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Medical Forum / Diseases and Disorders / Herpes / June 2004

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genital HSV-1

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Ninhydrin - 16 Jun 2004 05:17 GMT
Hi everyone,

I'm new here, and I was wondering if some people might be able to help
answer my questions about gential HSV-1.

About one year ago, I got symptoms of genital herpes. I went to the
doctor and got swabs which showed that it was HSV-1. At the time, I
was under the impression that it was all ok coz genital herpes is
HSV-2. I have had no outbreaks in the past year. I just got the
results of an STD test today which showed that I have HSV-1. When the
doctor asked if I normally get cold sores, I said no and told him
about what happened a year ago. I tried to ask him a few questions,
but I'm still a bit confused. So my questions to you guys are:

1. do I have genital herpes??
2. can I pass it on to a partner even if I'm showing no symptoms?
3. I have heard that in times of stress, cold sores can appear on
other parts of the body. What are the chances that my initial
infection was just some freak incidence of cold sores in the genital
region?

Feeling very confused right now. Any help would be much appreciated.
Thanks.
Pain Devine - 16 Jun 2004 06:00 GMT
> 1. do I have genital herpes??
Probobly... HSV-1 can infect you anywhere... including your genitals. It's
just 'more likely' to infect your lips.

> 2. can I pass it on to a partner even if I'm showing no symptoms?
Yep! (thats the sucky part)

> 3. I have heard that in times of stress, cold sores can appear on
> other parts of the body. What are the chances that my initial
> infection was just some freak incidence of cold sores in the genital
> region?
There's no such thing as "freak incidences of cold sores in the genital
region"
It could have been acne...
it could have been Foliculitous (infected hair folicules)
it could have been a rash
it could have been bug bites...
The only way to be sure is to wait until you have another outbreak and go
into an urgent care or emergancy room for a swab test.

> Feeling very confused right now. Any help would be much appreciated.
> Thanks.
I can understand... This sucks for you, because your hanging in limbo until
your next outbreak. You might end up facing some important ethical questions
regarding new sexual partners. If you're already seeing someone, I would get
as much information as possible and inform them. Explain that what you've
tested positive for is usually assosiated with cold sores but it could be
more.

If you're single... well, I'm not sure what I'd do if I were you. You're
obviously obligated to tell them about having HSV-1 but that's just cold
sores... lots of people have that. Wether you have them genitally... well...
you just don't know yet... and maybe you wont for a full year or more.

Maybe you could try and intentionally trigger an outbreak? Friction in the
infected area seems to be a big trigger for a lot of people. Several day
long sex marithons will set some people off. If you're a guy I think you can
figure out a way to 'simulate' something like that... I'm doing my best not
to be crude here... lol

You could also imediately go on supressive therapy. Valtrex will supress
outbreaks. And if your symptoms are mild already you may never have another
one. Then, when you meet someone new, you could just flat out say "I got a
test, and tested positive for HSV-1. There was no way to be sure if it was
oral or not so I'm on supresive therapy just in case. There is an 80% chance
that you already have it. But if you don't, the chances of you catching it
from me while I'm on supressive therapy are relatively low. Oh, and I love
you a whole lot and hope you understand that it took balls of steal to tell
you this."

Good luck friend.
M.L.S. - 16 Jun 2004 13:39 GMT
>> 1. do I have genital herpes??

>Probobly... HSV-1 can infect you anywhere... including your genitals. It's
>just 'more likely' to infect your lips.

>> 2. can I pass it on to a partner even if I'm showing no symptoms?

>Yep! (thats the sucky part)

>> 3. I have heard that in times of stress, cold sores can appear on
>> other parts of the body. What are the chances that my initial
>> infection was just some freak incidence of cold sores in the genital
>> region?

>There's no such thing as "freak incidences of cold sores in the genital
>region"
>It could have been acne...
>it could have been Foliculitous (infected hair folicules)
>it could have been a rash
>it could have been bug bites...

