) for HSV 1 and 2 >and there was no decimal reading according to the clinic only a neg or pos [quoted text clipped - 3 lines] >clinic to test the sores? I want to talk to my urologist for the heck of it. >How reliable is IGG and IGM?
>Thanks, >Tom Almost all the blood tests are IgG or IgM, so that doesn't tell you much. You should find out if it was a Herpes Select or some kind of ELISA or perhaps something else.
Yes, you should still talk to your urologist, and any other doctors you can afford or have the time for. It seems unusual for some of your symptoms like painful urination to have persisted for so long.
And yes, you should find out how much notice you need to give to rush in for a swab for a culture the next time those sores appear. Some clinics you can walk in just about anytime and they can do it. Best to check ahead of time, though.
Best luck to you.
Mike
Grant - 11 Feb 2005 00:39 GMT Hi Tom,
Have the doctor/lab send you a copy of your test results. Let us know what it says.
ar
>Hello, > [quoted text clipped - 17 lines] > >Tom Tom - 11 Feb 2005 01:55 GMT Okay, I guess I can ask them. I don't want to bother them again. I already called there 2 times today. I'm seeing the urologist this coming Tuesday. I know I have HPV Genital, so I am wondering if that can cause lesions and itching and burning and painful urination even in the areas that there are no warts?
The urologist is going to check me for the burning urination problems, which have been a problem for a couple of weeks. The outbreak that I got lasted about 2 weeks and usually is gone in 1 week to 10 days. I told the doctor all of the information on the symptoms and they passed it off as if it is just a yeast infection, pimples and urine infection. Maybe so, but I find it unlikely that this reoccurs every 2 months or so, and goes through the same phases and duration almost everytime...and in the same area of the body!
Thanks, Tom
> Hi Tom, > [quoted text clipped - 24 lines] > > > >Tom M.L.S. - 11 Feb 2005 03:18 GMT >Okay, I guess I can ask them. I don't want to bother them again. I already >called there 2 times today. I'm seeing the urologist this coming Tuesday. I >know I have HPV Genital, so I am wondering if that can cause lesions and >itching and burning and painful urination even in the areas that there are >no warts?
>The urologist is going to check me for the burning urination problems, which >have been a problem for a couple of weeks. The outbreak that I got lasted [quoted text clipped - 3 lines] >unlikely that this reoccurs every 2 months or so, and goes through the same >phases and duration almost everytime...and in the same area of the body! I know the answer, but I gotta ask: Were you tested for such things as gonnorhea and chlamydia? They are very common, and share a number of symptoms, or can be almost symptomless. At this point I'd want to be checking everything.
Maybe it's just yeast or a UTI, but better to get it all looked at.
Take care,
Mike
Tom - 11 Feb 2005 03:41 GMT I know they did urinalysis's for something like that, but that wasn't the problem that I seem to have. I had yeast infections and I think I had something like Clamydia once, but this is different.
I was talking to an ex girlfriend on the phone tonight. It turns out that she has also been getting these symptoms with itching and burning and sores for years also. She was also telling me that her ex-boyfriend that she dated prior to being with me was diagnosed with genital herpes during the time she was seeing him. Shortly after the diagnosis, she had a severe "rash" from him. She told me that the severe rash went away and never really came back, but she ended up with the sores between the buttocks, which I also get. So since her ex boyfriend had genital herpes, and then she got a rash from him, and now both of us have the same rashes that happen for the same length of time and do the same thing, I think we can conclude that me and her both could have genital herpes...I have the feeling that the clinic is trying to brush me off according to a friend of mine also.
Tom
> I know the answer, but I gotta ask: Were you tested for such things > as gonnorhea and chlamydia? They are very common, and share a [quoted text clipped - 6 lines] > > Mike M.L.S. - 11 Feb 2005 05:22 GMT >I know they did urinalysis's for something like that, but that wasn't the >problem that I seem to have. I had yeast infections and I think I had >something like Clamydia once, but this is different.
>I was talking to an ex girlfriend on the phone tonight. It turns out that >she has also been getting these symptoms with itching and burning and sores [quoted text clipped - 8 lines] >could have genital herpes...I have the feeling that the clinic is trying to >brush me off according to a friend of mine also. There's no harm in getting second or third opinions. Or raising hell if you're on some plan where they discourage you from changing doctors.
Mike Soja
Grant - 11 Feb 2005 12:41 GMT Hi Tom,
I'm just really concerned that the blood test showed you were negative. You really need to get a copy of that blood test...
ar
>I know they did urinalysis's for something like that, but that wasn't the >problem that I seem to have. I had yeast infections and I think I had [quoted text clipped - 14 lines] > >Tom Tom - 11 Feb 2005 21:56 GMT Hello,
Well I will call the lab and ask for the report to be sent to my house then. I'll keep you posted on that.
