Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Herpes / May 2004

Tip: Looking for answers? Try searching our database.

Occular Herpes

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Ms_Squiggles - 26 May 2004 09:39 GMT
I have been lurking here for a few months, just observing what's going on. I
thought it was time I opened my big trap and said Hi.

I have been wondering if there are other people out there that also suffer
from Herpes that attacks in their eyes, I thought I would mention this is
what I have been suffering from for about the last 25 years or so.

The attack usually starts with a headache behind my left eye, this can only
be described as feeling like a red hot fire poker has been shoved into my
head and is being twisted.

If I do not manage to consume enough Acyclovir tablets to keep the OB from
producing blisters, I end up with little vesicels (blisters) along the
lower edge of my upper eyelid. The fluid that weeps from these ends up in
my eye, causing the virus to start breeding in the tear fluid. I then need
to treat this with Zovirax opthalmic ointment. The OB's usually last only a
few days now, but when I was about 17 Y/O I had OB's that lasted into the
weeks.

I have been taking Acyclovir (Zovirax or a generic replacement) for about 15
years without any long break, as every time I try to reduce the dose, I get
OB's.

Long term, the biggest problem seems to be the scar tissue on my cornea
causing a slight loss of vision in that eye.

Because the OB's have been 'hanging around' for so many years, I have ended
up having all sorts of tests done checking my immune system etc.... If
anything my immune system seems to be constantly working in overdrive
according to the Doctors. I just wish I would have this 'tapering off'
effect that so many of you have spoken about.

When I was a kid I remember getting the usual 'cold sores' around the
corners of my mouth whenever I got really run down. At about the age of 16
or 17, the OB site shifted to my left eye!

Is there anyone else having problems with Occular Herpes???????

I am guessing there must be, otherwise the Opthalmic Zovirax ointment would
never have been produced!

Signature

Pippa

Grant - 26 May 2004 10:46 GMT
Hi,

Occasionally we will have someone come in here who has occular herpes.  But
they generally don't stick around so we have no "resident expert."  Though,
my former roomie did develop occular herpes a few years ago.  I remember he
ended up in the hospital.

Why are you not on a low dose suppressive med?  Take a pill everyday, etc.
It can be costly but we are talking about your site.  Plus, because you have
occular herpes, you run a much bigger risk of developing encephalitis.  I
would check out some suppressive therapy.

Because your outbreaks have not subsided, then I would also take a really
good look at what's going on in your body and your environment.  Foods are
often a trigger for some people.  A diet change may be in order.  Or,
sunlight can be a trigger, so always wearing sunglasses outside might help
(though I suppose you already do that).  You may think your diet is healthy,
but is it really a healthy diet for YOU?  An over active immune system is
not that healthy.  I used to have an overactive immune system as well.  It
created severe allergies and thyroid disease - so much for being healthy.
When I changed my diet, my allergies went away but the thyroid damage is
here to stay.  My immune system is now healthy and not overactive.  I was
afraid, though, that herpes outbreaks would become more frequent but that
didn't happen.

Take care,
ar

> I have been lurking here for a few months, just observing what's going on. I
> thought it was time I opened my big trap and said Hi.
[quoted text clipped - 36 lines]
> I am guessing there must be, otherwise the Opthalmic Zovirax ointment would
> never have been produced!
Ms_Squiggles - 26 May 2004 11:37 GMT
> Hi,
>
[quoted text clipped - 27 lines]
> Take care,
> ar

Actually I am taking suppressive medication... I have been taking it since
Zovirax first came onto the market here in Australia. That,s one of the
things I am concerned about, the long term effects of taking Aciclovir for
many many years. The documetation that seems to be available suggests that
it is reasonably safe for 5 years, but what about the effects of taking
this stuff for 20 or more years. If I remember my dates correctly I have
already been taking it for nearly 15 years!

The overactive immune system has a couple of causes in my case, one of which
is the herpes, another is that I am host to the Toxoplasmosis virus. This
also attacks my left eye, but in the form of a growth a bit like a
cauliflower on my retina, right next to the optic nerve. The outbreaks I
have had from that virus have had a much more dramatic effect on my sight
than the herpes scars on my cornea, these scars only cause a little
blurring of my vision. The damage to the retina has left me with a blind
spot, as well as a weakened retina. The retina has torn on a number of
occasions requiring laser surgery to prevent the tears travelling and the
retina peeling off. If this were to happen I would loose the sight in that
eye. All that is not a topic for this NG as it is a totally different
virus.

As for triggers for the herpes OB's, I have found that emotional stress is
the one that can cause an OB the quickest. If I get really upset about
something, I break out the very next day. Getting something like the flu or
a really bad cold will usually cause me to have the eye headache for a few
days, and if I take 1 x 200mg Aciclovir tablet about every 2 hours or so, I
can manage to get through without developing any blisters that actually
break.

Like I mentioned in my original post, I have had all sorts of pokeing and
prodding from medical type people to try and figure out the reason for the
elevated T cell count in my body. I have changed my diet quite a lot in the
last year or so, eating much less meat, more vegetables and grains etc. I
feel much better for these changes, and have only had 3 or 4 very mild OB's
in the last 12 months..... much less than in the past!

I guess with the diet thing it is a matter of long term experimentation, and
comparing notes with others who also play host to this little organism! I
have noticed that some people have made comments about avioding foods with
high arginine levels..... What sort of foods is this arginine stuff found
in??? What is it?  If I knew that I may be able to figure out if I am
eating some things that I should try giving up.

Thanks for the words of support Grant.

Signature

Pippa

Grant - 26 May 2004 22:41 GMT
Hi Pippa,

Okay.  I misread your post.  I thought you were taking your meds only when
you were feeling symptoms come on.

That darn Taxo virus sucks.  That would explain a lot, actually.  If you are
interested, read Fit For Life by Harvey Diamond.  It's a great book about
eating foods to help detox your body.  The less your body has to cope with
from toxic foods, then the more time and resources it has to deal with the
virus.

L-Arginine is an amino acid.  Of course, you have to have some.  You may
find that balancing it out by taking L-Lysine, or eating foods high in
lysine, may help with your outbreaks.  A few years ago, someone declared
that Arginine stimulated the herpes virus while Lysine blocked it.  For some
people, taking Lysine really helps a lot.. For others, it doesn't do diddly.

Common food triggers are: chocolate, caffeine, nuts.  I have a friend who
has an outbreak within hours of ingesting anything with caffeine in it.
Again, food is not a trigger for everyone.

Somewhere on the internet (but my link no longer works) is an
Arginine/Lysine chart.  You can probably find it by doing a few searches for
Arginine/Lysine food chart.

Emotional stress is  a tough one to deal with.  I know that some do yoga or
meditation.  I personally haven't tried either of those for stress
reduction.  There are also flower essences, such as Rescue Remedy, that you
can probably buy in your health food store.  Rescue Remedy is supposed to
calm you down.  It's pretty cool.

Oh, back on the food...if you are taking vitamins, check the ingredients to
make sure you aren't ingesting extra Arginine.

Take care,
ar

> > Hi,
> >
[quoted text clipped - 72 lines]
>
> Thanks for the words of support Grant.
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.