>The only way to be sure is to wait until you have another outbreak and go
>into an urgent care or emergancy room for a swab test.

He already said that he had a swab a year ago.  He was diagnosed
with HSV1 then.

I probably should have added, last night, that the positive result
from the swab culture he had done is pretty much a sure thing.
Cultures are notorious for returning false negatives, but outside
gross incompetence by the person running the test, a positive can be
relied upon with almost 100% certainty.

>> Feeling very confused right now. Any help would be much appreciated.
>> Thanks.

>I can understand... This sucks for you, because your hanging in limbo until
>your next outbreak. You might end up facing some important ethical questions
>regarding new sexual partners. If you're already seeing someone, I would get
>as much information as possible and inform them. Explain that what you've
>tested positive for is usually assosiated with cold sores but it could be
>more.

Cold sores *are* more.  Cold sores are exactly the same as herpes
lesions.  Cold sores are caused by herpes, whether around the mouth
or on the genitals.

>If you're single... well, I'm not sure what I'd do if I were you. You're
>obviously obligated to tell them about having HSV-1 but that's just cold
>sores... lots of people have that. Wether you have them genitally... well...
>you just don't know yet... and maybe you wont for a full year or more.

He's already been cultured.  He already knows.

Mike

>Maybe you could try and intentionally trigger an outbreak? Friction in the
>infected area seems to be a big trigger for a lot of people. Several day
>long sex marithons will set some people off. If you're a guy I think you can
>figure out a way to 'simulate' something like that... I'm doing my best not
>to be crude here... lol

>You could also imediately go on supressive therapy. Valtrex will supress
>outbreaks. And if your symptoms are mild already you may never have another
[quoted text clipped - 5 lines]
>you a whole lot and hope you understand that it took balls of steal to tell
>you this."

>Good luck friend.
Pain Devine - 16 Jun 2004 19:40 GMT
Yes, but he didn't say the swabs were on his genitals. I thought he was
saying that he had swabs on his mouth that tested positive for HSV-1 and
that now he had sores on his genitals and was wondering if it was the same
thing. Anyways, after I read it again now, you're probably right. I most
like just misunderstood what he meant.
M.L.S. - 16 Jun 2004 20:35 GMT
>Yes, but he didn't say the swabs were on his genitals. I thought he was
>saying that he had swabs on his mouth that tested positive for HSV-1 and
>that now he had sores on his genitals and was wondering if it was the same
>thing. Anyways, after I read it again now, you're probably right. I most
>like just misunderstood what he meant.

Oh, cruel world!  I thought misunderstandings only happened in fairy
tales.  Woe to all of us.  ;-)

Take care,

Mike
Ninhydrin - 17 Jun 2004 01:53 GMT
Thanks everyone for your replies. It's made things a little clearer
for me. Sorry for any confusion, but yes, I meant that I'd had swabs
of the genital region that tested postive for HSV-1. So I guess that
pretty much confirms it.

My biggest concern at the moment is that I'm getting back together
with an ex-boyfriend who I broke up with 3 years ago. Obviously I
didn't have the HSV-1 back then. If I "just" had oral HSV-1, I doubt
I'd tell him. But because it's genital, I feel as though I probably
should. This is despite the fact that (from what I can gather, and
please correct me if I'm wrong) I would be more likely to pass on
HSV-1 to him if it was oral cold sores that I had, as opposed to it
being genital! I really don't know if I should tell him before we
start having sex, or just have sex and use a condom and hope he
doesn't get it :( Arrrggghhhhhh!!

Bec
M.L.S. - 17 Jun 2004 02:13 GMT
>Thanks everyone for your replies. It's made things a little clearer
>for me. Sorry for any confusion, but yes, I meant that I'd had swabs
>of the genital region that tested postive for HSV-1. So I guess that
>pretty much confirms it.