I am going to talk to a urologist this coming Tuesday because of the burning sensation that I had during the outbreak which is better now, but I want to check anyway. I'll talk to him at the time and find out his opinion. My family member that advised me is pretty knowledgeable and worked in a hospital and for a doctors office. I heard that some tests can be as inaccurate as 30%, although this is not that common. Now knowing that my ex girls prior boyfriend had herpes and gave her a rash which she described like herpes and now we both are sharing the same symptoms is making me worried. I don't know what to think.
Thanks,
Tom
> Hi Tom, > > I'm just really concerned that the blood test showed you were negative. You > really need to get a copy of that blood test... > > ar Grant - 11 Feb 2005 23:31 GMT Probably the best way to find out what is causing those sores is to have one cultured. Talk to the clinic and let them know what you plan on doing.
Did they run a culture on your urine to determine if you might have a UTI? I've lost track of the tests you've had, sorry.
HOpefully you'll get to the bottom of this soon.
ar
>Hello, > [quoted text clipped - 14 lines] > >Tom Tom - 12 Feb 2005 02:44 GMT Hello Grant,
I don't know if they tested for a UTI, but its possible. If not the urologist will I am sure. I also think I remember other urine burning conditions during previous outbreaks. Then I will tell him the story about the girl I dated and also the fact that I already have HPV. I did however notice that while taking higher doses of vitamins the outbreaks were lessened and less frequent. I used to take C 1000, E 400, A 10,000, multi vitamin and Zinc 60. I was also advised that Lysine can help viral problems.
Thanks,
Tom
> Probably the best way to find out what is causing those sores is to have one > cultured. Talk to the clinic and let them know what you plan on doing. [quoted text clipped - 5 lines] > > ar Tom - 12 Feb 2005 04:28 GMT Hi Grant,
Why is there a concern for the Negative results? Is it because there could have been a mistake or something else?
Thanks, Tom
> Hi Tom, > > I'm just really concerned that the blood test showed you were negative. You > really need to get a copy of that blood test... > > ar Tim Fitzmaurice - 11 Feb 2005 16:01 GMT > Hello, > > I got the results and its negative for both, but I still have the symptoms, They typically have a fail rate of less than 1% for generating false negatives if I remember correctly.
> thinks. A family member of mine thinks that the doctor ordered the wrong > tests or made a mistake because she is convinced it is herpes. Actually I How well educated on herpes is the family member...I ask simply because there are enough ill informed doctors around, and if I had a pound for every person I have met/shared a house with/been friends with who has told me stuff that 'everybody knows' about herpes and happened to be wrong Id be a rich man.....its difficult enough to diagnose in many cases if you are an expert.
> don't know what to believe because I have all the symptoms. The doctor > suggested that its a yeast infection, but I know that they don't turn into > open sores and reoccur with the same pattern. I have all the symptoms of > herpes 2. I have been having these same symptoms for about 5 years and Your body could be being weird and its a recurrent varicella zoster virus infection, very rare that it should happen at all, let alone looking precisely like HSV but that would produce the right lesions, would respond to the same meds potentially but doesn't crossreact on the tests. The classic areas for shingles like that are the waist and face and recurrent disease (well multiple recurrences to be precise) are pretty damn rare in the first place.
If it was that it would be really really really weird though.
I think there are some bacterial infections like this in the staphylococcus set kinda like weird impetigo but Id have to ask because again its not an area I know about to the required level.
Other mildly wild guesses would be some kind of exanthema thats ulcerating or allergies...but I can;t go more specific than that - its all down to exactly what that lesions is doing.
You might try a dermatologist as the place for 'what else could it be' rather than a urologist, you know...
> finally decided to check on it. I have almost all the symptoms. I cannot > believe that a yeast infection would be going on for 5 years with 5-6 > outbreaks a year with hives turning into sores and itching and tingling and I don;t know enough about yeast to say with any certainty but if a yeast specialist said such infections could inflame and ulcerate in a similar fashion it wouldnt surprise me.
> another STD. Is it possible that the tests could be wrong or something > wasn't done right? Possible but very rare. Clinical science of that sort of test is soooo based on absolute reproducibility and double checking and repetitive activity with bookkeeping its quite hard to destable the circuit....or should be.
Tim -- When playing rugby, its not the winning that counts, but the taking apart ICQ: 5178568
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