>My biggest concern at the moment is that I'm getting back together
>with an ex-boyfriend who I broke up with 3 years ago. Obviously I
[quoted text clipped - 6 lines]
>start having sex, or just have sex and use a condom and hope he
>doesn't get it :( Arrrggghhhhhh!!

Don't torture yourself over it, just tell.  It's the right thing to
do.  If you don't tell, you'll torture yourself even more, and that
wouldn't be good for your mental health or the health of your
relationship.  If you are in the least bit serious (and even if
you're not, really) about the guy you owe it to him to get it off
your chest.

As to whether it's easier to transfer an HSV1 infection from the
oral region than from the genital region, I doubt that the
difference in risk is very large.  There may be less shedding one
way over the other, but there is no way to know for sure just when
or how often.  And condoms are not fool proof protection against
HSV, though they're pretty good.

Another thing to consider is that your boyfriend, or ex, might
already have HSV1, if not genitally, then verly likely orally.  The
older one gets the more likely that one has it at least orally.  If
he already has it, then you two are on fairly even ground,
especially if he, too, experiences few or zero outbreaks.  If he has
never experienced an outbreak there are blood tests that can
determine if he's been exposed or not.  If it turns out that he's
got oral HSV1 (which he'd have to verify by remembering an oral
outbreak at some time) then that gives him a limited immunity to
also picking up your HSV1 genitally.

All in all it's not that bad a situation, but the best way through
it is to be open and honest.  I know all too well how scary the
prospects can be, but I've never gotten a negative reaction to my
tellings, and have been on the receiving end of some tellings, too,
so I know how much being honest is appreciated.

Best luck and we're hear for all your herpes needs. ;-)

Mike
Pain Devine - 17 Jun 2004 03:51 GMT
Oh! Your female... I'm sorry! *turns red*

So, what you should do is tell him. He should understand. And if he doesn't
there are lotsa guys in here that would be willing to take you out dancing
anytime you'd want to. I'm not very good at dancing myself but would be
perfectly willing to step on your toes for several hours if you'd like!

Trust me, you're just as pretty as you were before you had the disease. So
don't worry!
Ninhydrin - 18 Jun 2004 04:20 GMT
Awwww thanks :)
I feel so dirty right now, even though I know that's stupid because so
many people have this. I'm really worried that no guy is ever going to
love me. But it's really great having the support of everyone on here.
It makes me feel a whole lot less alone.
Bec

> Oh! Your female... I'm sorry! *turns red*
>
[quoted text clipped - 5 lines]
> Trust me, you're just as pretty as you were before you had the disease. So
> don't worry!
Grant - 17 Jun 2004 10:14 GMT
Under no circumstances should you EVER have sex withOUT telling your
partner.  Period.

There is absolutely no excuse anyone could possibly ever come up with to
excuse themselves from not telling.

ar

> Thanks everyone for your replies. It's made things a little clearer
> for me. Sorry for any confusion, but yes, I meant that I'd had swabs
[quoted text clipped - 13 lines]
>
> Bec
M.L.S. - 17 Jun 2004 16:23 GMT
>Thanks everyone for your replies. It's made things a little clearer
>for me. Sorry for any confusion, but yes, I meant that I'd had swabs
>of the genital region that tested postive for HSV-1. So I guess that
>pretty much confirms it.

>My biggest concern at the moment is that I'm getting back together
>with an ex-boyfriend who I broke up with 3 years ago. Obviously I
[quoted text clipped - 6 lines]
>start having sex, or just have sex and use a condom and hope he
>doesn't get it :( Arrrggghhhhhh!!

I thought of something else in the short period of pre-sleep tossing
and turning last night.

You don't really need to tell.  Heh heh.  All you need to do, and
what everyone *should* do before they enter into a new sexual
relationship, is say, "Listen, I've slept with other people, you've
slept with other people.  Before we sleep with each other, let's
both go in for a full STI screening, including Herpes and HIV,
Chlamydia, Gonorrhea, Syphilis, etc."

Then, you just wait for your test results.

It's a way to innocently break the ice on the subject, and it also
has the advantage of ensuring that you're not going to catch
something else *worse* than Herpes.

Eh?  Good idea?

Mike
Ninhydrin - 18 Jun 2004 04:22 GMT
Thanks for the idea Mike! It's not a bad one, except that when I get
my test and it comes back positive for HSV-1, it gives me the very bad
opportunity to say "oh yeah, that's just cold sores", and I probably
shouldn't do that. I should tell him the truth :( But it's tempting!
Bec

> > I thought of something else in the short period of pre-sleep tossing
> and turning last night.
[quoted text clipped - 15 lines]
>
> Mike
Gadge - 21 Jun 2004 21:30 GMT
> Thanks for the idea Mike! It's not a bad one, except that when I get
> my test and it comes back positive for HSV-1, it gives me the very bad
> opportunity to say "oh yeah, that's just cold sores", and I probably
> shouldn't do that. I should tell him the truth :( But it's tempting!
> Bec

But when you think about it, it is just cold sores.  Only you'd have to
explain the cold sores are in a different place to where you'd expect!

--
G.
Pain Devine - 22 Jun 2004 01:36 GMT
Don't let Bec fool ya... I got to see her picture... I'm starting to think
only gorgeous women get this disease... either that or I got some wierdo
Herpes fetish and just "think" they're gorgeous. Anyways, Bec won't have a
problem getting a man.

> > Thanks for the idea Mike! It's not a bad one, except that when I get
> > my test and it comes back positive for HSV-1, it gives me the very bad
[quoted text clipped - 7 lines]
> --
> G.
Gadge - 22 Jun 2004 23:42 GMT
> Don't let Bec fool ya... I got to see her picture... I'm starting to think
> only gorgeous women get this disease... either that or I got some wierdo
> Herpes fetish and just "think" they're gorgeous. Anyways, Bec won't have a
> problem getting a man.

lol - herpes fetish!
M.L.S. - 16 Jun 2004 06:03 GMT
>Hi everyone,

Howdy.  Welcome!

>I'm new here, and I was wondering if some people might be able to help
>answer my questions about gential HSV-1.

>About one year ago, I got symptoms of genital herpes. I went to the
>doctor and got swabs which showed that it was HSV-1. At the time, I
[quoted text clipped - 4 lines]
>about what happened a year ago. I tried to ask him a few questions,
>but I'm still a bit confused. So my questions to you guys are:

>1. do I have genital herpes??

Yes, very likely.  Genital herpes can be either HSV1 or HSV2.  It
used to be that people thought if it was "genital" it had to be
HSV2, and that if it was "oral" it had to be HSV1, but these days we
know that's not true.  While the old classifications are probably
true on average, either virus can set up housekeeping in other
locations.  In fact, it's estimated that some 30% of new genital HSV
cases are caused by HSV1.  You are very likely one of those.

The good thing about having HSV1 in the genital region is that it's
usually not as severe as having HSV2 there.  In fact, again, what
you've experienced is very often true of an HSV1 genital infection:
the host experiences one outbreak, and then no more.  However,
unfortunately, no outbreaks does not equal no risk to your sexual
partners.

>2. can I pass it on to a partner even if I'm showing no symptoms?

Yes, the virus can be, and very often is, passed on even with no
symptoms showing.  It happens via a process called asymptomatic
shedding, which is a fancy way of saying that the virus is active,
but not active enough to destroy enough outer skin cells for you to
quite notice.  People tend to asymptomatically shed more virus in
their first year of infection than later on, but there is really
never any way of knowing if you're shedding or not, or how much.

>3. I have heard that in times of stress, cold sores can appear on
>other parts of the body. What are the chances that my initial
>infection was just some freak incidence of cold sores in the genital
>region?

Cold sores, or herpes lesions (both the same thing) will only appear
in areas where the virus has been introduced.  If you only have
genital herpes, then you'll only have outbreaks in the genital
region, which is defined as anywhere covered by a theoretical pair
of boxer shorts.  If you only have oral herpes, then you'll only
ever experience an outbreak in the oral region.

What you've probably heard is that it is possible to infect other
than the oral or genital regions, and that is true, but it requires
that you somehow physically introduce the virus to that other
region, either by rubbing a genital sore and then, say, sticking
that finger in your eye (keratitis, herpes of the eye), or having
your finger get infected (called Herpes whitlow, and usually
requires that you have a cut on your finger that lets the virus in)
or giving the virus the chance to work into some other place.

The good news there is that autoinoculation, as it's called, is
somewhat rare after your first or Primary outbreak, because the body
has then had time to arm its herpes fighting immune weaponry.

So, your initial genital infection wasn't just a manifestation of an
oral infection popping out in a weird place.  If you have a genital
outbreak, you have herpes genitally.  If you have an oral outbreak,
you have it orally.  If herpes shows up on a finger (fairly rare,
don't get scared just cuz I've mentioned it twice) then you have
Herpes Whitlow.

>Feeling very confused right now. Any help would be much appreciated.
>Thanks.

It's a lot to get a hold of right at the beginning, but having HSV1
genitally is one of the milder ways to go.

Hope that helps,

Mike
Grant - 16 Jun 2004 12:23 GMT
Hi,

I have genital type 1.  We usually get through oral sex with someone who
gets cold sores.  Genital type 1 is difficult to pass to someone else's
genitals.  It's more likely to pass to someone's mouth through oral sex.

So, basically, yes, you have genital herpes.  Yes, you have to tell your
partners before engaging in any sexual activity.  However, you will find
that many people have had cold sores at some point in their life.  That
means they've already got the virus.

Let us know if you have any other questions.

ar

> Hi everyone,
>
[quoted text clipped - 19 lines]
> Feeling very confused right now. Any help would be much appreciated.
> Thanks.
Queen Burger - 17 Jun 2004 03:27 GMT
> I'm new here, and I was wondering if some people might be able to help
> answer my questions about gential HSV-1.

Hey, I was recently diagnosed with HSV-1 genitally, too (Mar/Apr).  So
I'm here with ya.  I'm new to the whole thing, generally, and I'm
learning too.  I read your latest post about getting back with an
ex-boyfriend who you were with before HSV.  It's really funny, but I'm
hoping the same thing happens to me (getting back with an ex before I
got HSV) and I am scared to death of it.  I mean, he and I don't have
a chance for at least another year (we're five hours apart and in
school) but I'm hoping with all my heart that it happens.  I have
nightmares about telling him right now, and there's no indication
we're even getting back together.  I'd really like to know your
telling story when you do tell him, 'cause you definitely have to.  If
you guys are getting back together after a long break up, it's
obviously 'cause you care about each other a lot and so you wanna
start off on the right foot.  Easier said than done, coming from a
girl who's abstaining from sex until she gets the balls to do it, I
know.  But I'll say a little wish on a star for you that it goes well.
I would love to hear your story when you get a chance.
Ninhydrin - 18 Jun 2004 04:12 GMT
Hey Queen Burger,
Thanks for your reply! I really hope things work out with you and your
ex as well. Things are already going to be hard for me and my ex,
since he lives in another state - about 9 hours drive away. So that's
another reason I'm anxious about telling...it's sort of like the
relationship already has obstacles, and I don't want to make things
worse. I'm seeing him for the first time in 4 days (we've been talking
on the phone and emailing til now) and I'm so excited about seeing
him, but sooooo dreading having to tell him about the herpes. Lots and
lots of sleepless nights this week! But I'm hoping it all goes well.
I'll let you know!
Bec

> > I'm new here, and I was wondering if some people might be able to help
> > answer my questions about gential HSV-1.
[quoted text clipped - 16 lines]
> know.  But I'll say a little wish on a star for you that it goes well.
>  I would love to hear your story when you get a chance.
 
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